Posts filed under ‘death’
June 3rd- No Limits- Chapter 29- Chris Ritchey
NO LIMITS
Forward: https://thatwoman.wordpress.com/2020/01/02/jan-3rd-no-limits-the-forward-chris-ritchey/
Chapter One :https://thatwoman.wordpress.com/2020/02/03/feb-3rd-no-limits-chapter-1-chris-ritchey/
Chapter Two:https://thatwoman.wordpress.com/2020/03/03/march-3rd-no-limits-
Chapter Three: https://thatwoman.wordpress.com/2020/04/03/april-3rd-no-limits-chapt-3-chris-ritchey/
Chapter Four: https://thatwoman.wordpress.com/2020/05/03/no-limits-chapter-4-chris-ritchey/
Chapter Five: https://thatwoman.wordpress.com/2020/06/03/june-3rd-no-limits-chapter-5-chris-ritchey/
Chapter Six: https://thatwoman.wordpress.com/2020/07/03/july-3rd-no-limits-chapter-6-chris-ritchey/
Chapter Seven: https://thatwoman.wordpress.com/2020/08/03/august-3rd-no-limits-chapter7-chris-ritchey/
Chapter Eight: https://thatwoman.wordpress.com/2020/09/03/sept-3rd-no-limits-chapter-8-chris-ritchey/
Chapter Nine: https://thatwoman.wordpress.com/2020/10/03/oct-3rd-no-limits-chapter-9-chris-ritchey/
Chapter Ten: NO LIMITS- Nov 3rd- Chapter 10- Chris Ritchey | That Woman’s Weblog (wordpress.com)
Chapter Eleven: NO LIMITS-Dec. 3rd- Chris Ritchey- Chapter 11 | That Woman’s Weblog (wordpress.com)
Chapter Twelve: NO LIMITS-Jan 3rd- Chris Ritchey- Chapter 12 | That Woman’s Weblog (wordpress.com)
Chapter Thirteen : NO LIMITS- FEB 3rd- Chris Ritchey- Chapter 13 | That Woman’s Weblog (wordpress.com)
Chapter Fourteen: March 3rd, NO LIMITS, Chapter 14- Chris Ritchey | That Woman’s Weblog (wordpress.com)
Chapter Fifteen: April 3rd- No Limits- Chapter 15- Chris Ritchey | That Woman’s Weblog (wordpress.com)
Chapter Sixteen: May 3rd – No Limits- Chapter 16- Chris Ritchey | That Woman’s Weblog (wordpress.com)
Chapter Seventeen: June 3rd-No Limits-Chris Ritchey-Chapter 17 | That Woman’s Weblog (wordpress.com)
Chapter Eighteen: July 3rd – NO LIMITS- Chapter 18-Chris Ritchey | That Woman’s Weblog (wordpress.com)
Chapter Nineteen: https://thatwoman.wordpress.com/2021/08/03/august-3rd-no-limits-chapter-19-chris-ritchey/
Chapter Twenty: https://thatwoman.wordpress.com/2021/09/03/september-3rd-no-limits-chapter20-chris-ritchey/
Chapter Twenty One: https://thatwoman.wordpress.com/2021/10/03/october-3rd-no-limits-chapter-21-chris-ritchey/
Chapter Twenty Two : https://thatwoman.wordpress.com/2021/11/03/nov-3rd-no-limits-chapter-22-chris-ritchey/
Chapter Twenty Three: https://thatwoman.wordpress.com/2021/12/03/dec-3rd-no-limits-chapt-23-chris-ritchey/
Chapter Twenty Four: https://thatwoman.wordpress.com/2022/01/03/january-3rd-no-limits-chapter-24-chris-ritchey/
Chapter Twenty Five: https://thatwoman.wordpress.com/2022/02/03/february-3rd-no-limits-chapter-25-chris-ritchey/
Chapter Twenty Six https://thatwoman.wordpress.com/2022/03/03/march-3rd-no-limits-chapter-26-chris-ritchey/
Chapter Twenty Seven https://thatwoman.wordpress.com/2022/04/03/april-3rd-no-limits-chapter-27-chris-ritchey/
Chapter Twenty Eight: https://thatwoman.wordpress.com/2022/05/03/may-3rd-no-limits-chapter-28-chris-ritchey/
A losing of function
Note: I have been dreading this chapter all month. I have put it off, shoved the memories back into their dwelling place. As my self- imposed deadline of the 3rd of the month loomed, I ran emotionally from remembering. My conscious thought telling me
“don’t go there ” , you can’t go back to that time, your well being is at stake. You survived that day because it was so surreal and you were protected by “unbelievability” as to what was actually happening. You were tired, emotionally exhausted things happening were cushioned with incredibility , the -this is not happening syndrome.
Days passed and the closer the 3rd of June came the more I ran from this writing. I couldn’t bring myself to do this , but the nights were different perspective altogether, I lay awake for hours, although exhausted , I would watch the moon in its phases lighting the bedroom causing the tree to outside cast its dancing shadows on the wall.
Everything in me has fought this moment, but here it is June the 2nd, 2022 and I am remembering the most painful day of my life and “my death” as well. You see, and I know those of you that have lost a son or daughter know the very moment that happens , you lose who you are too. You are not the same and you never will be ………
For days I sat by your side , those last three days being in the new Medical ICU unit were dreadful. Not only did the nurses and doctors not know who I was, and I was too tired to explain, I was falling apart emotionally and physically. Weeks of wearing the paper medical masks ( since they insisted you had H1N1), because that is what Angela had told them in ER and of course why question the “doctor in waiting”.
The mask, the dryness of the room and the stress had caused the skin under my nose to blister and scab. I, apparently, was somewhat allergic to those particular masks. One lovely nurse gave me ointment to help. There was no ointment for my swollen, to nearly three time their regular size, my legs. In this unit , there was not comfortable arm chair. This unit obviously did not want visitors so the only chair was a metal folding chair. Sitting on the cold hard metal , not moving holding his hand, only getting up to put a cool facecloth on his burning brow. I was reminded every time I did so by the marks left on your scalp as they had pulled off the brain wave electrodes, the skin was sore and red and the hair gone and slight bleeding. Someone obviously had no thought for my son as they pulled those off, but he was dying anyway! I noticed a lot of that sort of attitude in that unit, so different from the previous ICU.
Photo source http://www.neurowavesystems.com/
And so it was the night of December 2nd. I had gone , as usual walked to the unit with my husband about 10 pm. The Lombardi clan hovering in the corridors talking tacos. I had no wish to see.
Nikki was exhausted , having to breastfeed the baby and dealing with everything. Jim had brought the baby up to the hotel. Nikki hadn’t any pajamas and had purchased a pair at the gift shop. Unlike my lime green creation I had purchased, the one pair she had to buy was two piece pink, chocolate and white striped . I remember thinking they reminded me of Neapolitan ice cream.
I was surprised , as we headed to the unit to see two of Chris’ high school friends. What were they doing there????? , Apparently, Angela had been sending out texts
“if they wanted to see Chris before he died they should come”
I cannot honestly remember what I said to them , but I don’t think I was very pleasant. However, it explained why Chris’ nurse was flustered as we walked into our son’s room
“You know there are visiting hours we can’t have all you people coming in and out all night long”
I explained who I was and why I would be sitting there all night , at least until rounds in the morning. If they needed me to move I would but I would not be leaving my son. She explained that during her shift people had been in and out. I told her :
she would have to take that up with his wife because I certainly was against anyone coming into see him in this condition. He would have hated it.
My husband went back to the hotel room . I continued to sit in that glass bubble of a world, a young woman ( presumably a Doctor) would look through the glass at the monitors. I hoped Chris could hear me I hummed the lullabies of his childhood, talked softly as to how much we loved him, that Nikki and Jim were there., anything to try to give him comfort, trapped as he was, encased in machines.
My inner thoughts , I did not say outloud , I spoke them silently
” Please Chris you have to turn a corner soon , I just don’t know how much longer I can hold up, please Chris
Nurse Nicole , it was her first week in that particular ICU came in to say they would be bathing him and I could stay and help if I wished. I told her
No! he would hate me to be there for that and I would go and get something to drink and come back.
After a while I went back into the ICU , I asked whether they had been continuing the eye drops as his eyes were partially open and I had been told it could cause issues if they weren’t moisturized regulary after he came off the vent.
She went away to get an OK and came back, I said did she notice the urine bag had blood in it. No! that wasn’t like that before, I will check let me put the drops in. It was 3 am and she looked at me and said
“his pupils are fixed and dilated “
Fixed and moderately dilated pupils are seen in brain death because of the loss of both sympathetic and parasympathetic influences.
She then left to call for the head of the unit. All hell broke loose as a male Doctor , whomever he was , and the nurses as they came to our room, the man in the next room decided to have an episode and apparently passed. I waited and then the nurse said the Doctor had ordered a scan. I called Angela and told her what the nurse had said and waited.
It was 5 am by this time , Angela appeared at the desk with the Doctor, who had glanced into the room at that stats at least twice during the night . She and Angela chatted as if I didn’t exist .
Angela asked what was the prognosis?
OH ! this is the first night he had held his own
– Angela
Cool Beans! we now have to feed my boy
Dr. We have to do something about a bowel movement first
As I stood there like some peripheral groupie I mentioned the scan and that
“the ICU nurse was very concerned as his pupils were fixed and dilated and had called the Neurologist for a scan”
The Elephant Run-by Chris Ritchey
Two faces and pairs of eyes ” in the know medical (Drs.?) turned and looked at me like I was some sort of “ignorant irritant”
That young woman. presumably a Doctor, – I don’t remember her name just her face- I had seen it through the early morning hours looking at the monitors through the glass – never once coming into the room – said:
”
Oh I am not worried he is on a boat load of medication
Giggles from the “Dr. to be Ritchey ( Angela)
Oh! he is on enough medication to fill up an elephant heehehehehee!
I had such a bad feeling but I had to sleep, I left them chatting and went back to the room . I went to the chaise lounge by the window where I could see his room across the way. I fell instantly into a desperate sleep only to be woken by Nikki-
Mum you have to go back
– I said
Nikki I can’t- I can’t even stand
and she said
Mum, you have to something is wrong- I will come down as soon as Jim gets here to take Gavin
I rushed through the hallways- to this day I have no idea what clothes I had on…. I found my son’s room empty of the usual “clan”– no one was with him I went in- a new nurse said
You are wanted in the conference room for a family meeting
-I said
my husband is there I am not leaving my son alone I promised him-
Nurse
YOU HAVE TO GO!
I looked at this officious nurse and said
“I DON’T “HAVE” TO GO ANYWHERE OR DO ANYTHING I AM NOT LEAVING MY SON ALONE!
It was then Nikki arrived – still in the Neapolitan pajamas purchased from the hospital gift shop- like some bizarre clown outfit. I remember thinking Chris would find it funny.
She said:
Mum you go I will stay with Chris I promise
The meeting that day was about taking Chris off the vent they the hospital and they needed me there as they
“didn’t want any trouble”
They needed my permission as well as his wifes- I had the night before made sure that the staff were now aware that Nikki and I were also on his paperwork.
The Doctor, who chatted about bowel movement and holding his own just 2 hours previously was now saying his brainstem ( after looking at the scans) had collapsed and he was effectively brain dead.
Brainstem death is a clinical syndrome defined by the absence of reflexes with pathways through the brainstem – the “stalk” of the brain, which connects the spinal cord to the mid-brain, cerebellum and cerebral hemispheres – in a deeply comatose, ventilator-dependent patient. Identification of this state carries a very grave prognosis for survival; cessation of heartbeat often occurs within a few days, although it may continue for weeks if intensive support is maintained.
The Dr. explained what would happen and our options and what each option would mean when they did this-one option being surgery to release the pressure on the brain. What ever they did they were going to have to wait until one of the medications which paralyzed him wore off so it would be a little while.
NOTE: I cannot write anymore as the dying time took all day and horrors of heartbreak and ignorance continued to pummel me and my family. There was no kindness in this dying … I will have to continue on the next 3rd
to be continued……..
May 3rd – NO LIMITS-Chapter 28- Chris Ritchey
Forward: https://thatwoman.wordpress.com/2020/01/02/jan-3rd-no-limits-the-forward-chris-ritchey/
Chapter One :https://thatwoman.wordpress.com/2020/02/03/feb-3rd-no-limits-chapter-1-chris-ritchey/
Chapter Two:https://thatwoman.wordpress.com/2020/03/03/march-3rd-no-limits-
Chapter Three: https://thatwoman.wordpress.com/2020/04/03/april-3rd-no-limits-chapt-3-chris-ritchey/
Chapter Four: https://thatwoman.wordpress.com/2020/05/03/no-limits-chapter-4-chris-ritchey/
Chapter Five: https://thatwoman.wordpress.com/2020/06/03/june-3rd-no-limits-chapter-5-chris-ritchey/
Chapter Six: https://thatwoman.wordpress.com/2020/07/03/july-3rd-no-limits-chapter-6-chris-ritchey/
Chapter Seven: https://thatwoman.wordpress.com/2020/08/03/august-3rd-no-limits-chapter7-chris-ritchey/
Chapter Eight: https://thatwoman.wordpress.com/2020/09/03/sept-3rd-no-limits-chapter-8-chris-ritchey/
Chapter Nine: https://thatwoman.wordpress.com/2020/10/03/oct-3rd-no-limits-chapter-9-chris-ritchey/
Chapter Ten: NO LIMITS- Nov 3rd- Chapter 10- Chris Ritchey | That Woman’s Weblog (wordpress.com)
Chapter Eleven: NO LIMITS-Dec. 3rd- Chris Ritchey- Chapter 11 | That Woman’s Weblog (wordpress.com)
Chapter Twelve: NO LIMITS-Jan 3rd- Chris Ritchey- Chapter 12 | That Woman’s Weblog (wordpress.com)
Chapter Thirteen : NO LIMITS- FEB 3rd- Chris Ritchey- Chapter 13 | That Woman’s Weblog (wordpress.com)
Chapter Fourteen: March 3rd, NO LIMITS, Chapter 14- Chris Ritchey | That Woman’s Weblog (wordpress.com)
Chapter Fifteen: April 3rd- No Limits- Chapter 15- Chris Ritchey | That Woman’s Weblog (wordpress.com)
Chapter Sixteen: May 3rd – No Limits- Chapter 16- Chris Ritchey | That Woman’s Weblog (wordpress.com)
Chapter Seventeen: June 3rd-No Limits-Chris Ritchey-Chapter 17 | That Woman’s Weblog (wordpress.com)
Chapter Eighteen: July 3rd – NO LIMITS- Chapter 18-Chris Ritchey | That Woman’s Weblog (wordpress.com)
Chapter Nineteen: https://thatwoman.wordpress.com/2021/08/03/august-3rd-no-limits-chapter-19-chris-ritchey/
Chapter Twenty: https://thatwoman.wordpress.com/2021/09/03/september-3rd-no-limits-chapter20-chris-ritchey/
Chapter Twenty One: https://thatwoman.wordpress.com/2021/10/03/october-3rd-no-limits-chapter-21-chris-ritchey/
Chapter Twenty Two : https://thatwoman.wordpress.com/2021/11/03/nov-3rd-no-limits-chapter-22-chris-ritchey/
Chapter Twenty Three: https://thatwoman.wordpress.com/2021/12/03/dec-3rd-no-limits-chapt-23-chris-ritchey/
Chapter Twenty Four: https://thatwoman.wordpress.com/2022/01/03/january-3rd-no-limits-chapter-24-chris-ritchey/
Chapter Twenty Five: https://thatwoman.wordpress.com/2022/02/03/february-3rd-no-limits-chapter-25-chris-ritchey/
Chapter Twenty Six https://thatwoman.wordpress.com/2022/03/03/march-3rd-no-limits-chapter-26-chris-ritchey/
Chapter Twenty Seven https://thatwoman.wordpress.com/2022/04/03/april-3rd-no-limits-chapter-27-chris-ritchey/
THE DYING TIME
NOTE: You would think , after all these years, I would have built up some immunity to the rawness emotions of what happened in those last few hours and days .
You would be wrong it is yesterday in my world. I find, as I writing, I am sucking in breaths, gasping for air, eyes fill with tears and my heart races. I can only brave the act of reliving in short stages. I have to stop, walk away and come back for a few minutes.
I don’t know how to write these memories of those hours. Will I even be able to put my pain on a page, relieve it in entirety or become clinical and write just the medical journey with the inclusion of the Lombardi’s contribution to my end of days as a mother of my son?
I suppose I will find out along with the reader.
As he was moved to the new Medical ICU room with new staff and strangers, I shivered the room was the corner room looking out toward the hotel where I had been staying. I could see his room from my hotel room, the light softly glowing in the early morning morning hours. I had called my daughter and son-in law. My husband went to meet them in the lobby to show Nikki where to come whilst Jim took Baby Gavin to the room to wait.
I must have looked very strange as I waited ,away from the “Clan of Lombardis” by myself in the waiting room, as a young man in scrubs came up to me put his arm around me and started explaining something about
“blood gases elevated C02 levels ” .. hypercapnia… How Chris gases were compromised by the move. “
I had absolutely not a clue as to what he was saying , It was though I was deaf and trying to read his lips.
Who was he? What was he doing in my world ?
At that moment my daughter burst into the waiting room ran toward me , as she did so she apparently overheard the one sided conversation and as I said I must have looked dreadful.
The next thing she “melted “on the floor, collapsing to her knees, just folded up at she reached out to me and I reached forward to her. The young man caught us both somehow and said :
“please, it is alright no-one ever died from Co2 levels, we will get the levels corrected. I will take care of him!
The rest is a blur, since no-one in the family could stay in Chris room that night, and I was panicked
“How was I going to get him through that 3 in morning time slot , I so dreaded.
We went back to the hotel room to wait. There was a chaise lounge , I laid on it looking out across the way to Chris room and pulsating light as , I assume, people would come and go doing what they were supposed to do, injecting him with insulin, Heparin and too many drugs I couldn’t pronounce.
Nikki took the baby and laid on the bed, Jim grabbed a pillow and blanket and slept fitfully on the floor. Actually I have not a clue where my husband slept or even if he did, I am presume in one of the arm chairs.
I waited until morning, I had decided
this was enough no more were the Lombardis and their clan going to make the decisions, I was done with them and his bride.
I showered , got dressed and for the first time put on some make-up. My husband had already beaten me to it and had checked on Chris and called from the the floor to tell me
Chris stats had improved.
I went to the unit, didn’t check in with the reception station to get permission , no-one was going to stop me that morning!
I knew Angela would be in there for the Doctors rounds and that morning I was going to be part of the discussion. Unfortunately , Angela and the Doctors were already meeting behind the “glass wall”. I saw a familiar face, it was Dr. R.A of the Thanksgiving Day ” dying discussion”. She recognized me too, asked how I was.
I said:
a little better as I had been told Chris’ levels and stats were improving
Dr. R. A looked annoyed
WHO told you that? It is definitely NOT what is happening his organs are shutting down , he has had a series of “episodes” and it isn’t good , as I told you last week”
Why haven’t I been told? Why has this been kept from his family?
We tell his wife everything ( Dr. Ritchey) she has been given the complete information, it is up to her to inform the rest of you
And at that statement what was left of me, the person I always was came to the fore. I felt a strength in my voice I hadn’t had for weeks
” Well obviously there has been some sort of breakdown in the information given to us or apparently NOT given to us by his wife and her family.
You, and the hospital and this unit had better check my son’s paperwork because it is written and signed by him ( of which I have a copy at home.) that his sister and I are named in his Living Will , signed at South Pointe Hospital and we both are on that form ( notarized) as to any medical decisions and information is to be given to us directly!
Oh, she said, I will make sure the staff and unit are informed
With that she walked away and I still shaking with fear for my son and with anger left the unit to tell MY family .
Later on , after I had gathered myself together , I went back down to the unit , again by passing the harridan at the reception desk and
there it was my nightmare of 13 months previously ……playing out in front of me…. MY PREMONITION come to pass!!!!
I awoke in the early morning hours of that first night after chemo, shaking, gasping for breath. I had a dream; it was so real.
I was in a room, in the middle of the room was an open casket in which lay my son and around this casket was Angela, her mother and father and strange people . I was drenched in sweat and tears, the realization it was a nightmare slowly came to the front of my mind.
It wasn’t a casket it was a hospital bed , but the way they had him laid out it might as well have been .
I still to this day don’t know who they all were- strangers to me ! And that was something that would have caused my son such anguish- after all he could no longer speak , they would never have dared to put him in that situation had he been able to communicate.
Angela and her mother sat holding court and allowed and embraced 8-9 people to hold a dying time…. ” death clutterers to ogle and text on their phones around his dying body” .
It was to me , it was disgraceful behavior and totally lacking respect and love on Angela’s part. I never wanted to see their faces ever again! I was sickened at the sight. I went to the foot of his bed and slowly pulled a sheet up over his lower limbs, covering the bags and bodily fluids draining from him.
Chris would have hated what was happening, being on show. He thought thought the graveside antics of the “Lombardi , Vyka , Gonzales, Gott or Zaworski at a young nephews graveside on that previous Christmas morning was despicable and told Angela at the time, when she came to pick him up for the “event”
“That is sick, no I am not going , I won’t be involved in that ! What are you thinking?”
I can only imagine what he would have thought of what I was seeing as he lay unable to throw them out, because he would have.
I hoped the induced coma meant he knew nothing of it. I wanted to grab them by the neck and throw them out on their ear myself. But I couldn’t for the sake of my son.
My face once again must have communicated what my thoughts were for Angela rose from her seat and said to the tribe
” I think we had better go………
to be continued
April 3rd-No Limits – Chapter 27- Chris Ritchey
NO LIMITS
Forward: https://thatwoman.wordpress.com/2020/01/02/jan-3rd-no-limits-the-forward-chris-ritchey/
Chapter One :https://thatwoman.wordpress.com/2020/02/03/feb-3rd-no-limits-chapter-1-chris-ritchey/
Chapter Two:https://thatwoman.wordpress.com/2020/03/03/march-3rd-no-limits-
Chapter Three: https://thatwoman.wordpress.com/2020/04/03/april-3rd-no-limits-chapt-3-chris-ritchey/
Chapter Four: https://thatwoman.wordpress.com/2020/05/03/no-limits-chapter-4-chris-ritchey/
Chapter Five: https://thatwoman.wordpress.com/2020/06/03/june-3rd-no-limits-chapter-5-chris-ritchey/
Chapter Six: https://thatwoman.wordpress.com/2020/07/03/july-3rd-no-limits-chapter-6-chris-ritchey/
Chapter Seven: https://thatwoman.wordpress.com/2020/08/03/august-3rd-no-limits-chapter7-chris-ritchey/
Chapter Eight: https://thatwoman.wordpress.com/2020/09/03/sept-3rd-no-limits-chapter-8-chris-ritchey/
Chapter Nine: https://thatwoman.wordpress.com/2020/10/03/oct-3rd-no-limits-chapter-9-chris-ritchey/
Chapter Ten: NO LIMITS- Nov 3rd- Chapter 10- Chris Ritchey | That Woman’s Weblog (wordpress.com)
Chapter Eleven: NO LIMITS-Dec. 3rd- Chris Ritchey- Chapter 11 | That Woman’s Weblog (wordpress.com)
Chapter Twelve: NO LIMITS-Jan 3rd- Chris Ritchey- Chapter 12 | That Woman’s Weblog (wordpress.com)
Chapter Thirteen : NO LIMITS- FEB 3rd- Chris Ritchey- Chapter 13 | That Woman’s Weblog (wordpress.com)
Chapter Fourteen: March 3rd, NO LIMITS, Chapter 14- Chris Ritchey | That Woman’s Weblog (wordpress.com)
Chapter Fifteen: April 3rd- No Limits- Chapter 15- Chris Ritchey | That Woman’s Weblog (wordpress.com)
Chapter Sixteen: May 3rd – No Limits- Chapter 16- Chris Ritchey | That Woman’s Weblog (wordpress.com)
Chapter Seventeen: June 3rd-No Limits-Chris Ritchey-Chapter 17 | That Woman’s Weblog (wordpress.com)
Chapter Eighteen: July 3rd – NO LIMITS- Chapter 18-Chris Ritchey | That Woman’s Weblog (wordpress.com)
Chapter Nineteen: https://thatwoman.wordpress.com/2021/08/03/august-3rd-no-limits-chapter-19-chris-ritchey/
Chapter Twenty: https://thatwoman.wordpress.com/2021/09/03/september-3rd-no-limits-chapter20-chris-ritchey/
Chapter Twenty One: https://thatwoman.wordpress.com/2021/10/03/october-3rd-no-limits-chapter-21-chris-ritchey/
Chapter Twenty Two : https://thatwoman.wordpress.com/2021/11/03/nov-3rd-no-limits-chapter-22-chris-ritchey/
Chapter Twenty Three: https://thatwoman.wordpress.com/2021/12/03/dec-3rd-no-limits-chapt-23-chris-ritchey/
Chapter Twenty Four: https://thatwoman.wordpress.com/2022/01/03/january-3rd-no-limits-chapter-24-chris-ritchey/
Chapter Twenty Five: https://thatwoman.wordpress.com/2022/02/03/february-3rd-no-limits-chapter-25-chris-ritchey/
Chapter Twenty Six https://thatwoman.wordpress.com/2022/03/03/march-3rd-no-limits-chapter-26-chris-ritchey/
The fog of remaining…….
I sit at this keyboard on a chilly spring day , trying to be brave enough to continue with this story. I am not brave I am jelly, everything about me is trying to run from these chapters , not to relive the most excruciating pain that, for most, is not to be imagined.
The extreme emotions that flood through body and brain whilst waiting for my son to pass from this existence were somehow blanketed and softened ,at the time, with a fog of surreality all the while begging for any sign of hope.
I know now, after these years of “living with the loss”, that feeling – disoriented, confused, in a fog are responses that are the brain’s attempts to dissociate itself from emotional pain.
The brain is built to perceive an existential threat as a threat to our very existence. This triggers what most people know as the “fight or flight” response. Stress hormones course throughout the body. “Your heart starts racing, your blood pressure increases, your respiratory rate increases, you become sweaty, as the body marshals defenses for you to protect yourself, one way or another,” https://www.heart.org/en/news/2021/03/10/how-grief-rewires-the-brain-and-can-affect-health-and-what-to-do-about-it?msclkid=779cd4c4b1d211ec9c8f2a31ff281e84
I haven’t the words to explain those last days , hours blended into a few minutes of conscious thought and movement whilst trying to disappear into another world of existing elsewhere……. anywhere…. besides that waiting room and those people.
Robotic responses , a feeling of being crushed, enveloped in some sort of claustrophobic existence, all the time wanting to scream, run , and trying with all my heart for a solution a way to save my son.
People moved in and out of my world that week, broken by surfacing to what was my horrific reality . The only time I had any peace was alone in the the ICU room 6 listening to the breathing of the machine, holding his hand , singing softly when I could the lullabies from when he was a baby . The nurses told me he could probably hear me and I would look at his heart rate and when it slowed from its “rushing pace” I knew he knew my presence.
The times Nikki was able to come , his heart rate slowed and he relaxed….. Nurse Heather….. who always held out hope for me, from rolling a neck pillow for under his neck, because
“after being so long in one position when the patient woke and was off the ventilator it would help with the stiffness”.
That small act and her caring of my son as a person not a lab rat gave a glimmer of peace. Heather would add eye drops to lubricate his eyes . When Nikki would enter the room and talk to Chris and his body relaxed she said,
Oh! I wish she could stay all day, it is the only time he doesn’t fight the ventilator .
For the next couple of days we drifted in and out of hope. It was about 1 in the morning, I would sit next to Chris all night, you see I had this phobia of sorts, that if I could let him know I was there and get him past “three in the morning” he would survive another day .
I know how that sounds but I had a morbid dread of that hour I sat quietly holding his hand, watching his stats on the monitor, listening to every breath. He seemed to be sleeping, but then he squeezed my hand so tightly I was shocked, he hadn’t reacted to my holding his hand that way , I wasn’t sure what he needed.
Thinking he was in pain I rang for the nurse, two came in , one male nurse I hadn’t seen before and another who I had only seen once before. , the male checked the ventilator and the other spoke to Chris. asking him if he was in pain
It was the last time I saw my son respond , with a slight shake of his head. A few moments later as I looked at the monitor his heart rate dropped from the 134 to 89,
I said:
his heart rate has dropped
They ignored me, went on checking fluids , Iv’s etc. Then went up again and then it fell again I said:
his heart rate has dropped again
the male nurse said
” that is what we want it to do”
but then it went back up again. I could tell I was being “dismissed”
Chris, seemed to settle back into a rhythm and around 8 am I went back to the room to try and sleep , knowing we had come through another night .
NOTE: Talking to physicians afterwards, I was told that slowing of the heart rate was probably due to him having a stroke. Also the fact that he had pin prick holes in his lungs that were turning leather like and the pressure of the vents forcing air was of course a reaction with the lungs.
“The machine uses positive pressure to force air into your lungs. Think of standing in front of a leaf blower.”
Read More: https://www.thelist.com/621631/whats-the-difference-between-being-intubated-vs-on-a-ventilator/
We had sort of settled into a rhythm ourselves, the Lombardi Clan and I. I would take the night shift or when no-one else could be there . I suppose they were avoiding me as much as I wanted to avoid them. The Drs. made their rounds in the morning and that was when Angela would be there . I would wait for what she was told or what the nurses would tell me later.
My physical being , as well as my emotional being was suffering . 10 days of barely two to three house of sleep in 24 was taking its toll. Sitting in the chair by the bed , scared to move, had made my legs and ankles swell so badly I would have put bags of ice on my feet to put my shoes on.
The type of hospital masks we were required to wear, as they were concerned about H1N1, rubbed the tender spot under my nose. I wore them for so many hours I ended up with raw spots between my nose and upper lip, as days went on it got worse. The nurses helped with some ointment , but I believe stress wasn’t helping the situation.
When I came down to ICU again, the morning after the heart beat drop, all hell had broken loose. Nurse Heather coming out into the corridor , the Lombardi Clan mingled, agitated gestures and outraged behavior met me . I couldn’t fathom what was going on.
Nurse Heather, walked through them -faced me took my hands in mine looked me straight in the eyes, tears filling hers and said
” I am so sorry”
I thought Chris must have passed without me by his side, but why were the faces of the Lombardi clan so animated with annoyance?
Apparently, before I arrived to the Neurological ICU where Chris had been admitted due to lack of space in the Medical Unit, Sue Lombardi had been making her rounds in the ICU again bothering nurses and going into Chris’s room and discussing his condition and asking questions as to the current situation etc. etc.
Chris’s stats and heart rate would climb when she was in the room and the Nurses on duty informed Angela :
her mother was not helping him and interfering, bothering other nurses and asking questions about other patients in the unit and could she not enter ICU alone anymore.
That had set off the “Clan” and Angela ( Dr. in resident) insisted Chris be moved from the Neurological Unit to the other floor and the Medical Unit. I had no say , to be honest I was still trying to fathom what was going on.
Days previously, a resident came to talk to me from the Medical Unit- they had room for Chris , Angela had declined and apparently something had upset the resident. Later that night a Doctor from the unit came in , asked me if I was Chris mother. Yes. They wanted “MY” permission to bring Chris into the unit .
I said:
if his wife said no and well she is a resident and knows more than I – I would have to go along with her decision.
I am not sure what that was all about but it seemed strange that now all of a sudden the move she had fought initially was happening because her mother was upset with the nurses in the Neurological Unit – nothing was making any sense.
I went into his room a nurse was there sticking pins in his foot and hand. She looked at my face and said I am sorry but he has had a stroke , his lung had also collapsed .
I stood there incredulous, the fog overwhelming me again. I was then told Angela and family ( what the hell was I?) had NOW requested Chris be moved to the Medical Unit.
They were getting ready to take him off the vent in order to transport him. I looked at the nurse and said :
isn’t that dangerous wouldn’t that put his body through more stress.
She just looked at me and gave a slight shrug and a smile I can only describe as sympathetic.
The next thing, I was asked to wait in the corridor . I did. Chris was put into an elevator . They had to manually pump the oxygen into his lungs as he went into the elevator his heart rate was registering 169 .
but the Lombardi’s had their way ……..
To Be continued…….
February 3rd- NO LIMITS- Chapter 25-Chris Ritchey
NO LIMITS
Forward: https://thatwoman.wordpress.com/2020/01/02/jan-3rd-no-limits-the-forward-chris-ritchey/
Chapter One :https://thatwoman.wordpress.com/2020/02/03/feb-3rd-no-limits-chapter-1-chris-ritchey/
Chapter Two:https://thatwoman.wordpress.com/2020/03/03/march-3rd-no-limits-
Chapter Three: https://thatwoman.wordpress.com/2020/04/03/april-3rd-no-limits-chapt-3-chris-ritchey/
Chapter Four: https://thatwoman.wordpress.com/2020/05/03/no-limits-chapter-4-chris-ritchey/
Chapter Five: https://thatwoman.wordpress.com/2020/06/03/june-3rd-no-limits-chapter-5-chris-ritchey/
Chapter Six: https://thatwoman.wordpress.com/2020/07/03/july-3rd-no-limits-chapter-6-chris-ritchey/
Chapter Seven: https://thatwoman.wordpress.com/2020/08/03/august-3rd-no-limits-chapter7-chris-ritchey/
Chapter Eight: https://thatwoman.wordpress.com/2020/09/03/sept-3rd-no-limits-chapter-8-chris-ritchey/
Chapter Nine: https://thatwoman.wordpress.com/2020/10/03/oct-3rd-no-limits-chapter-9-chris-ritchey/
Chapter Ten: NO LIMITS- Nov 3rd- Chapter 10- Chris Ritchey | That Woman’s Weblog (wordpress.com)
Chapter Eleven: NO LIMITS-Dec. 3rd- Chris Ritchey- Chapter 11 | That Woman’s Weblog (wordpress.com)
Chapter Twelve: NO LIMITS-Jan 3rd- Chris Ritchey- Chapter 12 | That Woman’s Weblog (wordpress.com)
Chapter Thirteen : NO LIMITS- FEB 3rd- Chris Ritchey- Chapter 13 | That Woman’s Weblog (wordpress.com)
Chapter Fourteen: March 3rd, NO LIMITS, Chapter 14- Chris Ritchey | That Woman’s Weblog (wordpress.com)
Chapter Fifteen: April 3rd- No Limits- Chapter 15- Chris Ritchey | That Woman’s Weblog (wordpress.com)
Chapter Sixteen: May 3rd – No Limits- Chapter 16- Chris Ritchey | That Woman’s Weblog (wordpress.com)
Chapter Seventeen: June 3rd-No Limits-Chris Ritchey-Chapter 17 | That Woman’s Weblog (wordpress.com)
Chapter Eighteen: July 3rd – NO LIMITS- Chapter 18-Chris Ritchey | That Woman’s Weblog (wordpress.com)
Chapter Nineteen: https://thatwoman.wordpress.com/2021/08/03/august-3rd-no-limits-chapter-19-chris-ritchey/
Chapter Twenty: https://thatwoman.wordpress.com/2021/09/03/september-3rd-no-limits-chapter20-chris-ritchey/
Chapter Twenty One: https://thatwoman.wordpress.com/2021/10/03/october-3rd-no-limits-chapter-21-chris-ritchey/
Chapter Twenty Two : https://thatwoman.wordpress.com/2021/11/03/nov-3rd-no-limits-chapter-22-chris-ritchey/
Chapter Twenty Three: https://thatwoman.wordpress.com/2021/12/03/dec-3rd-no-limits-chapt-23-chris-ritchey/
Chapter Twenty Four: https://thatwoman.wordpress.com/2022/01/03/january-3rd-no-limits-chapter-24-chris-ritchey/
The Circus from Hell
The next morning ,after the fiasco of the Lombardi’s clever ideas as to how to get a young man who couldn’t breathe or walk more than two feet without aid and my outrage as to what they were planning, Angela came in from her shift at the hospital.
I found out later she wasn’t scheduled for that shift but asked to change. I never did find out why . Chris , was not doing well and it was decided to tell Chris he was going to have to go back into the Clinic. He didn’t take it well a plastic water bottle flew across the room and hit the wall. I was pleased , believe it or not, it showed he still had strength and fight left in him.
Then it began, the rescue squad having to get him down the apartment stairs , Angela riding in the ambulance, me following the ambulance as I had no clue where I was going. Nine hours in the ER as there was no room in the Medical ICU. Phone calls back and forth. Angela telling the attending physician he had been diagnosed with H1NI. I was perplexed this was the first I heard of it . I kept thinking
that isn’t right why is she saying that , was I being kept in the dark again? I believed that damned flu shot was causing issues. If he had HINI why were they trying to send him back to Houston, none of this was making sense..
well not then anyway.
Chris was finally sent to the Neurological ICU as there was no room in the Medical ICU.
And we waited , Sue and Tim arrived and my husband and the days turned into one long nightmare. Chris was admitted on the Saturday before Thanksgiving . I would fall asleep in the chair . I promised Chris he would never be alone and at first it worked reasonably well I would trade off with Angela during the day but the nurses let me stay in the room in a chair at night.
Then since they couldn’t figure out what was going on it was decided he must have H1N1. This meant we were fully masked and gowned when we went into his room. I watched my son’s every movement, every heart beat , every drop or rise in oxygen levels.
I sat there hour after hour trying to find away to give him strength , doing the deals with whomever ran the universe, all the time remembering my premonitions and fighting them back down into my sub conscience.
Finally exhaustion got the better of me, I could no longer see straight or sit in that waiting room . Nikki arranged to get me a room at the Intercontinental Hotel attached to the Clinic so I could walk back and forth. I had some clothes with me from the Friday but they were in the trunk of my car and I hadn’t a clue where it was. My mum had packed a small carrier bag with change of underwear and blouse and sweater sending it up with my husband.
I needed a few things so I bought a pair of pajamas in the Clinic Gift shop. The only ones in my size were bright lime green, terribly unflattering but then again no-one would be seeing me in in them, a toothbrush, deodorant etc. I made my way to the lobby of the hotel through the hospital feeling terribly afraid and alone. There was some funny looks when my only luggage was an Aldi’s carrier bag. Still the credit card was good.
I went to the room, had a shower put on my lime green pj’s and called room service. Well of course I had no robe and hadn’t thought , the waiter brought in the food on a trolley , whatever he thought of the vision in green he saw before him he didn’t show a change in face as this little fat woman in lime green pj’s ( that were a little tight) and red hair signed the chit.
I ate my first decent meal in days and fell into the bed and passed out. I slept till the evening and was going back through the corridors to the hospital when I saw two nurses helping a woman walk . I realized from the conversation as I went passed she was Carla Nash , the lady who had been attacked by a chimpanzee and was at the clinic after having a face transplant. I thought they seem to be able to work miracles , will there be one for my son and a little hope crept back into my being. I saw the trio on more than one occasion and my heart went out to her.
There were other stories during those hours and days as we waited and hoped.
An elderly man, some thing of a musician from what I gathered from a conversation in the waiting room of hell , was dying in the next room. His wife sat by his bed all day. Later that evening Chris’s nurse asked if it would bother us if his daughter, who was in one of the symphony orchestras. could play for her father.
As I sat there masked and gowned and closed off in our glassed in room, the faint sound of a violin drifted through the air . It was so surreal , this beautiful piece of music like some heavenly message easing her fathers passing and reminding me how much love and pain was happening on the other side of the wall , but beautiful at the same time . The music stopped and so apparently had the life of one more human being and their story.
There were of course other stories
The mum who had been brought in with a brain aneurism , her family gathered in the the small ICU waiting room, the tears, the worry , the hope. I don’t know what happened to her . Others whose lives crashed into ours in that room and then left some in tears and some transferred out of ICU with smiles. .
After three days of no sleep and actually pretty much on my own as far as my family I was ready to drop .
Once the diagnosis of H1N1 was decided upon Nikki and the new baby couldn’t be put at risk, my mum 90 , couldn’t take a chance with her and my husband could only come for an hour or so. He hated hospitals, Chris knew that and we knew if he was there holding vigil with me Chris would KNOW how much danger he was in , so it had to be…
” Oh Dad is coming in for a visit”
There I was alone in that waiting room from hell. The Lombardis, as Sue stated “will circle around Angela” , I definitely was excluded from that circle. And they did numbers of them all chatting and laughing and living. It was so hard .
Do you pray Loraine? You aren’t Catholic are you , what plans are you making ? Do you like Tacos?
However, when Sue was present it was doubly hard, she used to do and say the most inane things and it took everything I had to keep my mouth shut.
One particular day I got summoned by the nurse in ICU.
Is Chris’s mother in law attached to a medical practice?
No , why would you ask that ?
You will have to talk to your daughter in law , please. We know SHE is a resident and the nurses don’t want to make a big deal, but her mother is making a nuisance of herself, going to talk to the nurses and looking it at the other patients and giving advice.
Also, your daughter in law’s friend has come in and changed the setting the oxygen machine ( she was also a resident) and we have had to reset it, that can’t happen.
That day I had to mention to one of the sisters that
“Sue was being Sue and causing concern in the ICU and could someone please tell her not to continue in that vein” “
THAT did not go down very well. They shot the messenger! Talk went to a minimum but actually that was a blessing in disguise.
Even the Clinic security made the “Mother of my Hell “ prove she wasn’t a homeless person camping out in the waiting room with sleeping bags , pillows and food . Why they didn’t get themselves a room if they were going to continue to “circle Angela” I broached the subject: ,
Sue said Oh no! far too expensive!!!!!!”
Well there is plenty in the account from the fundraiser isn’t there at least 35 thousand, you could use that , after all that is why we had that fundraiser . Oh and by the way can I have the list of donors for Thank Yous. I have Nikkis list and mine but I know there were so many others!
I couldn’t credit her answer and I was perplexed :
Sue Lombardi –
“We don’t want people to know the full amount – we aren’t publicizing that. I have opened a safe deposit box for the cash – Angela has access” How do you know the amounts ?Obviously Chris told me , why wouldn’t he? He was very grateful to everyone that donated.
I said to Chris after one particularly stressful evening
Oh ! Chris you owe me lunch for this, being in that holding area with them.
( having to put up with them and trying to keep my mouth shut – not an easy thing for me, . We certainly had nothing in common except what I supposed was the love of our children. and Chris knew how hard it was 🙂 )
and a lobster lunch at that.
He smiled and moved his oxygen mask and said :
” keep them out of here and I will buy you dinner too !”
Most days and nights bled into one another . I had no clue as to the time of day of day of the week. I would surface for a bit and memory comes in fragments of those days of crisis. It is only as I write some flash of a forgotten memory of those days in no particular sequence come back. ……. and my gut tightens , a sick feeling comes into my soul, an ache for my child overwhelms me once more .
To be continued……..
Dec 3rd – NO LIMITS- Chapt 23- Chris Ritchey
NO LIMITS
Forward: https://thatwoman.wordpress.com/2020/01/02/jan-3rd-no-limits-the-forward-chris-ritchey/
Chapter One :https://thatwoman.wordpress.com/2020/02/03/feb-3rd-no-limits-chapter-1-chris-ritchey/
Chapter Two:https://thatwoman.wordpress.com/2020/03/03/march-3rd-no-limits-
Chapter Three: https://thatwoman.wordpress.com/2020/04/03/april-3rd-no-limits-chapt-3-chris-ritchey/
Chapter Four: https://thatwoman.wordpress.com/2020/05/03/no-limits-chapter-4-chris-ritchey/
Chapter Five: https://thatwoman.wordpress.com/2020/06/03/june-3rd-no-limits-chapter-5-chris-ritchey/
Chapter Six: https://thatwoman.wordpress.com/2020/07/03/july-3rd-no-limits-chapter-6-chris-ritchey/
Chapter Seven: https://thatwoman.wordpress.com/2020/08/03/august-3rd-no-limits-chapter7-chris-ritchey/
Chapter Eight: https://thatwoman.wordpress.com/2020/09/03/sept-3rd-no-limits-chapter-8-chris-ritchey/
Chapter Nine: https://thatwoman.wordpress.com/2020/10/03/oct-3rd-no-limits-chapter-9-chris-ritchey/
Chapter Ten: NO LIMITS- Nov 3rd- Chapter 10- Chris Ritchey | That Woman’s Weblog (wordpress.com)
Chapter Eleven: NO LIMITS-Dec. 3rd- Chris Ritchey- Chapter 11 | That Woman’s Weblog (wordpress.com)
Chapter Twelve: NO LIMITS-Jan 3rd- Chris Ritchey- Chapter 12 | That Woman’s Weblog (wordpress.com)
Chapter Thirteen : NO LIMITS- FEB 3rd- Chris Ritchey- Chapter 13 | That Woman’s Weblog (wordpress.com)
Chapter Fourteen: March 3rd, NO LIMITS, Chapter 14- Chris Ritchey | That Woman’s Weblog (wordpress.com)
Chapter Fifteen: April 3rd- No Limits- Chapter 15- Chris Ritchey | That Woman’s Weblog (wordpress.com)
Chapter Sixteen: May 3rd – No Limits- Chapter 16- Chris Ritchey | That Woman’s Weblog (wordpress.com)
Chapter Seventeen: June 3rd-No Limits-Chris Ritchey-Chapter 17 | That Woman’s Weblog (wordpress.com)
Chapter Eighteen: July 3rd – NO LIMITS- Chapter 18-Chris Ritchey | That Woman’s Weblog (wordpress.com)
Chapter Nineteen: https://thatwoman.wordpress.com/2021/08/03/august-3rd-no-limits-chapter-19-chris-ritchey/
Chapter Twenty: https://thatwoman.wordpress.com/2021/09/03/september-3rd-no-limits-chapter20-chris-ritchey/
Chapter Twenty One: https://thatwoman.wordpress.com/2021/10/03/october-3rd-no-limits-chapter-21-chris-ritchey/
Chapter Twenty Two : https://thatwoman.wordpress.com/2021/11/03/nov-3rd-no-limits-chapter-22-chris-ritchey/
OHIO
I was emotionally exhausted after the flight home from Houston although, I was thrilled the news was good but terrified at what I was seeing with my own eyes as to how Chris “looked”. to these mother’s eyes.
The “plan” was Chris and Angela would drive back stopping at various sights along the way and be back for a few days in Ohio and then the return drive to Houston for ongoing treatment.
I drew Angela aside and begged Angela:
‘Please , please leave the truck here and fly back here, the Doctor at MD Anderson didn’t think it wise for Chris to do that journey, can’t you talk with him he will listen to you if YOU say you want to fly back!
Angela’s quiet reply: because Angela never spoke loudly
Chris, will be just fine driving back to Ohio.” We will take it easy
It was going to be a lot of driving but I hoped that once Chris was home home Nikki and I could persuade Chris to fly back and we would rent him a vehicle.
He was taking so many drugs, not eating and to counter the effects I found he was taking exlax like candy. It was just 36 hours later after I left Houston I received a call from Angela saying they were stopping for the night in Jackson Mississippi
It was later the next day I received another call, she had had to take Chris to the local ER for fluids, he had collapsed! The Doctors there wanted to admit him but they declined saying they wanted to get back to the Clinic. I said
“Angela you can’t continue driving if he is that ill, book a flight, you have the money from the fundraiser that will will cover that cost , can you drive the truck to the airport and park it? I will have his dad and uncle fly down and drive the truck back, that will put Chris’ mind at rest re the truck .
Angela “What about the keys we can’t leave them , can you pick up the spare set from my mother at the bank?
I said I would .
Arrangements were made . I went that afternoon to the bank where Sue Lombardi worked to pick up the keys. She walked acrosse the lobby with a silly grin on her face
“Tim and I will pick up Chris and Angela and take them back to their apartment “
I was fuming underneath knowing I should have pushed more to stop that drive back. I was barely able to speak more than two or three words incase I said something that couldn’t be taken back.
Her daughter the Doctor, had she no common sense? Side trips to Memphsis indeed when her husband was downing pain pills for which she was getting the prescriptions . She had to see how his driving was terrible and anger flare ups in traffice in Texas. More than once seeing his “road rage” I would remind him
Chris, these guys have guns on their trucks and you calling them “dick head” and driving like you are , you are going to get me shot…
I dropped off my husband and brother in law at the airport , drove home and waited .
Finally Chris called me from the Lombardi’s car and said they had been picked up and would call me the next day.
He did call me the next day but not from the apartment , he was back in hospital at South Pointe, where Angela was a resident and getting those prescriptions filled that I was worried about.
It was an I am OK mum and getting fluids sort of call. I told him his truck was nearly back in Ohio , his dad and uncle had driven straight through and they would leave his truck at it at Nikkis,as it was safer there will all the items they had had to leave.
I was surprised a half an hour later when Chris called back, the inlaws and Angela had left and he said he was alone and wanted to talk to me .
“Mum, I am appreciative of everything you did in Texas
I said:
I know that Chris you don’t have to thank me
He continued :
But I was so mean to you
referring to the altercation we had when Angela had lied to him and he thought Nikki and I were excluding her .
SEE Chapter 17 of No Limits
I responded :
Chris I am your mother , you are allowed to be mean to me , I understand what you are going through , the lack of control over your own life , the anger – it is OK I love you !
He said :
You were right I should have stayed in Houston, I shouldn’t have come back to the apartment….. there are so many bad memories – I should’ve stayed in Houston and I love you mum I should’ve listened
I said
Chris, it is no good dwelling in hindsight….. we will get through this I will see you Friday . I love you
As always he said
”
I love you too”
I hung up and burst into tears…..
I can still hear his voice in my head , I can bring those words to the fore of my memory as if he were speaking them to me in the present time and day.
That is probably because it was the last time I ever heard him say those words out loud…… a mother clings to every bit of her child and his life and voice that she can.
Note as I sit and type this day of December 3rd 2021- it is the anniversary of his passing and so I am defeated I have to leave the keyboard and the desk and release the pain and heartache.. I can write no more today the emotional incontinence that overwhelms on this day cripples and crushes my very core. … until the next chapter……. and Chris I still love you with all my being……
Nov 3rd-No LIMITS-Chapter 22-Chris Ritchey
Author’s Note.. It wasn’t planned this way but as I reach the 1st ending of this documentation of my son before he passed . the times of publication these chapters are coinciding with times of his ending. I have said before this is absolutely crushing and painful to write as I have to relive those moments and memories. but to get to the “after” I have to document the “before” . As I get closer to ” loss of all hope memories ” I have to step away for hours and sometimes days as it is gutting to go through again and a drain on my physical and mental being..
NO LIMITS
Forward: https://thatwoman.wordpress.com/2020/01/02/jan-3rd-no-limits-the-forward-chris-ritchey/
Chapter One :https://thatwoman.wordpress.com/2020/02/03/feb-3rd-no-limits-chapter-1-chris-ritchey/
Chapter Two:https://thatwoman.wordpress.com/2020/03/03/march-3rd-no-limits-
Chapter Three: https://thatwoman.wordpress.com/2020/04/03/april-3rd-no-limits-chapt-3-chris-ritchey/
Chapter Four: https://thatwoman.wordpress.com/2020/05/03/no-limits-chapter-4-chris-ritchey/
Chapter Five: https://thatwoman.wordpress.com/2020/06/03/june-3rd-no-limits-chapter-5-chris-ritchey/
Chapter Six: https://thatwoman.wordpress.com/2020/07/03/july-3rd-no-limits-chapter-6-chris-ritchey/
Chapter Seven: https://thatwoman.wordpress.com/2020/08/03/august-3rd-no-limits-chapter7-chris-ritchey/
Chapter Eight: https://thatwoman.wordpress.com/2020/09/03/sept-3rd-no-limits-chapter-8-chris-ritchey/
Chapter Nine: https://thatwoman.wordpress.com/2020/10/03/oct-3rd-no-limits-chapter-9-chris-ritchey/
Chapter Ten: NO LIMITS- Nov 3rd- Chapter 10- Chris Ritchey | That Woman’s Weblog (wordpress.com)
Chapter Eleven: NO LIMITS-Dec. 3rd- Chris Ritchey- Chapter 11 | That Woman’s Weblog (wordpress.com)
Chapter Twelve: NO LIMITS-Jan 3rd- Chris Ritchey- Chapter 12 | That Woman’s Weblog (wordpress.com)
Chapter Thirteen : NO LIMITS- FEB 3rd- Chris Ritchey- Chapter 13 | That Woman’s Weblog (wordpress.com)
Chapter Fourteen: March 3rd, NO LIMITS, Chapter 14- Chris Ritchey | That Woman’s Weblog (wordpress.com)
Chapter Fifteen: April 3rd- No Limits- Chapter 15- Chris Ritchey | That Woman’s Weblog (wordpress.com)
Chapter Sixteen: May 3rd – No Limits- Chapter 16- Chris Ritchey | That Woman’s Weblog (wordpress.com)
Chapter Seventeen: June 3rd-No Limits-Chris Ritchey-Chapter 17 | That Woman’s Weblog (wordpress.com)
Chapter Eighteen: July 3rd – NO LIMITS- Chapter 18-Chris Ritchey | That Woman’s Weblog (wordpress.com)
Chapter Nineteen: https://thatwoman.wordpress.com/2021/08/03/august-3rd-no-limits-chapter-19-chris-ritchey/
Chapter Twenty: https://thatwoman.wordpress.com/2021/09/03/september-3rd-no-limits-chapter20-chris-ritchey/
Chapter Twenty One: https://thatwoman.wordpress.com/2021/10/03/october-3rd-no-limits-chapter-21-chris-ritchey/
Houston Nights and days – a blur
The days after the fundraiser back in Ohio were tinged with gratitude to those who were so generous and writing thank you’s to those I knew had donated. Chris and I duly went about the routine of tests , bloodwork and infusion. One such visit brought out the Physicans Assistant , she was concerned that Chris was scheduled for the HINI flu shot. I hadn’t realized that Angela had set that up via Cleveland. Chris had never had a flu shot of any kind and I was unsure of his reaction to it. Apparently the PA was concerned as well, but Chris said :
“My wife has arranged it so I will take it”
I sat without saying a word in a fake leather vomit coloured chair holding my breath. I was being pummeled with thoughts
” don’t let him get this shot , it is not a good thing , something will happen”
all the while arguing with myself .
“If you say something and he doesn’t get the shot and he gets HINI with his system so compromised then you , who are not medically qualified in anyway, you could cause him worse issues”
So I said nothing , how I wish I had had the guts to tell him no! Hindsight is 20/20
Chris was always so tired after the infusion which he also had that day . We came home he ate a little, went to the bedroom , called Angela and then filled the hot water bottles , took pills and slept.
I heard him during the night running the hot baths that almost scalded his skin to ease the pain he was in. I lay awake wishing there was more I could do.
He finally slept and in the morning I went into the bathroom to collect the wet towels to wash and on the floor were soaking wet T’ shirts. I flashed back to when he was first diagnosed with Hodgkin’s and the “night sweats” that soaked his T shirts, pillows and bedding . Something was wrong , so very wrong and it was so sudden.
I wanted Chris to call the Dr. but he wouldn’t as he was scared they would take him off the trial . I wondered could it be a reaction to the H1N1 shot, it came on so quickly . The next couple of days saw him getting worse. The lethargy the pain, not wanting to eat and running a temperature.
I had already booked Angela a flight for Nov 3rd as Chris was meeting with the “team” to see how the SGN 35 was working for him on November 5th.
I was so worried and out of my depth , I called Angela and said Chris is not looking at all well and I am very worried , barely eating and he won’t go to the Doctor or call. Angela rebooked her flight and came down the day before Hallowe’en.
Chris was naturally pleased to see her. She never mentioned to me if she thought he looked worse but in those few days I noticed it so she had to have noticed not seeing him for a couple of weeks . His eyes seemed sore and red rimmed , his skin a strange pallor tinged with grey. .
Hallowe’en, we were invited to JD’s and Karen’s for supper and to hand out candy. Chris laughed and joined in the conversation, Angela would jump up and hand out the candy and whilst everyone’s focus was on the kids and costumes I would watch as Chris quietly would reach into his top shirt pocket and pop another pill. I knew my son’s strength but I also knew he was dealing with a lot of pain . Angela had brought down some more medication from Cleveland and I worried about the amount and “what” Chris was taking but once again I said nothing.
Chris barely ate in the next few days. He took Angela and I to the British shop ( he had his truck in Houston now). She and I went in to buy Christening gifts for Gavin , Nikki’s new little baby . Chris couldn’t get out of the truck, said he just didn’t want to shop , although previously when he had taken me he loved going in there . Again, I worried.
On November 4th, the night before meeting with the team of SGN 35 we went back to the “Black Labrador Pub” to meet JD and Karen . Chris had wanted to thank them for all their hospitality and friendship whilst we had been in Texas. He loved the Ranch and lost himself in normalcy on those excursions to that ranch.
He told me that when he was well he was going to buy some land and get Gavin a horse ...
Chris nibbled at a salad , not at all like him and JD chastised me because Chris and Angela were going to drive back to Cleveland stopping on the way, if the news was good. How my son who was having a hard time driving 30 minutes to the Black Labrador Pub , how the hell was he going to drive 1,300 miles to Cleveland. JD, said
He will be fine “let go of the apron strings mom” …
November 5th :
We waited in a little office, Chris once again behind his sunglasses , Angela went to the restroom I sat once again near the door scared to breather. The Physician’s Assistant came in , and if there is one thing I know it is body language and she was happy. The Doctors came in and gave the good news … the SGN 35 was working all was good.
I breathed for the first time in days. And then the tag line ” the only thing was there was a slight “crackling” of the bottom half of the lungs that they were concerned about . Angela spoke up Oh she would have the Dr. at the Clinic check it out, he had had the flu shot . That seemed to satisfy them and they gave Chris a strength test and Ok’d him for another infusion before he left for Cleveland.
The first thing Chris did was to phone JD, whilst I called Nikki , who was sick with worry and told her the results were good. But she said
can’t he leave the truck there with JD and Karen and fly home
No Angela wanted to go to Nashville and make a vacation of it going home. They had to be back in 10 days . I flew home that afternoon .
To be continued…………….
August 3rd- NO LIMITS- Chapter 19- Chris Ritchey
Forward: https://thatwoman.wordpress.com/2020/01/02/jan-3rd-no-limits-the-forward-chris-ritchey/
Chapter One :https://thatwoman.wordpress.com/2020/02/03/feb-3rd-no-limits-chapter-1-chris-ritchey/
Chapter Two:https://thatwoman.wordpress.com/2020/03/03/march-3rd-no-limits-
Chapter Three: https://thatwoman.wordpress.com/2020/04/03/april-3rd-no-limits-chapt-3-chris-ritchey/
Chapter Four: https://thatwoman.wordpress.com/2020/05/03/no-limits-chapter-4-chris-ritchey/
Chapter Five: https://thatwoman.wordpress.com/2020/06/03/june-3rd-no-limits-chapter-5-chris-ritchey/
Chapter Six: https://thatwoman.wordpress.com/2020/07/03/july-3rd-no-limits-chapter-6-chris-ritchey/
Chapter Seven: https://thatwoman.wordpress.com/2020/08/03/august-3rd-no-limits-chapter7-chris-ritchey/
Chapter Eight: https://thatwoman.wordpress.com/2020/09/03/sept-3rd-no-limits-chapter-8-chris-ritchey/
Chapter Nine: https://thatwoman.wordpress.com/2020/10/03/oct-3rd-no-limits-chapter-9-chris-ritchey/
Chapter Ten: NO LIMITS- Nov 3rd- Chapter 10- Chris Ritchey | That Woman’s Weblog (wordpress.com)
Chapter Eleven: NO LIMITS-Dec. 3rd- Chris Ritchey- Chapter 11 | That Woman’s Weblog (wordpress.com)
Chapter Twelve: NO LIMITS-Jan 3rd- Chris Ritchey- Chapter 12 | That Woman’s Weblog (wordpress.com)
Chapter Thirteen : NO LIMITS- FEB 3rd- Chris Ritchey- Chapter 13 | That Woman’s Weblog (wordpress.com)
Chapter Fourteen: March 3rd, NO LIMITS, Chapter 14- Chris Ritchey | That Woman’s Weblog (wordpress.com)
Chapter Fifteen: April 3rd- No Limits- Chapter 15- Chris Ritchey | That Woman’s Weblog (wordpress.com)
Chapter Sixteen: May 3rd – No Limits- Chapter 16- Chris Ritchey | That Woman’s Weblog (wordpress.com)
Chapter Seventeen: June 3rd-No Limits-Chris Ritchey-Chapter 17 | That Woman’s Weblog (wordpress.com)
Chapter Eighteen: July 3rd – NO LIMITS- Chapter 18-Chris Ritchey | That Woman’s Weblog (wordpress.com)
Back to Houston:
The family all gathered back at Nikki’s on October 3rd. Jim and Chris were leaving early in the morning on the 4th. Misty, Chris’s dog who now lived with us, due to the situation we all found ourselves dealing with , came along to Nikki’s to see her master. She was a loopy dog and reminded me of Dino of the Flintstones . However, with Chris she was all business, a totally different animal , obeyed him and loved him. To see her reaction when she saw Chris that day brought tears- I dare not shed -to my eyes . Chris and his dad and Misty , who wouldn’t leave his side, walked into the woods behind Nikki’s. I didn’t follow, my husband hadn’t had many alone times with Chris in the preceding months , I instinctively felt I should not follow.
We were loathe to leave that day. Somehow my gut told me this was the last time we would all be together . Photos were taken, laughter was tried. Gavin, his nephew, was now nearly 8 months old , Chris had missed those early months and I so hoped he would be there as Gavin grew. He wanted to be a great uncle to Gavin take him four wheeling and after riding the horses in Texas decided he would buy some land and get Gavin a horse, or at least a pony. I wanted that to happen with everything that was in me. Chris , bought Gavin a Texas belt buckle, it was almost as big as him.
Jim and Chris were on the road from Cleveland to Houston stopping every so often to take in those sights that Chris wanted to see. They also arranged to go wild boar hunting on the way and stop off at a couple of shooting ranges.
Although they tried to have a normal “man-cation” Jim told me when they arrived back in Houston how worried he was. Chris, was in a lot of pain and was popping pills the whole journey. Jim wasn’t sure what they were but that I should try and see if I could take a look at the medication bottles.
I had arrived back in Houston on the Saturday morning. I had just arrived when the phone rang and it was JD’s secretary. JD had once again been there for this family. His secretary made arrangements with me to pick me up, go to lunch and pick up staples I would need until Jim and Chris arrived back on the Monday. Bless her heart , we went to an English pub-like restaurant. The Black Labrador Pub.
The food was delicious and I was at my ease . We then went to a British shop also in Houston where I carted off “English sausages, tea bags, favorite biscuits, ( cookies) and snacks a quick stop to a convenient store for bread and milk etc. I was set for the next couple of days until Jim and Chris arrived. Thinking about it I am not sure what I would have done for temporary supplies over that weekend…. called for Pizza I suppose.
I had just put the groceries away when Jim called they would be arriving at the apartment in a couple of hours. They decided to cut the “man-cation” short. After they arrived and Chris was showering , Jim told me Chris was not doing well the drive had really taken it out of him, the pills, and he could see Chris , although he didn’t say anything, was in pain. They had a supper of omelets and English sausages that evening , I know Jim “suffered” the sausages, as they are somewhat bland compared to American sausages. Chris, I don’t think cared what he was eating. He just wanted to sleep so Jim and I went to do a grocery shop. Chris looked awful , dark circles under his eyes, the trip and driving certainly had taken its toll on his health and any energy he had.
Later that night I was able to look in Chris’s shaving bag for his medication . There it was a number of bottles of Oxycodone 30 mg. I know he didn’t get it in Houston as the Doctors treating him wouldn’t prescribe it , especially when he was filling out the forms weekly stating his pain was at level 3.
I couldn’t ask him why he had them without letting him know I had spied on him. I looked at the label and recognized the name of the Dr. at South Pointe Hospital where Angela was doing her residency. I was in a bad position and didn’t know what to do. I would just keep a closer eye on him and hope to hell these “medical marvels knew what they were doing”
This medication is used to help relieve moderate to severe pain. Oxycodone belongs to a class of drugs known as opioid analgesics. It works in the brain to change how your body feels and responds to pain.
Since they were two days adrift Jim changed his flight back to be with Nikki and the baby. It was agreed I would keep a close eye on Chris , as much as I could.
Once again, we were on the treadmill of tests, infusions check ups . His heart rate had been high a steady 114 and he had had a procedure done but they thought his heart was alright considering what it had been through in the previous months. I was scared they would show the drug ( oxycodone) was in his system when they did the tests. No one said anything but he was taking quite a few in a 24 hour period. He would keep tablets in his pocket and surreptitiously take a couple. As the days went on I notice the hand going into that pocket more and more. I knew categorically by taking those drugs it was tantamount to being taken off the trial. The trial that was his last chance of a “cure” . I had to keep quiet and watch……
To be continued …
June 3rd-No Limits-Chris Ritchey-Chapter 17
Forward: https://thatwoman.wordpress.com/2020/01/02/jan-3rd-no-limits-the-forward-chris-ritchey/
Chapter One :https://thatwoman.wordpress.com/2020/02/03/feb-3rd-no-limits-chapter-1-chris-ritchey/
Chapter Two:https://thatwoman.wordpress.com/2020/03/03/march-3rd-no-limits-
Chapter Three: https://thatwoman.wordpress.com/2020/04/03/april-3rd-no-limits-chapt-3-chris-ritchey/
Chapter Four: https://thatwoman.wordpress.com/2020/05/03/no-limits-chapter-4-chris-ritchey/
Chapter Five: https://thatwoman.wordpress.com/2020/06/03/june-3rd-no-limits-chapter-5-chris-ritchey/
Chapter Six: https://thatwoman.wordpress.com/2020/07/03/july-3rd-no-limits-chapter-6-chris-ritchey/
Chapter Seven: https://thatwoman.wordpress.com/2020/08/03/august-3rd-no-limits-chapter7-chris-ritchey/
Chapter Eight: https://thatwoman.wordpress.com/2020/09/03/sept-3rd-no-limits-chapter-8-chris-ritchey/
Chapter Nine: https://thatwoman.wordpress.com/2020/10/03/oct-3rd-no-limits-chapter-9-chris-ritchey/
Chapter Ten: NO LIMITS- Nov 3rd- Chapter 10- Chris Ritchey | That Woman’s Weblog (wordpress.com)
Chapter Eleven: NO LIMITS-Dec. 3rd- Chris Ritchey- Chapter 11 | That Woman’s Weblog (wordpress.com)
Chapter Twelve: NO LIMITS-Jan 3rd- Chris Ritchey- Chapter 12 | That Woman’s Weblog (wordpress.com)
Chapter Thirteen : NO LIMITS- FEB 3rd- Chris Ritchey- Chapter 13 | That Woman’s Weblog (wordpress.com)
Chapter Fourteen: March 3rd, NO LIMITS, Chapter 14- Chris Ritchey | That Woman’s Weblog (wordpress.com)
Chapter Fifteen: April 3rd- No Limits- Chapter 15- Chris Ritchey | That Woman’s Weblog (wordpress.com)
Chapter Sixteen: May 3rd – No Limits- Chapter 16- Chris Ritchey | That Woman’s Weblog (wordpress.com)
Houston Days and Nights- continued
I can’t begin to put into words how stressful it was for both of us , those days and nights. Chris and myself “pretending everything was normal “ skirting around issues we both knew were uppermost on our minds. Wanting to talk but not wanting to say out loud our fears, maybe that way we could hope a little longer.
Not everything was rosy , mother and son facing a terrible unknown locked together in a small apartment. .Chris tired and in pain. I knew it wasn’t me he wanted with him. I found a note that Angela had left behind in a desk drawer, Chris was hurt and disappointed she was leaving Texas and it was me that would be with him.
I knew my presence in Texas only confirmed that he was dying of Cancer, I was a constant reminder that he needed a care giver ( although you felt he could manage on his own to deal with side effects of a trial drug and Cancer) he would’ve preferred that it would have been his wife, not his mother to be with him.
As a wife, I couldn’t have left my husband knowing that he was living under a death sentence and had been since August 29th -but that was Angela’s choice.
I could never understand Angela’s way of thinking, but tried to make allowances , she too was dealing with a terrible situation in her young married life. I couldn’t believe that even during this awful, hopeful , chaotic time she would still try to manipulate a situation and lie as she had done with Nikki and Chris and the engagement ring episode.
Chapter Three :
March 3rd – NO LIMITS- Chapt 2 – Chris Ritchey | That Woman’s Weblog (wordpress.com)
October 8th: One month in and the façade came crashing down, we were due to come back to Cleveland for a few days . I made arrangements to still keep the apartment as they were so difficult to find. To me, it was worth paying for it to be empty rather than going through the hassle of moving and or finding something else.
This one particular day we did have that heart to heart that horrible “truth revealing ” argument that shouldn’t have happened!
In the hours before that argument came to a head Chris and I had gone to get his prescriptions- he was tired and in a lot of pain- I said maybe I could pop into Borders ( which was across the way)
I would like to buy the new Dan Brown novel-
I could see he was impatient to get back so I didn’t push it. His mood was dour and his eyes narrowed and lips ( always a sign of anger) were tight. He had been on his cell phone to his wife, Angela, as we waited for his prescriptions. He drove back to the apartment in utter silence . He immediately went out by the pool in the apartment – I could see him sitting not moving. I decided he needed space -then Nikki called and said that Chris had hung up on her and was very angry.
“but leave him alone mum” he doesn’t want to talk.
I knew my son. I knew whatever it was would fester until he exploded – he was so much like me.
I went to the pool- he said
“I don’t want to talk”
“You don’t have to -you can listen- I need to talk to you”
I was never a crier before Hodgkin’s I was a fighter, a do-er – this blubbering fool that I have become is down to the helplessness and hopelessness that took away happiness. Chris never knew me as a “crier” before his illness – so as the tears fell he sat silently as I told him
Chris, being a mother of a son is so much harder than you can imagine – I have tried so hard to give you and Angela the space you both need in this terrible time. I KNOW Chris, that you are feeling that you have no control over what is happening to your body and your life- I know you need some control , another reason why I have tried so hard to stand aside- you didn’t need me in the mix as well -But I am going to honestly tell you now -if this had been Nikki and not you I would have handled things so much differently – just as Nikki is my child I would not have sat back and taken a back seat to decisions as I have with you and Angela.
You see when a son marries he brings into his life another woman- it is very difficult in the best of circumstances for a mother to sit back and watch decisions being made that in some cases I did not agree with in a normal situation- this terrible situation we find ourselves all thrust into makes it doubly hard. But I have deferred to you both and to her “medical expertise” with this obscenity of Hodgkin’s that has engulfed us. It has been one of the hardest things in the world for me not to interfere or to put in my two cents. There have been times Chris when I have doubted my own abilities and lost confidence in myself – I have gone against my own gut feelings and yet there is a voice that tells me to still be protective of you .
I have tried to give you both your space – to be there when needed and to shut up for your sake when I was totally against some decisions. I have tried for your sake because I love you so much I would do anything and sacrifice anything for your health and happiness.
I don’t know the reason why you are so angry with Nikki and I but you have to know neither of us would intentionally do anything to hurt you . We have tried to put you first in all our thinking – We love you always have and always will. “
With that I left the poolside and went back into the apartment. Chris followed a few minutes later and then it all came out ( as I knew it would) an argument and accusations the finding out of lies that were told
“we had excluded Angela in decision-making as to driving the truck back to Texas.”
He wanted to drive his truck back . I told Angela in an email ( which I have ) that it wasn’t a good idea him driving, he was having difficulty due to the side effects of SGN35 and I thought she should know since obviously you had been in Ohio since Sept 10th and hadn’t see the problems he was having even driving to Target let alone 1,700 miles.
I never received any response from Angela to my emails ( which I still have)
Chris was furious with me and Nikki
“You didn’t include Angela”
Me:
“What are you talking about – I included Angela”
CHRIS No you didn’t !
Me.
Would you like to see the emails?
CHRIS: “
Yes! I would”
Me.
So you are calling me a liar ?
CHRIS:
” Don’t give me that F…. shit if I want to see the email then I must be calling you a liar. There aren’t any emails Angela doesn’t lie!
I then pulled up the emails…. all of them sent to Angela –
ME:
Look at the dates and times Chris … now tell me I’M the one that lied…… she says here she wants to talk to you about it did she?
CHRIS:
Well she has been busy
ME:
she talks to you 4 or 5 times a day she couldn’t mention it but she could let you believe that Nikki and I didn’t include her?
He broke down cried….. my wonderful strong brave son reduced to tears not by cancer that night but by lies and manipulation
She, the loving wife and bride did that to him by trying to lie by omission … not me ….I held him and he said:
“did you ever think that I want to see something of the country if I am going to be dead in two years.”
My heart broke for him – I cried and we held on tight to each other and I said
Chris none of us know when we will die, the way you are driving lately we could end up dead on the way to hospital tomorrow ….
he laughed a little and I said:
Chris, I know the SGN35 is working, the lump on your neck isn’t visible and you haven’t coughed since Sept 21st.
That night he went and checked the lumps on his neck for the first time in weeks. Chris called Nikki back, she and Jim had talked and Jim would take time off work and drive back to Houston with Chris in his truck . He told Nikki he wasn’t really angry with her, just at the hopelessness and helplessness he was feeling. Once again Chris and sister reached out beyond the miles to each other.
After talking to Nikki he said he wanted to take a drive, we still had the hire car. He left- I wasn’t sure where and I was worried- he was in so much pain and on so many pills –
A little while later he came back ….. he walked in patted me on the head as a I sat in the chair and handed me a book as he walked to the bedroom – The Lost Symbol by Dan Brown…………
NO LIMITS-Jan 3rd- Chris Ritchey- Chapter 12
ED NOTE: It has been one year since I started this journey of serialization of my book/posts on my son’s, Christopher Ritchey, journey. I had thought, initially, to intersperse the posts as usual with other posts, pertaining to life, Lorain, crime and politics. I have found I just do not have the energy and the apathy is all consuming . I have come to the sad realization what I think and my passions on those subjects just don’t matter and don’t make a bit of difference in the real world. However, my journey with NO LIMITS continues, as hard as these chapters are to write and reliving the journey of hope and no hope there is a light at the end of this journey . I will continue to tell of our journey with transparency and truths.
No Limits – The Book
Forward: https://thatwoman.wordpress.com/2020/01/02/jan-3rd-no-limits-the-forward-chris-ritchey/
Chapter One :https://thatwoman.wordpress.com/2020/02/03/feb-3rd-no-limits-chapter-1-chris-ritchey/
Chapter Two:https://thatwoman.wordpress.com/2020/03/03/march-3rd-no-limits-
Chapter Three: https://thatwoman.wordpress.com/2020/04/03/april-3rd-no-limits-chapt-3-chris-ritchey/
Chapter Four: https://thatwoman.wordpress.com/2020/05/03/no-limits-chapter-4-chris-ritchey/
Chapter Five: https://thatwoman.wordpress.com/2020/06/03/june-3rd-no-limits-chapter-5-chris-ritchey/
Chapter Six: https://thatwoman.wordpress.com/2020/07/03/july-3rd-no-limits-chapter-6-chris-ritchey/
Chapter Seven: https://thatwoman.wordpress.com/2020/08/03/august-3rd-no-limits-chapter7-chris-ritchey/
Chapter Eight: https://thatwoman.wordpress.com/2020/09/03/sept-3rd-no-limits-chapter-8-chris-ritchey/
Chapter Nine: https://thatwoman.wordpress.com/2020/10/03/oct-3rd-no-limits-chapter-9-chris-ritchey/
Chapter Ten: NO LIMITS- Nov 3rd- Chapter 10- Chris Ritchey | That Woman’s Weblog (wordpress.com)
Chapter Eleven: NO LIMITS-Dec. 3rd- Chris Ritchey- Chapter 11 | That Woman’s Weblog (wordpress.com)
Chapter 12 : The Trial and Tribulations
The days following the biopsy found me sitting by the phone. I knew in my heart of hearts the news was awful but I clung to the hope they could be wrong, it had been known. I knew it was a foolish hope but you grab anything you can to hold onto.
Chris came to stay with Nikki that last weekend in August . He was so pale and quiet. I went over bearing his favourite food . Nikki told me he had been out in the woods for hours on his four wheeler , alone and not wanting to talk to anyone.
We waited, and when he came in I saw my son trying to put on a brave face. We all tried to act normally I sat with him at the kitchen counter , trying to eat . He was , for my sake, trying to force the food down. A friend of my son-in-law, oblivious to the situation, came in talking about the hunting season to come and new equipment he was planning to purchase. It was so normal and so damned surreal. Chris left the kitchen , I knew he was thinking
I probably won’t be here for that season.
I waited, trying to swallow my scream. Nikki came into the kitchen and said ”
Mum, Chris is not good, you had better come upstairs
I followed her up to the guest room, also now known as Chris’ room. He was laying on top of the bed and had broken down, the fear, the hope, the fact he would die crashing down on him and he could no longer put on a brave face that day .
I didn’t know what to say or do . I felt totally helpless. I sat on the bed next to him and Nikki was on the other side and we huddled and cried together. After a while I said , not knowing really what I was saying
“The three of us like this, Chris , is probably Angela’s worst nightmare”
Finally a weak smile and I said to my son , almost believing it myself
Chris , I will move heaven and earth to find another way another treatment, even if it means going to Germany or Europe
( I had heard they were making strides in Germany with Refractory Hodgkin’s)
Chris went back out into the woods riding and I went home to get on the computer and research.
I went home worried beyond reason for my beautiful son. The phone rang it was Angela’s mother Sue Lombardi wanting to know something inconsequential.
I said Sue:
I can’t even think about that know ( I can’t even remember what it was ) I have just left Chris and he is in a terrible state.
WELL! she said NOW YOU KNOW WHAT ANGELA HAS BEEN PUTTING UP WITH .
I couldn’t believe the sanctimonious, cold hearted cow!
PUTTING UP WITH , he is dying and scared and turning to his wife.. don’t talk to me .. putting up with ????
she said :
maybe putting up with wasn’t the right choice of words .
No! it wasn’t I am going now. I have things to of more importance to deal with
Finally Tuesday came when we once again sat in the offices of Dr. Pohlman. Chris sat alone on the side of the room, he had on his aviator glasses and cap was pulled down, as I looked at my son , knowing these glasses were his defense against the emotions he was feeling being shown to us. Nikki and I sat together and Angela drew up a chair on the opposite wall.
No-one said a word, and Dr. Pohlman of the diamond earing , white framed glasses , starched white coat and Italian leather shoes entered the room.
I was never keen on him , his bed side manner was decidedly lacking , but Chris liked him, why? I don’t know . As he sat down he looked at us , looked at the report and said coldly:
“This is bad, very bad. Your immune system, ( looking at Chris who had not moved but sat like stone) does not recognize the cancer. As your body deals with the good cells it is also helping the cancer cells . Another stem cell transplant , this would be a donor transplant in the hopes that their immune system would take over (allogeneic) is a remote possibility , but the insurance probably would not OK it.
Nikki , spoke ” well why can’t we try? “
Pohlman looked as if he had noticed her for the first time,
“and you are his sister? Well we could test you as a donor, are you willing “
“Of course I am willing I will do anything “
Polhman then continued.
Chris your only hope for a “cure” ( and yes he said the word “cure” )is to get on a trial for the drug SGN35 .
I finally found my voice,
how do we do that?
Unfortunately,
he said ( and this was the Tuesday morning after waiting for days for the results of the biopsy)
We.at the Clinic closed down the admittance to the trial of SGN 35 we have here on Friday and there are no more spaces available. I am not sure there are any openings around the country.
I was incredulous , this young man had been treated by them from the very beginning they KNEW the cancer had returned , they knew he would need options , they held out the hope again to only withdraw it coldly and clinically. I was so angry I couldn’t speak. Angela sat there ,
For god’s sake I thought Angela say something, you are a resident going to be a Dr. a member of the Cleveland Clinic yourself say something!!!!!This is your husband fight for him.
Angela said nothing, it was Nikki who spoke :
You are the Cleveland Clinic , the best in the nation, and you are telling me that Chris has been your patient all this time and you come in here offering nothing, just that a trial has closed, why didn’t you reserve him a space. You KNEW what those results were . and all you can say is “this is bad , very bad ” and there is a hope for a cure but not here . Then Where????? Don’t kick him to the curb, he is not a lab rat……
I am not sure Polhman was expecting that , I know Angela looked shocked. Polhman was the big shot specialist, I am sure she wasn’t happy with Nikki questioning him. Polhman turned his hands outward in a gesture of “oh well” said that he would send his assistant to set up a test for Nikki and he would have them see if there were any openings for SGN 35 in other states , but the trials had all closed on the Friday . He had other patients he had to see.
As they all walked out I asked what about Europe, Germany , he looked perplexed. He didn’t know and was that an option. I said:
anything is an option to save my son’s life and walked out.
The rest of the day found Angela looking into options, contacting people she had been in medical school with. Nikki on the computer and I called family in the medical community , who dealt with Cancer research . They put me in touch with Chicago and Columbus trials, talking to Doctors, setting up appointments.
Angela had the best options with MD Anderson Houston Texas . She sent Chris records through to a friend who said they would get them to Dr. Younes who was doing the trial.
Wednesday morning , Nikki and I picked up Chris from his apartment and we went to the Clinic for them to be matched for a allogeneic transplant. This done we went back to his apartment, not really speaking . We stayed for a little while, I was so worried about Chris , he had lost hope. I left Nikki and Chris in the living room and went to busy myself making the bed incase he needed to rest. Nikki came flying into the room. Dr. Younes’ PA from MD Anderson was on the phone and they had an opening for an appointment the next day in Houston.
The next afternoon at two o’clock . OMG!!! the thoughts tumbled and whirled through my mind. Take the appointment , call the airlines, Chris call Angela , where is my credit card , get them on a flight, book a hotel near the hospital , get some money . By eight o’clock they were boarding a flight to Houston….
the roller coaster ride was starting up again
to be continued……..
NO LIMITS-Dec. 3rd- Chris Ritchey- Chapter 11
No Limits- The book
Forward: https://thatwoman.wordpress.com/2020/01/02/jan-3rd-no-limits-the-forward-chris-ritchey/
Chapter One :https://thatwoman.wordpress.com/2020/02/03/feb-3rd-no-limits-chapter-1-chris-ritchey/
Chapter Two:https://thatwoman.wordpress.com/2020/03/03/march-3rd-no-limits-
Chapter Three: https://thatwoman.wordpress.com/2020/04/03/april-3rd-no-limits-chapt-3-chris-ritchey/
Chapter Four: https://thatwoman.wordpress.com/2020/05/03/no-limits-chapter-4-chris-ritchey/
Chapter Five: https://thatwoman.wordpress.com/2020/06/03/june-3rd-no-limits-chapter-5-chris-ritchey/
Chapter Six: https://thatwoman.wordpress.com/2020/07/03/july-3rd-no-limits-chapter-6-chris-ritchey/
Chapter Seven: https://thatwoman.wordpress.com/2020/08/03/august-3rd-no-limits-chapter7-chris-ritchey/
Chapter Eight: https://thatwoman.wordpress.com/2020/09/03/sept-3rd-no-limits-chapter-8-chris-ritchey/
Chapter Nine: https://thatwoman.wordpress.com/2020/10/03/oct-3rd-no-limits-chapter-9-chris-ritchey/
Chapter Ten: NO LIMITS- Nov 3rd- Chapter 10- Chris Ritchey | That Woman’s Weblog (wordpress.com)
THE HOPING TIME- CHAPTER 11
I was never one for organized religion. My brain always questioning as to the logic of faith. The stories written by men with agendas put in the form of a bible, or a book, tablets, writings, of whatever faith was in vogue, translations based on the politics of the day. But I prayed to an all-powerful, all knowing being commonly known in my society as God! I prayed every waking minute silently, and every night alone I prayed out loud. Please God take me not him, let him have his life and happiness. I did the deals parents do when they believe someone magical being can overturn a fate. I would have sacrificed myself on any alter “He” deemed needed to save my son.
Almost every church in Lorain had him on their prayer chain. Churches both Catholic and Protestant in England, Scotland, New Zealand Australia and Canada reached out to the heavens in my son’s name. Synagogues, Buddhists and Native Americans joined in with their prayers . I was sent so many little bottles of Holy Water from Lourdes, from pilgrimages made on behalf of Chris that I could have opened a market stall.
The thoughts kept going through my head.
“If there is a God as most seem to believe and he has no use for me and no reason to answer my prayers surely He can’t ignore the hundreds of people who are praying for Chris, and especially his wife and family a pillar of the Catholic Church. What about their prayers does my lack of faith tip the scale against hundreds of believers?
What about Chris what did he ever do in his young life to deserve this ? His sister what had she ever done, his father his Nana? The believers told me God has a plan? Well I don’t like his plan when the drug dealer who has raped and caused hell to his parents is walking around procreating and causing such turmoil why not him I asked why Chris? I did not get an answer and ten years on nothing has changed for the drug dealer except his vehicles.
June turned into July , I watched as my son started to look better from his chemical death. He grew stronger and I started to breathe a little better. Late July found him going on a 4 wheeler trip with the guys.
Normalcy and fun , so I thought. Dr. Pohlman had told him in June he wasn’t going to have to see him until November and he had no restrictions as such, just to stay away from people who may be ill etc. When Chris came back from that trip he was obviously tired but there was something else going on . I prayed it wasn’t the cancer coming back again.
Chris opened up to Nikki that he thought the lump was coming back on his neck a compromised lymph node . My understanding is the cancer cells in the blood are larger than normal cells and so can’t get through and block the system causing the lumps ( tumors) . That of course is the very simplest of explanations , there is so much more .
Chris finally having shared his fears with Nikki and they called the staff member in Pohlman’s office he had been given as a contact. They basically said to keep an eye on it and he had an appointment moved up until August.
The Doctors decided to do a biopsy on August 21st , Chris’ birthday. I will never be able to think of his birthday in the same way again.
I drove to the downtown Cleveland Clinic wanting to throw up all the way. I was so scared I couldn’t even think straight. Chris and Angela were already there. Nikki having fed the baby,( she was breast feeding) was on her way. We sat in silence in the waiting room , Chris, Angela and I , I had no words. Nikki arrived looked at her brother and said “Birthday” he smiled . He was taken back to pre-op Nikki and Angela went with him . I sat along in a corridor trying not to fall apart, everything within me was screaming.
Chris was taken down and we went to the waiting room only to find Angela’s support team. One of them her grandmother , they wanted to get something to eat so I duly followed on. The grandmother who was nice enough in her way but in my opinion sadly lacking in forethought said:
“What a shame, on his birthday too. Oh isn’t it your birthday in a couple of days, are you having a party to celebrate”
and on she “clacked”. I thought has this woman any idea of what Nikki and I are going through. I sat quietly through the “meal”, whilst they ate and rattled on about this and that, we then went back to the waiting room.
The big board with all the operations and who was in surgery and who was in recovery kept changing. The grandmother true to form had not finished. Nikki had left me to go and express her milk. As I sat there visualizing what was happening to my son Grandmother pipes up:
Let’s have a contest , everyone pick a time as to when Chris goes to recovery, how much longer do you think it will be. Angela you are the Dr. so you start.
and they did . I was by this time bringing up bile in my mouth, I could no longer sit there , was not one of Angela’s support team going to shut this stupid woman up. Did they not see how inappropriate this was and how painful?
I got up and left and went outside crying. Nikki found me as they had no idea where I had gone. Chris had come through the surgery and was in recovery. The surgeon came out and said it went well and they were sending the sample for tests. Angela left to share the news. Nikki looked at the surgeon and said:
is the cancer back?
He was very nice and said
we have to wait for the results.
Nikki looked at him and said :
You have done hundreds of these and you can tell, I know , is the cancer back
He looked at her and just nodded.
Mum, you can’t go back into the recovery room . Chris will take one look at you and know . You have to leave.
and so I did . I don’t remember driving home . I was numb , perplexed desperate.
Chris missed my birthday but came two days after with my “candles” he always bought me candles since he was a little boy.
April 3rd- The Candle Connection- Chris Ritchey | That Woman’s Weblog (wordpress.com)
As soon as Chris was old enough and earning money, he would buy me special candles – the trouble was they were always artistic and expensive and I couldn’t bring myself to light them. After one more such gift of candles I couldn’t bear to burn , I told you:
“Chris, these are far too nice to burn – just buy me ones I can feel OK with lighting” .
The next birthday came the “Daisy Candles” and once again I didn’t have the heart to burn them I supposed you had forgotten the request .
I noticed the cellophane around the “Daisy Candles” was definitely yellowing and becoming brittle. My thought was to bring them into the living room where my mum, who loves daisies might get some cheer from them as a symbol of “spring will eventually arrive and with it daisies”
I brought the candles downstairs , took off the wrapper and then saw the instructions-
I realized as I read those words you had listened to me– because the candles were special- the wick would burn for 29-30 hours and when it was done the outside of the candle would still be intact and I could insert tea light candle that would illuminate the outer shell.
the thought struck me the candle was yet another symbol- how your life burned with beauty and strength for as many years as those candles had hours (29) and what was left was a mere glimmer of memories that would only burn as long as I lighted the “memory of you” . The “tea light” of the 3rd of every month where once again your life is lived!
The candles , the last he bought me, are still waiting to give a light that has been lost to us.
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