Posts filed under ‘a Cow -elle opinion’

Dec 3rd – TIME of our Life- Chris Ritchey

Artwork Chris Ritchey

Every  3rd of the month I write a tribute to you   my  son , I  have  written , apart from the other memories of your passing  over 120 posts. I write to  release the pain that builds, to  take the thoughts out of my  mind and put them on paper, or in this case on this blog. If I didn’t they  would consume me more than they  do  and I  would not get any  relief. The tears I  shed as I  write drop  onto the desk  and over these many  months the varnish  has all but gone  – a surface worn away  by  my  tears.

https://thatwoman.wordpress.com/category/chris-ritchey/

Other self by Chris Ritchey

How can that be possible? How have 10  years passed? How can that be?  You  see for most of my  nights and days I am back in time , to  a time where life and death  and selfishness have trapped me, and not only  me  your father is on this same journey. I dream of you  but you  always have cancer and I  am always searching for a cure or help, then I  wake  there is a moment of relief that it was just a dream and then I  realize  I  have woken to  my  nightmare, there was no  cure no  help… I  am in reality……………..

The diagnostic box- self- portrait Chris Ritchey

I am reminded of H.G. Wells and The Time Machine , I feel like the lead character sitting in that machine , only the lever is not controlled by  me but by  a profound grief, that is stronger than any  will of mine.   I  sit in place in my  own device  as I  watch the world around me go from the future to  the present.

photo -self -Chris Ritchey

Every now and then I leave the machine of grief and experience the world of the present, happiness comes , anger comes, passion – very  rarely, duty to  others is limited and they  are the ones I  hold most dear. That is why  although  it is now 10 years this December 3rd. since I last saw  your face, kissed your cheek,  held your hand and lost ME. No  longer Loraine, but a facsimile   who left this place when you  did . The unbearable is borne  tempered by  love of your family , sisters, nephews  brother in law and father. Deep breaths  and the conscious and sub-conscience  effort by  the brain to  hold back the excruciating  emotions that wrack the physical body.

Anger at those that through  hypocrisy  and selfishness ( Tim Sue Lombardi, Angela (Lombardi – Ritchey) and now Murphy – and their family  and church ( Father Daniel  Divas  whose wickedness ( in my  opinion)  perpetuated  and took whatever compassion with  them in their  act of callousness. not to  be forgiven- then or now  

https://thatwoman.wordpress.com/2009/12/14/something-wicked-our-way-came/

https://thatwoman.wordpress.com/2010/12/11/december-11th-the-beginning-of-the-beginning/

 

 

but that same anger also  has kept me upright.

 

The 10th  anniversary marked by   the yearly  posts of December 3rd  and as the new year dawns once again to  finally  finish  the book- NO LIMITS.

Starting a new chapter both  literally  and figuratively  -not the regurgitating of posts- but of your life and presence in the present………..

The Touch- Chris Ritchey

Your words ring through  my  mind  and indeed is part of the forward in the book

“Nothing should be hidden or untouchable, if it is your truth and you stand behind it – no one should be able to silence you “

freedom of speech by Chris Ritchey

https://thatwoman.wordpress.com/2010/12/04/dec-4th-how-cold-is-cold-lombardi/

https://thatwoman.wordpress.com/2011/12/03/december-3rd-chris-ritchey-yesterday/

https://thatwoman.wordpress.com/2012/12/03/december-3rd-the-trilogy-of-tears-christopher-ritchey/

https://thatwoman.wordpress.com/2013/12/03/december-3rd-memorial-chris-ritchey/

 

https://thatwoman.wordpress.com/2014/12/03/december-3rd-there-is-no-peace-chris-ritchey/

https://thatwoman.wordpress.com/2015/12/03/december-3rd-end-of-days-chris-ritchey/

https://thatwoman.wordpress.com/2016/12/03/dec-3rd-the-loop-chris-ritchey/

https://thatwoman.wordpress.com/2017/12/03/dec-3rd-the-waiting-chris-ritchey/

https://thatwoman.wordpress.com/2018/12/03/dec-3rd-crumbling-walls-chris-ritchey/

My  time here in this world  grows shorter as the days continue – I have to  finish this book and publish – as “truth  is definitely  the daughter of time” and time is running out…… I  love you  and miss you  every  moment of these days  and oh so long nights  no matter the  year I find myself existing……

 

December 2, 2019 at 11:01 pm Leave a comment

October 3rd- out of reach- Chris Ritchey

 

The brieftake a photo  of self  taking a photo  of self……….. and I found that classwork after you passed. I remember, I cried thinking  how at that moment in time  you  were captured on the other side of the window just out of my  reach. I feel that still that you  are just there , a shadow,  just out of my  reach ………..

I felt so  strongly  about the photo I  had it made into  blank cards. I used them to  thank  people for all they  had done after you died and I sent one , pouring out my  heart to  the Vatican . I  was so  confused as to  why  these “strong  faith based Catholics” (Lombardis) and their priest – Father Divas decided to  take from your family  any  semblance of  closure and peace…… I  wanted  clarification on how this was part of a faith  based on love and kindness not retribution and selfishness!

https://thatwoman.wordpress.com/2014/01/27/when-death-becomes-divorce-chris-ritchey/

Well I  did receive a letter back which  was published on my  blog. Telling me to  forgive , well not likely  to  happen then or now , not “Catholic”  just “Celtic ”

BUT I remember thinking that somewhere in the archives and files of the Vatican is a letter of heartbreak  with  your artwork  – Just out of Reach– amongst all the millions of papers and prints and works of art.

I love you  my  son that has never gone away  and neither have the tears I cry and won’t  until you  are no  longer out of my  reach………..

October 2, 2019 at 10:10 pm 1 comment

Sept 3rd – Moving On??? Chris Ritchey

“Try  to  remember the kind of September……….. “

I  have no  difficulty  in remembering this Labor Day  Holiday of yesteryear . You had been given another chance of a “cure”. Of course I  realize now that  the word “cure” was not an accurate description  as given to  us by  the Cleveland Clinic. The “trial” of SGN 35 was just that  another trial.  What followed was a frenzied trip  to  Houston, and more of that four letter word HOPE!!!!

Septembers  have come and gone and I  remember the “beginning of the end of hope” with   the pain that never lessens.  As this blog brings to  the fore writings of previous Septembers, I  revisit those emotions  of those times.

One such  September third came to  the fore today because it had been accessed by  someone reading my  words.

https://thatwoman.wordpress.com/2011/09/03/september-3rd-war-movin-on-hell-truly-is-other-people-chris-ritchey/

As I  read what I  had written in my  emotional  incontinence , I  wonder would I  have written anything similar today , you  can see the anger, the hurt and the disgust I  felt and I  asked myself would I  have felt the same or written the same  today? The answer is YES! just as time has not eased your  death  and “taking of the memories that should have been” neither has it lessened the feelings I  have toward those of self serving hypocrisy.  The anger that keeps me upright is beneficial to  being………… it is now part of me and who  I am….

I love you  my  son ………. you  are but a  last breath away…

Chris Ritchey Source

September 3, 2019 at 12:45 pm 1 comment

Medical Care- A Consumer’s perspective- Brookdale Pt 2

Part Onehttps://thatwoman.wordpress.com/2019/03/22/the-ratings-of-medical-facilities-series-it-begins/

Part Two- https://thatwoman.wordpress.com/2019/04/09/medical-care-from-a-consumers-perspective-ohio/

Part Three- https://thatwoman.wordpress.com/2019/04/22/medical-care-a-consumers-prospective-mercy-health-lorain/

Part Fourhttps://thatwoman.wordpress.com/2019/04/29/medical-care-a-consumers-perspective-mercy-health-lorain-2/

Part Five – https://thatwoman.wordpress.com/2019/05/27/medical-care-a-consumers-perspective-cleveland-clinic-rehab-hospital/

Part Sixhttps://thatwoman.wordpress.com/2019/06/15/medical-care-a-consumers-perspective-brookdale-skilled-nursing/

This will, hopefully,  be the last in the series of medical care received in various  medical facilities , three different types of medical care, and three different providers. Ideally  this post should be in two  parts but I want to  leave Brookdale behind  so  it will be lengthy.

The common denominator was the insurance coverage Medicare and Medical Mutual. Although  I  am fighting one bill ( will be explored in this post)   and the Medicare evaluation of Brookdale as mentioned in Part SIX is an issue for us, on the whole Medicare and Medical Mutual – so far – has been less than the nightmare I  thought it would be.

I believed we were spoiled by  the nursing staff/ aides and housekeeping staff  at Mercy  Health  Lorain, upon reflection they  set the bar very  high– a  few of their  physicians I  found decidedly  lacking ( see Part One).

 

Also , the Cleveland Clinic Rehabilitation was beautifully  clean and the food was very  good , rehab staff were excellent, you  knew what time  therapy  was every  day and who what and where so  families could adjust schedules to  participate with  the patient. You  knew who  the nurses were that day  and your aides. Unfortunately,  it was down to  a small percentage of aides  that spoiled the experience and also  caused a health issue ( in my  opinion) by  spreading C’Diff from one room to  another and then sending  contaminated material with  the patient to another facility. Brookdale

 

Ah! Brookdale, Westlake Ohio…..the 5 star Skilled nursing and rehabilitation facility  which is in the middle of a very  large Assisted Living and Senior Living

Brookdale Senior Living owns and operates over 1,000 senior living communities and retirement communities in the United States. Brookdale was established in 1978 and is based out of Brentwood, Tennessee. https://en.wikipedia.org/wiki/Brookdale_Senior_Living

The typical Brookdale Senior Living CNA salary is $12. CNA salaries at Brookdale Senior Living can range from $10 – $15. This estimate is based upon 66 Brookdale Senior Living CNA salary report(s) provided by employees or estimated based upon statistical methodshttps://www.glassdoor.com/Hourly-Pay/Brookdale-Senior-Living-CNA-Hourly-Pay-E6433_D_KO24,27.htm

Independent living prices average $2,900 monthly. The majority of locations will cost between $2,300 and $3,500. Skilled nursing communities are available as a Basic Monthly Service Rate of between $6,000 and $8,500.

I have not received the cost of our one  month stay at Brookdale Westlake “skilled nursing and rehab ” in Westlake as of today’s date but I do  know one charge was $400 per day.

After the poor experience of “transfer” from Cleveland Clinic Rehab Hosp. Avon  (which was paid for by  self -pay) I wasn’t in the best of moods . I understood from literature that I  had read  this was a “newer facilty”. I understood it to be around 10  years old. In my  opinion it was becoming a little “shabby” without the chic.

 

 

I should point out this is a very  large complex and the “skilled nursing” ( bit of an oxymoron in my  opinion) section had quite a large turnover of people coming in and out of rehab. However, my  first impression after leaving the gleaming white , bright Cleveland Clinic Rehabilitation Hospital(CCRH) was one of “OH!” and not in   a pleasant way.  The parking for the visitors for the skilled nursing/ rehab   section was awful, you  had to  hope the parking gods were on your side as you  drove round and round hoping for someone to  leave.

Please note this a critique of the Skilled Nursing and Rehabilitation Section of the complex, I  have no  thoughts or opinions as to  the rest of their complex and assisted living sections.

 

The facility  allows pet visits to  the patients rooms, all well and good but unlike The CCRH where there was a designated area  tile floor) for those  pet visits,   animals in all shapes and sizes routinely  walked the “carpeted corridors” , one little fella dragged his bottom along the carpet which  made me go  eeeewwwwwww. Had they  been bathed, de-fleaed , some looked as if they   weren’t exactly a pampered pet? I did take my  dog to  see her master at the CCRH after going through the paperwork and a shampoo. I  did not bring her to  Brookdale!

 

The room was  supposed to  be “homey” and an effort was made in the design and décor.  However too many  bumps and bruises on the paintwork, furniture  left an impression of needing a redecorating. The “homey”  bedspread  with  its little bag of goodies, had decidedly  seen better days , faded (hopefully)  through a lot of washing?  Again, being spoiled by  the open airiness of the CCRH with  large windows this was a bit of a disappointment , his room was dark and yes in my  opinion a bit dingy. The photo  from their website  is really not a great representation as to the “light” in  the room  we had.   After the pristine cleanliness of CCRH it was a bit of a disappointment Oh well thought I different facility  not a hospital .

 

The bed was actually  quite small, and no  sides. Apparently  “nursing homes” cannot restrict the occupants ( such  as  the side up  in a hospital)  neither can they  belt you  in  a wheel chair. This  was  all well and good but for a patient that has very  little trunk strength and one who  was a fall risk  this was not ideal. I  was told we could request the sides if we went through the paperwork and the Dr. must write out a prescription  to  have the sides installed. I said this is what I  wanted done. That was the last I heard, and actually  he fell out of the bed twice, a chair once  and the wheelchair once. Not so  good when it comes to  the fact he had just had major brain surgery after a fall.

 

After 4 days of being a resident  the bathroom became   the holding room for dirty  sheets, linens, towels  used diapers and pads ( remember that C’Diff) I  was ready  to  remove the patient from the 5 star facility and interaction with  some very  off putting aides  . I  called the head nurse and one of the administrators , after my  daughter was given the pads etc to  clean up the leaking Foley  bag. Since she was gowned and wiping down the room with cleaning cloths due to  the C’diff   maybe they  did think  she was a staff member, as we were told. Obviously  no-one else up  to  that point – knowing there was an issue with  C’diff wore those items. ( Benefit of the doubt)

Some aides did make a half hearted effort to “gown up” after the complaint, however,  latex gloves routinely  ended up  being  taken off and thrown into  the “general purpose waste basket”, well those that made it in as they  were thrown – I  was forever  picking these up and emptying the  room trash!

 

As for “housekeeping” I can’t remember that happening to  any  degree maybe weekly and only  once was there what I  call a thorough cleaning ( the Sunday  after I complained )  whereas in the previous two  facility  it was daily and sometimes twice a day.

 

 

The ‘weekend administrator” did get the bags of laundry and garbage out of the bathroom , did send in a cleaner  and apologized. The “head” nurse did get the Foley  bag removed, changed the mattress to  an air mattress,  as he was starting to  get a bed sore due to  being stationary and unable to  move on his own ( eg. roll over)  and was also very  uncomfortable due to  a pre-existing back condition. And so  it began…………

 

The rehab staff were very  good, he could not have intensive rehab at this facility , again only  so  often  due to  Medicare restrictions. But on the whole we were pleased. My  goal was to  have him ambulatory , able to  get into  a bed at home and to  be able to  get to  the bathroom. This was going to  mean  on a walker at least because this “Old House” was not wheelchair friendly.

Since there was definitely  an issue with  85% of the aides ( remember the staff that was above average according to  the Medicare evaluation  ) my  daughter would spend every  morning going with  him to  rehab, not the organized times etc of the CCRH we were expecting, she would stay  until after lunch  and I  would come later in the afternoon through the evening.  Night times were very bad for him, but he was on digoxin and although  he had adverse reactions  to  this drug we could not get  Doctors to  take him  off of it ( prescribed by  the ghost cardiologist from Mercy)

https://www.nhqualitycampaign.org/…/Drugs_that_may_cause_psychiatric_symptoms…visual hallucinations, fear, paranoia, agitation, anxiety. Sudden … Hallucinations, paranoia, delusions, confusion, mania, anxiety … Digoxin (Lanoxin*).
Note: the moment he was home and our cardiologist saw him digoxin was “nixed” and so  were many  of the other medications.
I am sure the administrative staff as well as a number of the aides were not at all happy  with  my  advocacy for my  husband. A “difficult patient” due to  medications, pain and confusion and a difficult wife 😉 . I  would ask you  to  remember this man went to  bed at Mercy  woke up eight days later after being intubated  and having respiratory  arrest unable to  move , unable to  speak ( due to  his vocal chords being stretched, ) not knowing where he was and what happened and having an 8 inch  slice taken out of his scalp. He remembers nothing at all from Mercy  , very  little from CCRH and too much  from Brookdale, Westlake.
 Patients were told they  could eat in the dining room  and for the most part the food was fine, the aides in the dining area were very  helpful  and the view of the duck pond a nice outlook. Mealtimes became a highlight to  one trapped in a wheelchair.
The call light response times were awful, in our case, of course being a “demanding patient” who  wanted to  use the bathroom or get out of the bed  and wheelchair due to  his discomfort didn’t help. The notice on the board in his room “call don’t fall” didn’t count for much.
The  Administrator did print out a  record of the response times to  the call light. Amazingly  they  had response times of 30  seconds  up  to  5 minutes.
What they  hadn’t realized with  the amount of time my  daughter and I  were putting in and the fact that as a blogger and ex- columnist I  have this penchant for documentation we also  kept a record of those call times and for the “most” part they  didn’t concur with  the print out. With  that printed out response time for his room number   I  received a bill for another patient, which  I  duly  returned, that had had that room previously.
March  17th  he fell again , this is an excerpt to  Medicare  appeals as they denied the cost of the emergency  room Dr.  after I  insisted Brookdale transport him to  St. John’s after yet another fall.

On March 17th I received a call from the night nursing staff at Brookdale that my husband had fallen trying to get out of his chair. The nurse informed me he had bruising to his abdomen and an abrasion to his left leg.They could not tell me if he had hit his head. Considering they stated he had only fallen 10 minutes previously to calling me   I was concerned they could not tell me whether he had hit his head and that bruising to the abdomen was already in place. I deemed it important considering the history of previous weeks of major brain bleed and surgery he should be checked out by someone other than an LPN. Hence the trip to St. John’s Westshore Emergency Dept. He was monitored in the ER and after a few hours sent back to Brookdale .

It is my contention that due to the recent history of falling and two brain bleeds the ER was the appropriate facility at 1 a.m in the morning. Brookdale, in my opinion did not have a qualified individual on duty or equipment to ascertain a diagnosis. The ER was the best place”

As time wore on and actually  his discharge times got put back , I  realized that, in our case , although the rehab therapy was very  good, it wasn’t enough. He was spending too much  time “waiting” and sitting in a wheelchair for the  two  to three hours of rehab and at least two  days a week where there was no  rehab at all. ( Again due to  Medicare restrictions). So  as his Dr. concurred and my  husband was unhappy  at the facility  and was at least able to  use the walker (with  help) and we felt we could manage his  care  we discharged him from Brookdale Westlake  on March 29th.
I am pleased to  say  that in April he went into out patient  physical therapy  at NeuroSpine Care, Sheffield Village, three times a week. He has progressed amazingly  well and they  have him transitioning to  a cane , able to  stand  and do  the things that make life normal. http://www.neurospinecare.com/
I do not agree with  Medicare ratings that this is a 5 star facility, but then again I  do  not know how low they  set the bar!
The best I  can give this facility  in rating , remembering it was supposed to  be, according to  Medicare, a 5 star facility  is a C minus. Although there were highlights such  as the rehab staff, the “aides” were another let down  and remember these are the individual that are dealing with  your loved one.  ( I  would say  my  general impression was that the aides were dealing with  quite a few patients each  shift and if their stated wages were anything to  go  by  they  need a raise in order the attract  better qualified individuals !
Remember this is a FOR PROFIT facility  and you  are the consumer not a charity  case and Medicare  and yourself will be paying for the “business”
of care and rehabilitation!!!!!!!
https://www.ibisworld.com/industry-trends/market-research-reports/healthcare-social-assistance/nursing-residential-care-facilities/nursing-care-facilities.html

 

July 11, 2019 at 1:20 pm Leave a comment

Medical Care – a consumer’s perspective-Brookdale ( Skilled Nursing)

Part Onehttps://thatwoman.wordpress.com/2019/03/22/the-ratings-of-medical-facilities-series-it-begins/

Part Two- https://thatwoman.wordpress.com/2019/04/09/medical-care-from-a-consumers-perspective-ohio/

Part Three- https://thatwoman.wordpress.com/2019/04/22/medical-care-a-consumers-prospective-mercy-health-lorain/

Part Fourhttps://thatwoman.wordpress.com/2019/04/29/medical-care-a-consumers-perspective-mercy-health-lorain-2/

Part Five – https://thatwoman.wordpress.com/2019/05/27/medical-care-a-consumers-perspective-cleveland-clinic-rehab-hospital/

This time when we were told we would have to  make plans for my  husband to  leave the Cleveland Clinic Rehabilitation Hospital ( after 19 days) were were given a list with  54 skilled nursing facilities but more time in which to  make a decision.

The case worker at Cleveland Clinic Rehab Hosp. printed out a list of 54  facilities within a 25 mile radius, with  ratings from Medicare .gov Nursing Home Compare .

As you  can see page one  with  the closest to  home ( as I  already  had checked them out) were crossed off.  “One” of  the complaints I  have of Medicare in their ratings , in our situation, was we needed  physical therapy  and rehabilitation and although  “staffing” was rated, Health  inspections and Quality   were rated  there was not a rating for the “caliber” of rehab and therapists.

 

I would like to  point out that at Brookdale  aka  WESTLAKE VILLAGE CARE CENTER 28540, village Drive Westlake Ohio 44145 , the rehab therapy  and therapists were excellent. I  wish  I could say  the same for  90  percent of their aides.

20 of the 54 facilities were listed in their staffing  by Medicare as “much  below or below average”, even when their overall rating was above average or much  above average – very  confusing .

The star system given my  Medicare was also  misleading ( Brookdale) – Westlake Village was given a 5  out of 5  star , comforting to  me when we chose this facility  and also  the staffing as “above average” – I don’t know who at Medicare rates these facilities but this was not in any  way  a 5 star facility unless the bar is set  very  low!!!!

Take a look at the first page ( first photo) of the report of the 5 facilities  4 received 4 out of 5 stars but each  of them has a rating of below average for staffing.  and one Lake Pointe Health  Care a 1.

NOTE: you  really  have to  do  your homework and that is hard when you  are having to  choose a facility  for a loved one during a traumatic time. I thought I  had done my  homework with  this facility. Since my  husband was in the University  Hospital system, as were all his doctors, I  checked and  Brookdale  had access to  either the Cleveland Clinic System and for us a doctor with  University  Hospitals.  It had taken me weeks of being “out of our system to  get him back into  UH.

I was happy  in our choice having done as much  research  as I  could , ratings , recommendations etc.  looking on line . https://www.brookdale.com/en/communities/brookdale-westlake-village.html?cid=yext

The trip from the Cleveland Clinic Rehabilitation Hospital via “transport” was again a fiasco  of waiting  and  miscommunication as to  what sort of transport was needed.

Although  I had had problems at the Cleveland Clinic they  had been addressed  for the most part quickly  and efficiently , however we left on a sour note and with  “personal belongings in a large bag”.

Due to  the tension dealing with  Doc Martens  transport I didn’t realize that along with  my  husband carried by  one of the administrative staff to  the ambulance was  the lift pads and sling pad  from both  his bed and  wheelchairs  and various items .

 

The  lift pads/sling pads ( plastic)  we discovered later ,when I  looked into  the closet at Brookdale where the bag had been placed as personal effects   had fecal matter attached, bad enough  but considering this was also  contaminated with  C’diff  most worrying and dangerous in my  laypersons opinion.

Here we were bringing into  another facility  contaminated matter!!! This practice of transporting these items  should not occur , after all you  don’t know where they  have been.

This was not a good start to  our stay  and within 4 days I  was ready  to  pull my  husband out of this 5 star establishment ……. TO  BE CONTINUED…..

 

 

June 15, 2019 at 9:10 pm Leave a comment

June 3rd – archeology of sorts- Chris Ritchey

Oh! the pond, what a pain I am having  with pumps , tubing and fish eating birds and animals. I have spent a small fortune on equipment this spring.  The winter weeks,  after your Dad was in the hospital, your brother-in law had to  stop  by a few times a week in the days of “polar vortex” to  make sure we kept a hole in the ice.  Just when I  thought I  had everything sorted last week , nets in place , aerators , new pump  and  filter system hooked up, and the waterfalls pump working and bringing at least me some  peace and happiness as I  watched the water cascading down the falls, of course, the waterfalls pump   stopped working.

 

Now nothing is easy  in this house, I could no  longer find the same pump , the tubing was too big, too small, and this pump  didn’t fit the old filter system. I tried as best I  could to  clean the filters every two  days and that is a horrible job. Why ??? because   your Ghost Koi needs air and clean water,  from  over forty  fish  we are down to  17 including “The Ghost”. Due to  my  diligence of filter cleaning every  couple of days the water is crystal clear. The offending pump  had to  be taken out and replaced. Heron apparently  don’t like ripples so making sure the water ripples means three pumps functioning .

 

I shut everything down and gingerly   balanced precariously  on the edge. The water was so  still and clear  I, for once, could see the very  bottom of the pond. The Ghost Koi loomed large – 10  years of eating and being king of the pond, he has grown to  a formidable size. As I  teetered and wobbled trying to  reach the old pump  under the falls, the thought crossed my  mind,

I  might end up  joining him… death  by  “pond life”,

he wasn’t actually  endearing me to  him in that moment and then I saw a glint of gold lying on the bottom.

I strained to  see what was shining up  at me and then I  realized it was a pair of your aviator sunglasses, you  too had been searching for the Koi that last summer ( a much  smaller little fish) and had dropped your  glasses  and there they  were still- where they  had fallen. A reminder of why I need to  protect and maintain the pond so  my  last Mother’s Day  gift from you  continues..the Ghost Koi…..

Those glasses  and ones like them that hid you  eyes from us when you  would hear the bad news the Doctors would tell  hiding tears  and pain.  Those same glasses that brought my  tears flowing once more a reminder of a life too short. and a son lost.

 

I suppose when we are gone and he pond is filled in will someone, in a time to  come, may dig the space   they might wonder how a pair of aviator glasses came to  be 4  foot underground and the story  behind them… a curiosity  for the future…… the missing of you, our love   and memories that should have been  can sometime cripple………

 

June 3, 2019 at 8:55 am 2 comments

Medical Care – a consumer’s perspective-Cleveland Clinic Rehab Hospital

Part Onehttps://thatwoman.wordpress.com/2019/03/22/the-ratings-of-medical-facilities-series-it-begins/

Part Two- https://thatwoman.wordpress.com/2019/04/09/medical-care-from-a-consumers-perspective-ohio/

Part Three- https://thatwoman.wordpress.com/2019/04/22/medical-care-a-consumers-prospective-mercy-health-lorain/

Part Fourhttps://thatwoman.wordpress.com/2019/04/29/medical-care-a-consumers-perspective-mercy-health-lorain-2/

 

Cleveland Clinic Rehabilitation Hospital Avon Ohio, was NOT on the list of 34 facilities given to  us by  Mercy Health social workers – Lorain Ohio.  I  did some research  on my  own, went to  the internet and to  my  facebook page and asked local friends if they  had had good or even poor experiences with  facilities in the area. Cleveland Clinic Rehabilitation Hospital came up as being a good facility.  https://my.clevelandclinic.org/locations/rehabilitation-hospital/specialties

My  daughter and I  spent a Thursday  morning touring the facility. It has all the benefits of a hospital doctors  , rehabilitation therapists,  nurses,  aides and the focus is of course on rehabilitation. The facility  is only  a few years old and shiny  , white and extremely  clean. The rooms were large , bright and airy. We were most impressed with  the rehabilitation area and the state of the art equipment .

However, my  husband ( due to  Medicare Insurance  rules) apparently  could only stay  for 19  days.  It is my  belief  he probably  should have been released to  that facility  further along in his recovery. He was paralyzed down one side  and was on a plethora of medications. One which  was given to  him at Mercy  by the “ghost dr.” which  causes confusion etc. Again not being a physician and not knowing at the time he was even on this medication I was also  unaware  that in order to  combat the confusion ( also  he was on pain killers) he was being given another drug for Alzheimers.

I must interject here as to  hospital to  hospital transportation, I  wish  I  had something good to  say , you  really  are at the transporters “mercy”. The time arranged   leaving Mercy to  the Clinic was supposed to  be 11 a.m However, although  I  was supposed to  follow him to  the new facility  I  couldn’t by  6 in the evening after waiting hours and hours I went home and told them to  call me when he was being transported . You  see I  had to  sign the admittance papers and permission to  treat. At 9:00 p.m. I  called the Clinic who  told me that it was so  late he would probably  now be transported the following morning . I went to  bed only  to  be called at 11:15 by  the Cleveland Clinic Nurse that he had been sent to  them a few minutes prior  and could I  give the permissions verbally. ( This was not the only hiccup with transport).

I was, on the whole, extremely  pleased with  this facility  but it was not all good news. Once again the rehab staff were wonderful, and it was so  organized, you  knew exactly what he would be doing and when, I  was very  impressed with  the rehab staff, also  the cleaning staff once again were in the rooms every  day  and sometimes more than once. The nurses were for the most part very  professional and helpful as were 80 percent of the aides.

My  husband needed help  initially from two  and on some occasions three individuals to  see to  his needs. The confusion caused by  the drugs  did not help, that and the weakness and immobility of his left side. He had to  learn to  use his vocal cords  again ( which were stretched due to  the intubation) . It was a few days before I  realized he was still taking the medication for gout  which  should have been stopped at Mercy.  The medication Colchicine, can  and does cause diarrhea  and stomach  upset. The gout symptoms had abated and he really  should not have been still on this drug , especially  since it does also react with  Digoxin  but of course I  was unaware he was on this drug as well.

I  did insist since the diarrhea was an issue  they  stop the Colchicine. I also , once I  found out he was on Digoxin  ( Lanoxin),  they  stop or change that medication    BUT and here is the issue  it seems that doctors at this facility  and other facilities in the chain are loathe to  change another “specialists” diagnosis and treatment.  This was a huge problem  for us. One because we were out of our network and OUR team of physicians and specialists who  knew his history  and his courses of treatment we had to  rely  on basically  strangers to  his situation.

Therefore I  started asking for a daily  list of all his medications

Once he was off the Colchicine he stomach  upset went away. BUT not for long  a woman in the next room came down with  C’diff https://www.cdc.gov/cdiff/what-is.html . Now it was put to  us that my  husband came down with  this due to  the huge amount of antibiotics he was taking and had taken. BUT that is not the whole story:

IF the lady  in the next room and not had the infection first I would not have done more research thinking  it was because of the antibiotics . Although  the staff were for the most part adhering to   handwashing etc protocol not all of them did . Infact  I  would say  20  percent of the aides were lax in that area. I  actually  had to  throw away  his cellphone as it somehow became covered in fecal matter ( C’diff contamination) and was put on the bedside table. My  husband was incapable of having reached the table.  I  will say  that for the most part the aides and nurses did respond to  his call light in a timely  manner.

One aide,  in particular, left a lot to  be desired, from his treatment of my  husband  and his response times were not great, his laxness in this area and lack  of hand washing protocol  was a great concern.

 

Please understand a patient is in pain  and although  they  had been told of the back injury   it took at least a week for them to  address the situation ( it hadn’t been addressed at Mercy so  not on his record) , which  meant sitting in one position or laying ( when you  are partially  paralyzed) can be unbearable and since you  can’t move  the aides had to  do  it for him. This did cause “some ” of the aides  frustration and it showed.

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There was  another aide  who also  needed to  be retrained or let go  in my  opinion.  I came into  find my  husband half in  and half out of the bed, the top  sheet wrapped around him and soaked with  water. Actually  I  had just walked into  the room with  one of the hospital administrators, so  she did witness the situation. She immediately  went to  work taking care of my husbands comfort. The aide , when she was called , said he spilled water on himself… remembering the jug was on a table  out of his reach and he was not able to  move his left arm at all, that scenario was very  unlikely. I looked at this aide and said:

“so  he spills a jug of water all over his bedding and you  leave him laying in it?”  

The aid turned to  me and said:

“SORREEEEEEE”( in a very  sarcastic tone)

I then turned to  the administrator ( names available) and said

“she is done I  don’t want her anywhere near my  husband

The administrators at the Cleveland Clinic Rehabilitation hospital did address my  concerns but as I  told them what stopped them from getting  great review  on the place as a whole in my  opinion  was 20 percent of their “aides”  and it was those 20  percent that  caused situations that should not have happened, but it is those situations you  remember .

HEALTHCARE IS A HUGE BUSINESS AND EVEN THOUGH  WE THE CONSUMERS ARE PRETTY  MUCH  AT THEIR MERCY (NO  PUN INTENDED) WE ARE STILL CONSUMERS PAYING FOR A SERVICE.

We were assigned one doctor for my  husband and he called in others as needed  such  as another cardiologist, ultra sound  etc.  The doctor was quite nice, spoke very  softly but with  a heavy  accent so  I  was once again forever asking him to  repeat what he was saying and every time he was in the room he was costing ( according to  the bills I  received) 350 to  500 dollars for up to  35 minutes. I should go  through  the dates to  see how many  times a day  but considering I received 74 pages of bills each  page having at least 5 charges on them I am honestly  too tired to  do  the homework.

The discharge date  ( the 19 days being almost up) I was given another list of this time 54 “skilled nursing facilities ” for the next part of the journey  and this time I  did have time to do  some homework……….. To  Be continued

 

Cleveland Clinic Rehabilitation Hospital gets a B plus…. it was an A minus  But then that C’diff situation  was made worse…… more on that as we continue….

 

 

 

May 27, 2019 at 10:02 pm 1 comment

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