Medical Care, a consumer’s perspective- Mercy Health – Lorain ( 2)

April 29, 2019 at 9:59 pm 9 comments

Part Onehttps://thatwoman.wordpress.com/2019/03/22/the-ratings-of-medical-facilities-series-it-begins/

Part Two- https://thatwoman.wordpress.com/2019/04/09/medical-care-from-a-consumers-perspective-ohio/

Part Three- https://thatwoman.wordpress.com/2019/04/22/medical-care-a-consumers-prospective-mercy-health-lorain/

Mercy Health — Lorain Hospital https://www.mercy.com/locations/hospitals/lorain

After hours of torment and worry , my  husband was in ICU- Mercy  Health , Lorain. The brain surgery  went well, now a matter of time.  I  have been in ICU’s more times than I  care to  remember , each  hospital a little different.

I have to  state here and now the  ICU nurses and team at Mercy were wonderful to  us. I cannot say  enough  about them , they  were so  caring and compassionate. The housekeeping staff who  cleaned  and cleaned would see me sitting in the small waiting room whilst tests and all things happening to  make my  husband comfortable were happening. I would see a hand reach  out and put down a cup  of coffee or fruit drink and a smile.

Yes, they  made things so  much  easier.

I really  had to  force myself to  think and stay  upright and ask questions of the myriad of people who would come in an out including physicians, physicians assistants, residents.

 

Indeed  on a few occasions I had no  clue as to  who  they  were , some not all introduced  themselves, very  businesslike  and with  a clipped manner  when answering my  questions or observations. In the end, I  learned to   ask  those questions of the nurses and they  would check  for me. When  dealing with  “one or two  of the physicians”  the answers were ensconced in medical terms  and a couple of times I  had to  have them repeat their answers  due to  heavily accented language I  found difficult to  grasp. That was something I also  had to  deal with  later on as well.

I wrote to  the CEO of Mercy ( Edwin Oley) after we transferred to  the Cleveland Clinic Rehab Hospital . I have copied parts of the letter and my concerns . I  have left out the physicians names  for this blog but they  were named in my  letter. Needless to  say  I  have not received any  response from Mercy  Health  Lorain ( not that I  expected  any    but “received and filed ” might have been polite at least :

Excerpts and notes  from the letter- February  12th 2019

For the attention of Edwin Oley, Mark Rau and Cheryl Rieves

Dear Mr. Oley,

I am writing today not only to thank the nursing staff for their excellent care, and also “housekeeping ladies” in the ICU who were so kind and helpful during our time of crisis and all but one of the physicians.

January 18th my husband had a fall – although his Doctors are at St. John’s West Shore we were taken to your ER. I have no complaints with the treatment there . He was admitted with a small brain bleed , which they felt would be absorbed and that is what looked like was happening. He was in ICU for a couple of days , then in general population and then sent to your REHAB unit. Again, I find no fault with the care, the nursing and rehab staff or physicians .

January 24th my husband suffered another major brain bleed in your Rehab unit ( on the right side of his brain) It was totally due to your response team , staff and Dr. XXXXX that my husband didn’t die, he literally was minutes away from that happening .

We were so grateful this happened IN the hospital had he been elsewhere he would have died. After major surgery he was sent back to CC11 in ICU – he was intubated and the care was wonderful . It was there I encountered Dr. PXXXX who did not impress me, I didn’t even know who he was and he certainly did not interact with me at all.

 

Wednesday January 30th my husband was finally able to come off the “tube” I must state here , my daughter and I had been putting in 15 hours shifts, trading off so one of us would be there , a terrible and emotionally draining time .

 

Six days after the surgery and two hours off the breathing apparatus I went home for a rest . I was woken by a Social Worker phoning me to explain “I would have to make a decision as to my plans for my husband “ I told her I have no plans he hasn’t even woken up – any plan I would have would be to get him sitting in a chair. She stated I would have to let them know and would leave a list of facilities in his room . which she did!

NOTE THIS IS THE LIST OF FACILITIES GIVEN TO  US BY  MERCY HEALTH  SOCIAL WORKERS!

 

 I want you  to  put yourself in our position, we had had a terribly  traumatic time very  little sleep for days  and we were given a list of 34 places  one of which   my  husband needed to  be transferred to  in coming days. We didn’t know “what his prognosis would be, if he had major brain damage and here is the list  “check them out…….( this certainly  was not helpful)

Saturday February 2nd My husband was moved to Tower two North– Once again hours after being in the new room I was sent another Social Worker – I had to make plans – he was still out of it and on a feeding tube and unable to swallow on his own . I reiterated I had no plans I couldn’t make an educated decision until I talked to my medical professionals who knew his history and were not in your network. I asked if this is rehab why couldn’t he stay at Mercy in the Rehab unit where he was initially – I was told flat out he would no longer meet the criteria of 3 hours daily . Dr. AXXXXXXXXXXX of Rehab would not accept him. I said well I am not making a decision until I know more.

Every day I was prompted by   staff as to my decision.

Tuesday February 5th – during rounds – Dr. PXXXX and a host of people came into the room . I had only had cursory glances with this Doctor – I didn’t even know why he was there, every other physician explained who they were and what their specialty was , including therapy professionals. The communication in that area was excellent.

 

During this particular round Dr. PXXXX informed me they would have to put a feeding tube in his stomach, and I would have to make plans as to where I was sending him. The Social Worker also reiterated when I asked:

 Why can’t he stay at Mercy Rehab after all I felt comfortable and they saved his life.

ONCE again I was told Dr. AXXXXXXXXXX wouldn’t accept him .

 

Dr. PXXXX said:

you have to decide and he needed “skilled nursing”

I said

No I need to talk to his Drs.- PXXXX informed me “transfer him to St. Johns , I said the insurance wouldn’t cover that as it would be a lateral move, I would  check out some of the facilities on this list and since I had been in the hospital for days on end I hadn’t had time . He informed me that once the feeding tube was in he would be ready to leave.

I suggested, it seemed to me they were doing that to   get rid of him.

Dr. PXXXX left the room whilst my daughter was asking a question re the stomach tube….. only to return and said AXXXXXX  MXXXXX ( name of local facility) !!!! I understand he some interest in that facility.

Actually the next morning ,my husband who finally woke up to some degree, pulled out the feeding tube from his nose, they couldn’t put in the stomach tube due to food in the esophagus and it was delayed until Wednesday at which stage he had been now moved to Cardiology .

He has AFIB and because they couldn’t feed him his heart medication in liquid form they moved him so they could give it in his IV. Whilst in Cardiology they once again tested his swallowing capabilities and he passed- no stomach feeding tube)

 

Again another Social Worker came in what were my plans ????I spent the next hours researching and pop in visiting these facilities –

I was told Mercy Allen had no beds available and I couldn’t give them a date anyway .

 

At this point in the epistle I would like to add that my husband has for the past 16 years has NOT been able to take Statin Drugs of any kind. In fact in ER we specifically stated and it was put on his wrist ALLERGY STATINS  HOWEVER, some Physician , whom I never heard of or spoke to PRESCRIBED LIPITOR- A STATIN which actually started to cause my husband issues.

My daughter stopped the nurse from giving the 2nd dose. After checking I found written in the note “QUESTIONABLE ALLERGY”) NOT ONCE DID ANYONE ( INCLUDING THE PHYSICAN ) ‘QUESTION THE FAMILY AS TO WHY THIS DRUG WAS NOT ALLOWED!

 Cardiology sent my husband back to 2 north

( NOTE: it was only  later at the Cleveland Clinic  I  found out my  husband had been prescribed  Lanoxin by  the same “unknown physician”. Had I  known  I  would have mentioned that  it was found in a previous “heart issue” Lanoxin did cause serious side effects with  him.. such  as paranoia , confusion ( remember that  for chapters two  and three of the journey. Again this is partly  due to  my  not remembering all the drugs he has had issues with  and the fact they  did not have access to  his full medical history

As I researched, Wednesday and talked to many people I decided on the Cleveland Clinic Rehabilitation Hospital – Avon. Their representative came an evaluated my husband late Wednesday evening . My daughter and I toured the facility on Thursday morning the 7th . We were very pleased with what we found . THIS FACILITY WAS NOT ON THE LIST GIVEN TO ME!  ( Note you  can see I  penciled it in on the list from Mercy  Health)

 

THEN IT STARTED – For days and days I was told Mercy would not accept him back into their rehab unit WHERE we had asked to go time and time again. BUT LO AND BEHOLD HAVING BEEN TOLD FOR OVER A WEEK NO!!!!! ALL OF A SUDDEN – OH WE WANT HIM HERE- HE CAN STAY PLEASE ! I had all sorts of staff and Directors etc – stating he COULD GO BACK to Rehab. I spoke to Rehab representatives who had found out that morning he wasn’t coming back –

Dr. PXXXX actually told the staff  I was sending my husband to a skilled nursing facility – which was NOT TRUTHFUL I hadn’t made up my mind at that point and was waiting to hear back from the Clinic. HE HAD NO BUSINESS SPEAKING FOR ME!!!! AND Dr. AXXXXXXXXX had not made any such determination as to my husband’s status as I was told by Rehab. Staff on Thursday morning .

 

The decision to leave was very hard we had received excellent care but what with the No Room at the Inn fiasco  and the pushing to leave and make other plans during a time of great distress for me and my family and the “statin” situation we have moved my husband. He is very weak but starting to respond.

 

My feeling is your facility fell down in not communicating to the family properly – social workers should give “all pertinent information”- in laypersons language and a full explanation as to why ( days of paper work etc) to families who are under stress as it is.

 

At least two of your physicians caused more harm, emotionally to the family and in one case could have caused other issues. Due to the protein treatments given in ER , to combat the Xarelto I informed them that within days he would get a major gout flare up ( Gout initially   due to statins after his open heart surgery in 2002. Which is WHY NO Statins) . He did get a Gout attack on the Wednesday Jan 23rd in Rehab, they drained the knee and gave him a cortisone shot but the damage was done.

Photo  source : https://www.researchgate.net/figure/Healthcare-professional-views-of-hospital-to-home-care-transitions_fig1_230565561

Why the 2nd massive brain bleed the next morning – well we aren’t sure, but REHAB staff saved his life and the fact he isn’t there today at your facility is entirely at the hands of administrative decisions poor communication between social workers and overriding a medical allergy without discussing why it was necessary with the family. Questions feel free to contact me……

I  don’t think  I  need to  go  into  further detail this letter pretty  much  said it all. And the cost so  far  for Mercy Health  –  is approximately  $70,000.00 and climbing .

 

Next Up  Cleveland Clinic Rehabilitation Hospital

 

 

Entry filed under: a Cow -elle opinion, Corporate responsibility, Doctor/Physician, health, hell is other people, medical, Uncategorized. Tags: , , , .

Medical Care -a consumers prospective-Mercy Health Lorain May3rd – Mothers and sons – Chris Ritchey

9 Comments Add your own

  • 1. Mark J Teleha  |  April 30, 2019 at 2:41 pm

    I’m so sorry. If there’s anything I can do, please let me know.  Mark

  • 2. thatwoman  |  April 30, 2019 at 3:20 pm

    thanks Mark has been a rough ride this last year what with mum and my own issues and then this …. but I know there are people I can reach out to YOU being one of them if I need support ..and your photos bring beauty

  • 3. Dave  |  May 1, 2019 at 2:09 am

    It is frightening just reading what you went through. You are amazingly strong!!

  • 4. thatwoman  |  May 1, 2019 at 10:48 am

    Oh Dave I am not strong……. I am exhausted and waiting for the axe to fall…… have to do this day by day but I admit anger is a tool and keeps me from the “chopping block” more often than not……..

  • 5. Christina Kristiansen  |  May 17, 2019 at 7:25 pm

    OMG Lorraine, you obviously have steel in your backbone, anyone else would of cracked up by now!! So sorry you have to go through all this after what you have already been through. It makes me count my blessings for my local hospital in spain who have saved my life three times, and no charges!! I hope Rick gets well very soon with the right care. My heart goes out to you all. Look after yourself now too.
    Sending Karma and Prayers. Love Chrissie. Xxxx

  • 6. thatwoman  |  May 17, 2019 at 8:36 pm

    ah thanks no steel in the backbone but plenty of arthritis in the knee.I think it is anger that keeps me upright and the journey just gets more interesting as we change hospitals any luck I will post on Monday……the nextg adventure in US Healthcare…..

  • 7. Chrissie  |  May 18, 2019 at 9:23 am

    Aww, I hope you get a good result very soon Lorraine and get some peace and rest. I am so sad for all you have had to go through. Keep strong gal. Wish I could help you. I still miss your Dear Mum and always will. Our little phone chats and her lovely letters made my days more bearable and happy. Take great care of yourself and your lovely family. You need all the support you can get. Much love Chrissie. Xxxx

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