Archive for May, 2014

Settlers’ Watch Carvings Update -May

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As regular readers are aware, the volunteers of Charleston Village, with the help of the City of Lorain have started to take down the carvings off the tree lawn at Settlers’ Watch.

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These carvings have to be refurbished and refinished before they can be replaced in and around Settlers’ Watch and Eric Barnes Heroes Walk.

The first carving- The Anchor- was taken down on a very cold day in February-
http://www.morningjournal.com/general-news/20140226/lorain-settlers-watch-park-to-be-spruced-up-for-spring-with-video
taken to a warehouse

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and we waited for spring and enough warmth to use the chemicals needed and also for the volunteers ( spearheaded by Frank Sipkovsky) to be able to work.

Before

Before


After

After

There is more to this than one might think, stabilizing rods, filler and sanding galore needs to be done.

frankanchor collage

If anyone would like to donate some time and talent helping to get these 4 carvings refurbished and finished- we could use the help. email cvsilor@yahoo.com if you can help or call 440-246-6046

We have to move The Heron – donated by Oster Homes, The Portside Lorain sign ( grant)- The Anchor in progress ( also a grant) and the Lorain Lighthouse – donated by Port of Lorain Foundation- Lakeland Healthcare Corp.

May 31, 2014 at 6:00 pm Leave a comment

George Schneider – Devalued Lorain???

Schneider George 011813The Chronicle Telegram
http://chronicle.northcoastnow.com/2012/08/26/dilapidated-house-disgusts-frustrates-neighbors/ by Lisa Roberson

Schneider, public records say, wants the city to give him more time to make repairs.
Schneider’s first step in making the request came in the form of an appeal to the Board of Building Standards within weeks of city officials tacking a condemnation notice on the front door.
In a response filed by Schneider’s attorney Brent English that aimed to address the 44 violations the city Building Department put forth as proof the building needed to be condemned, English said Schneider “would not to just sit by and let his house go.”
“We are determined to ensure this will not happen,” he wrote in the seven-page letter to city officials, which was dated June 27.

has Georgy featured yet again as
last week the City of Elyria came to an agreement with George and his attorney Brett English ( remember them????? https://thatwoman.wordpress.com/2012/09/17/george-schneider-the-legal-arguments-give-it-some-english/

http://chronicle.northcoastnow.com/2014/05/22/elyria-property-owner-reach-agreement/
Lisa Roberson

ELYRIA — The city Law Department has settled a long legal battle with businessman and property owner George Schneider
He’s the reason why Elyria decided it needed to create a Demolition Board of Appeals. He’s the landlord tagged with having received the most code violations from the city of Lorain’s Nuisance Inspection Task Force in its first year. County auditor records from 2013 peg him as the owner of 169 properties countywide.
With the settlement Schneider agrees to make needed repairs to eight Elyria homes and, in exchange, the city will halt its actions to legally force their demolition. Law Director Scott Serazin said the agreement gives the city four important things.
“Work will start immediately. He must use licensed tradespeople. We can get into any of the properties with a 48-hour notice, and we don’t have to send certified mail to multiple addresses to prove service,” Serazin said. “For Schneider, the money he would spend on legal fees and litigation can now be put into his properties.”
The agreement does not stop the city from going after other properties owned by Schneider if enforcement action is needed.

Actually, George has many more than the 169 under his own name as of last year ( and we do know figures have changed since then )

PROPERTY OWNERS AND NUMBER OF PROPERTIES OWNED

GEORGE SCHNEIDER = (Under his own name) = 164
Also
G AND S PROPERTIES = (INCLUDING Jay Metals 1965 E 28th) 3

Also a
GNS PROPERTIES = 1
GEORGE (misspelled ) SCHNEIDER= 6
Also affiliated with
reds
REDS ALL AMERICAN RECYCLING = ( David Carter) = 52
DAVID CARTER= 12

Also affiliated with

FGSK PROPERTIES (inc Gustav AND Anna Krause) = 19
GUSTAV KRAUSE = 12
ANNA KRAUSE = 6
TOTAL PROPERTIES FOR THIS GROUPING = 275

https://thatwoman.wordpress.com/2013/07/05/the-nuisance-and-point-of-sale-ordinance-lorain/

In fact, George lost a duplex over the weekend this one

1783 30th
1783 E 30th

George, again was featured in the Chronicle article just 5 days later by Evan Goodenow

http://chronicle.northcoastnow.com/2014/05/27/back-back-fires-keep-crews-busy/

The second fire was called in at 11:50 p.m. at a vacant two-story wood-frame duplex at 1781-1783 E. 30th St., between Clinton and Pearl avenues. Firefighters still were at Douglas Court, so Livchak said Amherst, Elyria and Sheffield Township firefighters assisted.

Firefighters found heavy fire coming from the rear of 1783 E. 30th and extinguished the fire at 1:29 a.m. Livchak said the blaze was an arson and caused about $30,000 in structural damage. Livchak said an arson also occurred at 1783 E. 30th in September.
The property is owned by landlord George Schneider, according to the Lorain County Auditor’s website. Schneider had the most code violations cited by the Lorain’s Department of Building, Housing and Planning in 2012-13

Well don’t feel too badly for George – Georgy isn’t out of pocket by much as one of the enablers( in my humble opinion) to his property habit – Deutsche Bank only charged him $5,500 ( devaluing the property from the year previously when they were grantor by $44,500-George apparently got a deal because just two years prior to his purchase of $5,500 it sold for $70,000 so discounted 64,500 in two years- Not too shabby George !

It cost the City of Lorain Fire Department, in time, machinery, personnel and danger to life and limb, not to mention putting other properties at risk a great deal more than your purchase price a couple of times over -I am sure -to respond to the number of your “property” fires.

One has to ask after the first fire was anything done to secure that property after previous fires

http://www.morningjournal.com/general-news/20140526/lorain-fire-department-battles-back-to-back-house-fires-late-may-25

by Rick Payerchin

In August 2013 firefighters went to the same home for a kitchen fire in the 1783 side of the building, Livchak said.
A month later, the 1781 side was occupied and there was a suspicious fire in the 1783 side, he said. It appeared the home might have been vacant since then because of damage from the second fire.
The building had an estimated value of $30,000 and was considered a total loss, Livchak said. The fire department called for a demolition crew to knock down the remaining structure

Oh George! do you have insurance because if you do it seems you have made a profit – $5,500 purchase and loss $30,000 .

conveyance 1783

https://thatwoman.wordpress.com/2013/07/09/the-pos-and-nuisance-ordinance-a-lesson-in-history/

George and Deutsche Bank had more dealings on E 30th Street with George in 2007

1624
1624 E 30th – $8,990

1628
1628 E 30th – $7,500.
1632
1632 E 30th – $14,500

1730
At least Deutsche Bank wasn’t involved in this property devaluation on 1730 E 30th going from a high in 2004 of $85,000 to the sale price for George in 2010 of a mere $6,500

conveyance 1730

So there we have the story continues and Lorain devalues……and smoke gets in your eyes……..
https://thatwoman.wordpress.com/2012/07/08/for-rent-one-city-who-dictates-the-health-of-your-neighborhood/

May 27, 2014 at 3:20 pm 12 comments

Freedom- The Pride- The Glory – Remember

Who  I  Am - Chris Ritchey

Who I Am – Chris Ritchey


The sky was robin egg blue this morning, the lake kissed with silver and gold. The air cooling to those of fevered brow. A day of glory, when all young men and woman who have given their everything are to be thanked for giving us the peace of this day with the freedom to enjoy. Their voices are stilled , their presence hidden from our world and yet they speak and are heard in the laughter of each child who is without fear of living in this city on the shore. Their presence can be felt when the voices of debate are raised in opposing ideas.

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This is their gift to us who remain- we must not forget , we must cherish the gift of life they have given to us and maybe just maybe if we are quiet and still in our reflection as their symbol of country is flown against the robin egg blue sky they will hear our gratitude and know their sacrifice was not in vain.
Eric Barnes Heroes Walk
https://thatwoman.wordpress.com/2012/10/10/eric-barnes-heroes-walk-the-update/

rasing the flagcol2014
Admiral King Tribute SitePurple Heart recipient Don Fugitt United States Army raises the flags with Ernest Ritchey US Air force

Bruce Horner

Army 1st Sgt. Bruce Horner – Son of Ed and Betty Horner
Died June 1, 2007 Serving During Operation Iraqi Freedom assigned to the 127th Military Police Company, 709th Military Police Battalion, 18th Military Police Brigade, 21st Theater Support Command, Fliegerhorst, Germany; died in Seddah of wounds sustained when his unit came in contact with enemy forces using small-arms fire.
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Airman 1st Class Eric Barnes – Son of Tom and Shary Barnes
Died June 10, 2007 Serving During Operation Iraqi Freedom assigned to the 90th Logistics Readiness Squadron, F.E. Warren Air Force Base, Wyo.; died as result of an improvised explosive device attack on an Air Force convoy about 100 miles south of Baghdad.

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Marine Lance Corporal David Hall son of Delmar and Lulu Hall
Died August 31, 2009 Serving During Operation Enduring Freedom assigned to the 2nd Battalion, 8th Marine Regiment, 2nd Marine Division, II Marine Expeditionary Force, Camp Lejeune, N.C.; died Aug. 31 in Garmsir, Afghanistan, while supporting combat operations.
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giese_joseph_r_LG
Marine Lance Corporal Joseph “Ryan” Giese son of Larry Giese and Connie Wascovich
Died January 7, 2011 Serving During Operation Enduring Freedom assigned to 2nd Battalion, 9th Marine Regiment, 2nd Marine Division, II Marine Expeditionary Force, Camp Lejeune, N.C.; died Jan. 7 in Helmand province, Afghanistan, while conducting combat operations.
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Louis Torres

Sgt. Louis Torres son of Albert Torres and Armanda Ellis. who was fatally injured Aug. 6 in Afghanistan Sgt. Torres lost his battle with his wounds on August 22, 2012 .Torres was assigned to the 2nd Battalion, 3rd Infantry Regiment, 3rd Stryker Brigade Combat Team, Joint Base Lewis-McChord, Washington.

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May 24, 2014 at 4:49 pm 2 comments

Pride Day- Lorain? Settlers’ Watch CVSI

Update: Thanks to Charleston Village volunteer Juan Perez – the sign( made by one of the -now deceased- residents) that had to be removed from the 5th street triangle due to the road and utilities work- is back. Juan will be painting the newly installed sign and planting soon. Thank you ( a story will be following ) on the sign. We take pride in our villagers

signres

Pride Day apparently was this year’s Elyria Pride Day as per the Morning Journal headline

http://www.morningjournal.com/general-news/20140517/volunteers-bring-their-best-to-elyria-pride-day

Volunteers bring their best to Elyria Pride Day

Interesting that – considering ( if the MJ remembered their own history) the Morning Journal was the main instigator of Pride Day Lorain in 1994 started after South Lorain held their own clean up day . The MJ thought it was a great idea and ran with it , organized it and sponsored it.
IT then morphed to take in the county .
http://chronicle.northcoastnow.com/2014/05/18/hundreds-spruce-sites-across-county-rain/

wickens-oval-portrait-e1374614237409
However no matter how you cut it it is a good thing to carry on in fact Pride In Lorain started in the long ago with George Wickens
I would like to think his background had something to do with the fact he “noticed things and did something about them”- Pride Day back in the Day- attributable to George Wickens

https://thatwoman.wordpress.com/2013/07/25/veterans-memorial-park-the-englishman-commeth/

“If the suggestions of the board of trade are carried out, Lorain will have regular days set apart each fall and spring as holiday clean-up days. Health Officer Hug, at the meeting last night spoke of the necessity of such a move. “To those who have occasion to pass the alleys and back yards about the city it becomes at once apparent that the conditions are decidedly unsanitary, unsightly and very offensive to aesthetic natures.

AH the precursor of Lorain Pride Day!!!!

Pride Day Lorain brought with it another “English connection ( besides me) the damnable weather . As I met with the volunteers at Settlers’ Watch it “bloody rained and rained and rained”. Now if we stopped for the rain in the British Isles NOTHING would ever get done- even though this weekend they are experiencing tropical weather sans rains.

The hardy group of volunteers – who are now bearing the dubious title of honorary Englishman for braving natures watery onslaught:

The volunteers from Lorain Rotary, The Eric Barnes family and friends, City workers ( Utilities) ( volunteers off the city clock)) Charleston Village board members, volunteers and the City of Lorain who picked up the bags of trash and provided mulch, the county who supplied equipment.

Thanks to those people and the two mallard ducks that delighted in the puddles we “got it done” – well as far as we could- some planting needs to happen just too wet – The Admiral King Tribute Site will need the marigolds along the borders, The flags will be put out along Eric Barnes Heroes Walk and the Admiral King ship’s mast will fly the colors by Memorial Day . The pictures said it all.
Settlers Watch Lorain Pride Day 2014
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The rain did not deter Lorain Rotarians
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It was like water off a duck’s back!

ducks back

as those water warriors plowed on- cutting , weeding mulching, cleaning
pride

honoring Lorain and this her oldest neighborhood and the young men who died for her and home.
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Finally the sun did come out and here is the result of the efforts of those that “braved a little Scottish Mist” and Lorain once again has lilacs and roses

https://thatwoman.wordpress.com/2013/12/01/lilacs-of-lorain-and-now-roses-part-6/

lilacs

ED NOTE:Thanks so much to those that showed- and those that donated plants and cash. There is still plenty to do when the weather co-operates. This wet “Englishwoman) is proud to know you!!!! Oh and I apologize for the quality of the photos – I only managed to cut half the heads off and the rest were a blurry ( putting that down to the rain 😉

May 18, 2014 at 1:29 pm 4 comments

Lorain Dudes- Spring ( into action)

ridngresFinally Spring is here – we have been locked indoors for too long- Mummy and Nog got desperate to burn off our energy!

Finally time for beachin at Catawba
beachres

beach twores

We got to play because we cleaned up earlier in the year
Cleaning Grandad Jim’s Lighthouse

cleaningcataba

AND YEA!!!! CEDAR POINT OPENED!!!

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Braedyn took mummy on the roller coaster ( or was it the other way around?
ridingmum

But it is time to clean up , spruce up on Saturday for Lorain Pride Day at Settlers’ Watch, Admiral King Tribute Site and Eric Barnes Heroes Walk – Bring your tools – we will help!
cutgrassres

Settlers’ Watch meet at 8:30 Saturday May 17th – 2nd and Oberlin Avenue Lorain- Lots to do!!

and Braedyn wants to remind you we are still passing the hat!!!! https://thatwoman.wordpress.com/2014/03/21/the-hat-consider-it-passed-to-you/

photo Lisa Miller

photo Lisa Miller

These projects all take money and manpower. If you can help with either a cash donation, in kind donation or blood sweat and humor please contact us
Donations made out to Charleston Village Society
C0/ 1127, West 4th Street
Lorain Ohio 44052
cvsilor@yahoo.com – 440-246-6046 ( further information

)

May 14, 2014 at 1:01 pm Leave a comment

A ghost of remembrance – Mother’s Day

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As long time readers are aware, a small koi- a Ghost Koi– was slipped into the pond on the last Mother’s Day my son and I shared –

https://thatwoman.wordpress.com/2010/03/19/the-ghost-in-the-pond/

Oh! Chris ! why would you buy another Koi? you know they never survive the winter”
“I needed to get this one and it’s Mother’s Day so you have to accept it “


And the next Mother’s Day was one of pain and cruelty unasked for “notes” from his bride had arrived – Angela Marie (Lombardi Ritchey) Murphy) Angela Murphy Do http://my.clevelandclinic.org/staff_directory/staff_display.aspx?DoctorID=16147

https://thatwoman.wordpress.com/2010/05/06/mothers-day-what-degree-a-mothers-love-and-who-decides/

There is always , like anything in this life, the chance his last Mother’s Day present would not thrive and survive the winters.
ghk

https://thatwoman.wordpress.com/2010/06/01/ghost-in-the-pond-a-koi-story/

https://thatwoman.wordpress.com/2011/03/19/ghost-in-the-pond-deux/

https://thatwoman.wordpress.com/2012/05/12/mothers-day-2012-gifts-and-ghosts-a-fishy-story/
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Last August disaster struck the pond – fish were dying

https://thatwoman.wordpress.com/2013/08/03/august-3rd-the-enviroment-changed-chris-ritchey/

days and nights of water changes medicine but the Ghost Koi continued.

Then came the winter of my nightmares. The extreme cold caused the waterfall, which is made from a concrete like substance, to crack causing the water to leak out of the pond. The temperature was cold enough to freeze the mighty Niagara so even with heaters and aerator the water froze.

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The day the concrete falls cracked open we lost nearly half the water in the pond. My husband had to first unfreeze the spickets and hoses in order to fill the pond to a level where the pumps would work. He then had to bypass the falls with piping in order to keep the water flowing, but the pipe would freeze. The pipe then had to insulated with a sleeve like design made out of a sleeping bag. Unfortunately, Shadow took great delight in pulling this off every chance she got.
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My husband spent hours trying to keep the pond open in order for the gasses to escape and keep the fish safe. There was many a day he was out there in the 10 below temperature almost willing the water to run and the ice not to form. There were days that found me lying flat on my stomach in the snow chipping away at the ice on the end of the piping so the pump would continue. All for a fish , a fish given on that last Mothers Day.

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Spring has come late this year. The pond is usually up and running and the fish awake by late March but it has only been in recent days life has returned to the pond . The water is still murky but a Ghost Koi, larger now than ever before, swims under the water fall once more and reminds me of a another Mother’s Day……..

ghkoipond
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Friday, was Mother’s Day for me , my mum, Nikki and two little boys went to the “fish” restaurant of choice “Red Lobster”. The boys eagerly watched two lobsters fighting in the tank but ate macaroni and cheese.

Then on to Pandys and Lowes for plants. I am not sure there will be any rhyme or reason to the garden this year as Gavin and Braedyn loved the plant shopping and filling the carts to overflowing. Certainly not paying attention to directions of “sun – full sun – shade partial shade” . Little hands distributing love and flowers , excitement in innocent eyes as they picked up more and more . There should be some interesting plantings this year because each plant was given with love and so couldn’t be put back.

My tears falling once more, my heart in hurt as I remember when a little girl and her brother would look up with the same excitement in their eyes as they gave their Mother’s Day gifts and one Mother’s Day when a small silver fish was slipped into a pond – a ghost of remembrance and a love that grows…crop2chris

May 10, 2014 at 12:07 pm 2 comments

Humira -auto-immune medicatons check the box

selfportrait- Chris Ritchey

selfportrait- Chris Ritchey

ED Note
Every single day this blog receives searches looking for answers and information on Humira and other auto- immune medications. The information on this blog has been garnered not from the medical community, the drug sales force, the commercials but from the mothers of those who are the faces of the “black box warning” .

https://thatwoman.wordpress.com/2014/05/06/humira-the-black-box-and-you/
https://thatwoman.wordpress.com/2013/08/12/black-box-warnings-take-heed-humira-etc/
https://thatwoman.wordpress.com/2013/08/07/the-faces-of-the-black-box-warning-humira/

– No one wants another mother to share their pain. Graciously in the midst of their own suffering they have answered emails sent through this blog and elsewhere to advise from their own personal experience- the following is one such response to those that search.

drugshot
You are right to look for information about Humira, and any other kind of powerful auto-immune medication–and there are several on the market today of similar biological make-up. In addition, there are other drugs that are frequently prescribed in combination with these auto-immune drugs (a protocol called recombinent drug therapy) which when taken together, can have additional serious (deadly) adverse side effects. All of these meds are/can be very, very dangerous, but every situation and individual is different.

If you are concerned, it will be entirely up to you and/or your family to do the appropriate research before you make a decision one way or another to take these kinds of medications.

Please, DO NOT waste your time contacting the sales reps for the drug company. They do not know, and WILL NOT tell you anything even if they do. They are not research scientists, doctors, or experts in anything except how to sell a product and make a commission.

Unfortunately, it is probable that your doctor will not know much more since they, too, purchase the meds from these same salespeople. Nor can you assume or expect a pharmacist to know any more about the dangers of these drugs than what is included in the package insert they dispense. The bottom line is no one can give you information unless it has first been provided by the drug companies and this is precisely why we are in such trouble.

dollars for docs

http://projects.propublica.org/docdollars/
I strongly suggest that you do as much research as possible about any auto-immune medication being prescribed for whatever your particular condition might be. Humira and other similar medications can be, and are used safely by thousands of people, but not everyone.

You may be fine with this medication, but it would probably still be a good idea to

1. find another one or two doctors for second or third opinions.

2. Ask as many questions as you can about length of treatment and expected outcome.

3.You should also go online to the FDA website for information about Humira (and other auto-immune drugs) and look for material specifically regarding adverse events. You need definitely to do this, if you do nothing else.

Any information about dangerous side effects for these drugs will be listed there. You will not be able to get this information in any format that is intelligible, providing you can even find it, on the label.
Canda FDA
It is interesting to note as well, that Canada’s equivalent of the FDA is often years ahead of the U.S. in terms of issuing safety warnings for a variety of drugs that are freely prescribed in this country without a second thought. I would suggest that anyone with concerns check Canada’s governmental health website.
http://www.hc-sc.gc.ca/index-eng.php
Also, here are two excellent websites.

http://www.worstpills.org/aboutus.cfm
https://www.citizen.org/hrg

Do a thorough search of your condition and its drug treatment in the professional medical journals. I cannot stress this enough. This means you will need the help of a librarian, possibly at a University, school, or hospital who will have electronic access to a wide range of peer-reviewed serials and/or medical databases that you will not be able to find online on your own. This is important because a lot of what you can locate through a Google Search will not include the kind of information you will find in peer-reviewed medical journals—which are ONLY available at a medical (hospital) or university library. And it is this specific information you want.

Finally, don’t take any one doctor’s word on the safety profile for this (or any, drug). You need to gather as much information as possible on your own so you can present your concerns up front.
calm and research

The important thing is not to panic. Do your homework and don’t rush into anything before you feel as comfortable as possible with your decision. Our sorrow is a result of not being fully informed (warned) in advance of the dangers associated with these meds–because the information was not made available either to the general public or prescribing physicians until years after my boy died.

The bottom line really is ask questions about everything, do your research and if you feel uncomfortable with any kind of vague response…be cautious. Ultimately, you will have to make a decision, but an informed decision is absolutely necessary.

Consider all possibilities, including NOT taking a drug and what that might mean for you as well. Sometimes, horrible things happen regardless of how much you know and the most carefully considered decision. Sometimes, all that we can do, and have done, is not enough. Sometimes, there is no other choice–taking a particular medication is the lesser of two evils (disease vs. treatment). But, there is everything to be gained by being fully informed about ALL possibilities/options before you put yourself or a loved one at risk.

May 7, 2014 at 12:34 pm 2 comments

Humira- the Black Box and YOU

Two years ago I wrote the following post as part of a series on drugs and Doctors. I have been unable to write further about my own medical journey on the cancer road that dead ended with he loss of my son. I receive searches every day on Humira – nothing has changed not the commercials or the hype -it is time once again to remember those of the black box warning ……

UPDATE: The latest FDA information on the drugs mentioned can be found here
http://www.fda.gov/Drugs/DrugSafety/ucm250913.htm

Reaching out- art work- Christopher Ritchey

Part One https://thatwoman.wordpress.com/2012/02/28/the-good-doctor-or-dentist/

Part Twohttps://thatwoman.wordpress.com/2012/04/22/the-good-dr-or-dentist-part-two/

As I stated in Part two – reliving the journey of my experience with Doctors/ hospitals – the medical profession and what ultimately became our tragedy in the loss of my son – Christopher Ritchey – I knew writing the series was going to emotionally take me to places I may not be strong enough to go . So, like a marathon runner in training to get to the main event, I decided to start at the beginning of my experiences hence my memories of a three-year old.

During the course of my journey of grief at the loss of my son I have met so many people , especially mothers, who share my road. I was introduced to Joanne Cacciatore, PhD and her blog where “those in part of the “healing profession , are trying to pigeon-hole and make grief just another disease to take a pill”
https://thatwoman.wordpress.com/2012/03/20/a-parents-grief-apa-diagnosis-you-are-mentally-ill/
and move on. Some of the drugs prescribed for this “illness of grief” can be found here : http://www.drugs.com/condition/depression.html

Depression is big business for the drug companies- I “STRONGLY” suggest you check and see the side effects of these drugs- but Hey! not to worry if you suffer a few – that is OK – I am sure Doctor MD/DO will have another drug in his repertoire to counteract those symptoms and so it goes…..

All types of media from print to electronic now bombard you with “cures for your ills”

Ask your Dr. about XYZ drug – you can live a normal life – just ask him/her about OUR drug.

The snake oil salesmen of the 21st century meet our with our need to hope and be well and we rush to their call with our little insurance cards in hand –

I have watched the commercial, as probably you have ( the commerce drug of the moment- this drug in the billions of dollars – bigger than some country’s budgets ) HUMIRA for many months and any of number of times a night. I have noted the voice over of the side effects- can cause . Lymphoma/ Cancer Tuberculosis ( this is a CURE!!!!!”) and HOW MANY SERIOUS SIDE EFFECTS HAPPENED? I walked the path of the Curable Lymphoma – Hodgkin’s
Why would anyone take this drug ?
from their own website
http://www.humira.com/

Important Safety Information About HUMIRA® (adalimumab)1

HUMIRA is a TNF blocker medicine that can lower the ability of your immune system to fight infections. You should not start taking HUMIRA if you have any kind of infection unless your doctor says it is okay.

ED NOTE: OH OK so according to Humira we put our trust in our Doctor- how many Dr’s ( I bet yours is ) are part of the pharmaceutical sales onslaught- you have seen them with their suits and cases as you wait in the world’s waiting rooms for your turn with the Good?? Dr.

From the Princeton Review – emphasis mine

Pharmaceutical sales is a fast-paced, high-turnover business that rewards assertiveness, persistence, and knowledge. Pharmaceutical sales representatives spend most of their business time on the road, talking with pharmacists, hospital personnel, physicians, patient advocacy groups, and even retirement homes, increasing the visibility of their company’s products and the volume of their sales. “Sell sell sell learn learn learn sell sell sell,” wrote one sales rep, who included his business card with his survey, in case we wanted to purchase any pharmaceutical supplies………………
………..For many, a significant portion of their income is riding on their ability to get the product into the hands of the consumer. So, why is this job so addictive? Perhaps because the “EXCESSIVE PROFIT MARGINS” of many brand-name pharmaceutical products can mean enormous commissions

and for your further reading –
Confessions of a Pharmaceutical Sales Rep

•Serious infections have happened in people taking HUMIRA. These serious infections include tuberculosis (TB) and infections caused by viruses, fungi, or bacteria that have spread throughout the body. Some people have died from these infections. Your doctor should test you for TB before starting HUMIRA, and check you closely for signs and symptoms of TB during treatment with HUMIRA. If your doctor feels you are at risk, you may be treated with medicine for TB.

•Cancer. For children and adults taking TNF blockers, including HUMIRA, the chance of getting lymphoma or other cancers may increase. There have been cases of unusual cancers in children, teenagers, and young adults using TNF blockers. Some people have developed a rare type of cancer called hepatosplenic T-cell lymphoma. This type of cancer often results in death. If using TNF blockers including HUMIRA, your chance of getting two types of skin cancer (basal cell and squamous cell) may increase. These types are generally not life-threatening if treated; tell your doctor if you have a bump or open sore that doesn’t heal.

During my journey, I have met on-line the mother of one of the “SOME PEOPLE”- a mother who trusted – who put the most important person in her life – her child- her son into the hands of the snake oil salesmen – they trusted their medical practitioner to help her son.


This is the face of “SOME people” – he is the reason there is a disclaimer- his life given – His name is Maxx Wendell- a young man with an oh so bright future- a young man full of life, humour and love. WE should all pay attention – because we are the “people” who may also end up as disclaimer as the money rolls in .

His mother, Lisa, wrote a comment on this blog which I have reprised below. Lisa fights through her grief and terror so that no other mother has to walk the path of “induced death” – the some people side effect of this drug . As you look at the side effects of any drug and see some cases , some instances, some deaths remember there is a face behind those side effects who have paid the ultimate price for pharmaceutical profits- Lisa Wendell and her family are “some people”:

Lisa wrote:

For those who read your blog, I am the mom of the son who was prescribed a combination of immunosuppressive medications (what are called biologic TNF blockers) to keep his ulcerative colitis, a non-life threatening chronic autoimmune disease in remission. As a result, Maxx developed Hepatosplenic T-Cell Lymphoma, an aggressive, deadly cancer that killed him in 17 weeks. He was 21.

We were NOT informed of the dangers of this drug precisely because the makers of the drugs (Johnson and Johnson/Centocor and Abbott) had not yet labeled the medication with Black Box warnings advising of the 6 fold increase in risk for this disease in a pediatric population of young men between the ages of 17 and 24. In fact, we were specifically told that the risks for any serious side-effects, including Lymphoma were so low as to be virtually the same occurring in the general population. The combination of the doctor’s ignorance/arrogance and the out and out cover up by the drug industries of deadly side effects (levels of corruption that are unimaginable and occurring across the board all the time with regard to all drugs) killed our boy. Thousands of people a year lose their lives so drug companies can reap profits we can scarcely imagine.

One of the drugs, Remicade, was labeled shortly before he became ill. By that time he was no longer taking Remicade but had been prescribed another medication, Humira, with a different “delivery system” (self-injectible vs. infusion) that was supposed to have a better “safety profile.” Essentially, all this turned out to mean was that the Black Box warning had not yet been required on Humira. As of April, 2011 Humira now carries this warning as well.


Maxx a young man who was proud of his athleticsm- and the results of his training regime

In the meantime, my son is dead. Doctors are still prescribing these medications to people with a variety of autoimmune disorders including Rheumatoid Arthritis, Chron’s, Ulcerative Colitis, and refactory cases of Psoriasis. In the four years since Maxx died, another 41 people have been reported to have died from HSTCL.

We cannot know if they were ever told by their physicians of the dangers, however, we were not informed. We did not consent to taking any risks. Never. We would never have taken such a risk with Maxx’s life. We asked repeatedly about the safety of both Remicade and Humira and were always told the same thing. The drugs are safe. The real information was supressed. Deliberately and for as long as possible to allow the drug makers literally years to make billions. Humira is one the top three selling money making drugs on the market for its manufacturer. What are 40 deaths when compared to billions? The true story’s behind drug company cover ups, lies,marketing scams, and greed are now common knowledge.

I will talk to anyone who is interested in knowing more about Maxx’s story and I welcome contact with other parents who have lost children to medical “fraud” and terminal disease.
lisawendell2003@yahoo.com

http://momslogonly.blogspot.com/

I also urge anyone taking drugs for any chronic condition to thoroughly research the medications you or a loved one have been prescribed. Keep reading, keep asking, keep pestering, never stop. Keep fighting to get the information you need to make an informed decision. Our family is not stupid. Maxx was brilliant. We were duped. He lost his life, and I lost my heart

ED NOTE:
Only those of us who have walked the path of such utter confusion in the medical maze and have lost our reasons for being know how gut wrenching and brave it is for Lisa to write of her journey- she is still giving in the name of her son – and trying to save others from the depair and terrible agony of such a loss- my heart and “knowing” are with her….. LISTEN to Lisa …….. we could all end up as the legal disclaimer one day as one of the ………. “SOME people”

May 6, 2014 at 2:27 pm 4 comments

May 3rd – The pipes were calling- Chris Ritchey

nikmiscelticso“a confluence of air and water to beat against the bastions”
( Mary Queen of Scots- Maxwell Anderson)

I have been trying to deal with so many “confluences” beating against me since your death- things change and yet stay the same. I have been hoarding memories, as there are no new memories to be made. I realize I can no longer pull your face into my mind -sight with out the effects of the damned cancer. I can look at photos of the before and “smile at the old days” but when I think of your face it is with “pain and dying”. So I run from the image, it is so much agony to stay.
MQSres
I wrote in the previous post about the “culture” club when I first arrived here and I was taken back to a time of the Scots.
https://thatwoman.wordpress.com/2014/05/01/history-view-lorain-can-you-see-what-i-see/

The Highland Arts became quite important and took up a lot of time in those early days of your life. Your sister dancing , your father piping and I was on the performance trail with Jean Schaeffer and Mary Queen of Scots
https://thatwoman.wordpress.com/2008/01/24/that-mentoring-woman-jean-schaeffer/
and writing for Dancer Magazine with a Highland Highlights column.
http://lritch7.tripod.com/
Yes! Scotland and the Celts took up a lot of time and money.
nessie1
Whilst your sister sat atop Nessie that year a little boy was “kilted” and part of the festivities of that International Festival.
chris littleres
We travelled here and there , I was usually at the dancing and you were with your Dad.

– I believe, out of boredom with the dancing venue and more in tune ( no pun intended ) you started on the pipes.
getting readyres But you and your sister were never far apart from one another, usually moaning about judges and having to be in competition but there were good times and memories I will cherish til the day I hear the pipes calling me home.
OGMres1993pbdabceres

You grew into a teenager and all that goes with it , as I remember, the last time we persuaded you to attend the piping college only met with your agreement because of a dancer you had met , who was also attending that week-long event. It wasn’t love for Scottish arts that pulled you to Oberlin that year but girl from Illinois

Piping collage

It was the last time you attended – Soccer became all important and you were good but you had a talent for the pipes – you just hated the practice….. But I know all things Celtic never left you altogether

Breath of Life - Celtic Knot - Chris Ritchey

Breath of Life – Celtic Knot – Chris Ritchey


I wish so many things , I wish I could see your happy smiling face once more in my minds eye without the cloud of cancer.

May 3, 2014 at 3:35 pm 1 comment

History View- Lorain- Can you see what I see

map1res
Very early handwritten map of Lorain ( then Black River Township/ Charleston Village)

I can’t explain it to those that don’t have “past vision”- it isn’t 20/20 and it isn’t demo vision. Lorain’s history isn’t my history per se my Lorain history is very recent 1st generation- I too, was an immigrant from Britain. Actually Lorain was built upon “immigration” and had an influx of immigrants coming here for work in the last century . Lorain’s history is pretty recent history for those whose grandparents or parents settled here to work at the steel plant, Ford Motor etc .

They settled here because of work. A number of different groups Italians, Polish, Irish, Hispanic apparently clung to their “cultural backgrounds” and although they built homes, worked for the all American dollar, they celebrated and still celebrate their traditions and their homelands heritage. The clubs where they gathered now have for the most part gone the way of http://www.pulselorainmag.com/Main/Articles/Ethnic_Lorain_County_90.aspx Lorain’s older “history” .

In fact, I marveled when I came here as a young bride and was taken to the Royal Canadian Legion as that is where the Brits gathered. Although there weren’t many English, as I remember, some of the “old guard” at the Legion had come as War Brides etc. 1939-45. And in fact only the post commander Jake Verroni (sp) and I had any “Canadian” affiliation whatsoever.

I was welcomed into the Ladies Auxiliary being very young not yet 24 I was totally confused as to what this was all about. Fresh from London and a “happening London” to Lorain was definitely a culture shock. This was not my scene at all but I didn’t want to be impolite to the neighbor that introduced me to “culture” club 🙂

drill team
Marching down Broadway for parades in a kilt and velvet jacket and very unflattering argyle socks was even more of a shock too my system but you try to fit in in a new country and community and celebrate the traditions of that country and community . I will say the kilt, jacket and socks were soon left behind and community theatre and a small repertoire company in Avon Lake – Chef Henri took up more of my time.

richpiperres

However, the Pipe Band appealed to my husband and we dug up some Scottish ancestry for him in the way back and beyond ( His name was Ritchey after all) .

Ironically when the Scots were being spotlighted in , I believe 1983, I was the one they approached to chair the Scottish Spotlight Committee for that year. I politely pointed out to the “committee” having an Englishman ( woman) head the Scottish committee and Scottish Culture would be frowned upon by true Scots!

My family and I did get involved and a wee girl( my wee girl) rode upon Nessie as it pulled the float with castles, golf courses, covered in bluebells and heather, dancers and pipers, the front and sides covered in tartan. Only to lose the trophy to the Polish float with a huge picture of the Pope on a flat-bed truck – as the All American judges ( who obviously knew very little about Scottish culture said

there wasn’t enough representation of Scotland.

AHH ethnicity – depends whose is most prominent in the diversity of a community 🙂 Note to the International ( old Guard) Now you know why there was never another float like Nessie-;)

nessie1

One day the little girl was asked if she would like to ride on top of the Loch Ness Monster in a parade (the day of the parade the temperature hit 102, a drummer plopped his Glengarry on the little girls head as she rode 10 foot in the air on top of Nessie. (What was that mother (me) thinking?) The resulting photo did win a National award for the photographer Tom Whittington). Would she also like to learn a dance called the Fling? Everyone thought this sounded like great fun. So began the little girl’s journey of the dance

.http://lritch7.tripod.com/nikki.html

Today , there is no longer a Canadian Legion and a lot of the ethnic based clubs have also gone . I could never understand why this community and now indeed the USA needs to be hyphenated – Polish- American, Scottish- American – Mexican- American what is so wrong with just being American?This was strongly brought home to me when taking my citizenship three years after arrival that according to the Department of Immigration and Naturalization there is no such thing.

My thinking is back in the early days of Lorain the settlers were content in just having people of any nationality around to help build the cabins , cut the trails and hunt for food, prayed to their God all together in a little meeting-house, sent their children to learn from one another and with one another. Those early were not a hyphenated community – they couldn’t afford the luxury of being “hyphenated” .
untitled
Lorain still celebrates her ethnic diversity each year with the Lorain International Festival. More and more I have noticed the diverse ethnic clubs and churches of the past have in the Bazaar itself been replaced by commercial concerns and the selections have narrowed .

Ironically at the Celebration of Trees for the Light Up Lorain , as CVSI were decorating the “Lorain” tree with lilacs and heritage of Lorain’s past
https://thatwoman.wordpress.com/2013/12/01/lilacs-of-lorain-and-now-roses-part-6/

I was taken to task by the lady trimming one of the Hispanic trees for not following the international flavor of the trees –

Lorain 365

Lorain 365

What nationality of tree is that she asked – you are supposed to be celebrating Lorain’s ethic community.

I smiling pointed out to her without the settlers and captains etc carving a community ( as one people) -the “sufferers” -there would not be an “International Community” at all to trim trees

to be continued……….

May 1, 2014 at 7:52 pm 6 comments


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