Posts filed under ‘Doctors/Physicians’

April 3rd- No Limits- Chapter 15- Chris Ritchey


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Forward: https://thatwoman.wordpress.com/2020/01/02/jan-3rd-no-limits-the-forward-chris-ritchey/

Chapter One :https://thatwoman.wordpress.com/2020/02/03/feb-3rd-no-limits-chapter-1-chris-ritchey/

Chapter Two:https://thatwoman.wordpress.com/2020/03/03/march-3rd-no-limits-

Chapter Three: https://thatwoman.wordpress.com/2020/04/03/april-3rd-no-limits-chapt-3-chris-ritchey/

Chapter Four: https://thatwoman.wordpress.com/2020/05/03/no-limits-chapter-4-chris-ritchey/

Chapter Five: https://thatwoman.wordpress.com/2020/06/03/june-3rd-no-limits-chapter-5-chris-ritchey/

Chapter Six: https://thatwoman.wordpress.com/2020/07/03/july-3rd-no-limits-chapter-6-chris-ritchey/

Chapter Seven: https://thatwoman.wordpress.com/2020/08/03/august-3rd-no-limits-chapter7-chris-ritchey/

Chapter Eight: https://thatwoman.wordpress.com/2020/09/03/sept-3rd-no-limits-chapter-8-chris-ritchey/

Chapter Nine: https://thatwoman.wordpress.com/2020/10/03/oct-3rd-no-limits-chapter-9-chris-ritchey/

Chapter Ten: NO LIMITS- Nov 3rd- Chapter 10- Chris Ritchey | That Woman’s Weblog (wordpress.com)

Chapter Eleven: NO LIMITS-Dec. 3rd- Chris Ritchey- Chapter 11 | That Woman’s Weblog (wordpress.com)

Chapter Twelve: NO LIMITS-Jan 3rd- Chris Ritchey- Chapter 12 | That Woman’s Weblog (wordpress.com)

Chapter Thirteen : NO LIMITS- FEB 3rd- Chris Ritchey- Chapter 13 | That Woman’s Weblog (wordpress.com)

Chapter Fourteen: March 3rd, NO LIMITS, Chapter 14- Chris Ritchey | That Woman’s Weblog (wordpress.com)

Houston: Days and Nights continued:

Being able to  sleep at night did not last long. Although,  I  was more relaxed because I  could try  and take care of Chris, see to  his needs, cook for him I spent my  days watching every  nuance of his being, and nights listening to  his cough  and worrying. 

After the first weekend we settled into  a routine of trips to  the hospital , taking the infusions and blood test. One of the protocols of the trial of SGN 35 involved writing down  and filling in a daily  chart as to  his  physical and mental responses each  day, reactions to  the medications etc.

A Pivotal Open-Label Trial of Brentuximab Vedotin for Hodgkin Lymphoma – Full Text View – ClinicalTrials.gov

Chris, understood,  along with  tests this questionnaire and his answers would be part of the decision making as to  whether he would be able to  continue with  the drug/infusion SGN 35. And that is a problem, when you are told you  last chance for a “cure” ( there is that word used by  Dr. Brad Pohlman a couple of weeks prior basically  giving Chris the death  sentence) you  will do  anything to  stay  on the trial. Chris would duly  fill out the questionnaire every  day  and turn it in on his appointment days. The problem is  I know his pain level was NOT a three, that he was not having any  significant side effects.

After the first week I went to  the evaluation with  Dr. Younes’ PA, she was extremely  nice  but was concerned as Chris had lost 4 lbs. since she had seen he and Angela that 1st week. I wanted to tell her that he probably  had had nothing to  eat but a plate of spaghetti for days but kept my  mouth  shut.  I assured her I  would be cooking his meals at least three times a day . When we met with  Doctor Younes Chris asked him  for a prescription for Oxycodone  for pain. I watched the Doctors face 

“You shouldn’t be feeling pain on that level, why are you  on Oxycodone it isn’t in your notes….”

I immediately  realized Chris had committed a grave sin in asking. I knew Angela had a prescription filled for him from the Clinic. I hurriedly  stated. 

Oh! he was given a few after the lumpectomy when they  did the biopsy on his neck  a few days ago  and he was in a lot of pain after that surgery  and  that is why as the prescription  was only  for a few of them. 

That seemed to  satisfy  the doctor. When Angela called that evening I  explained what happened and that the Dr. had prescribed Darvon . I  mentioned the Doctor was not happy  with  Chris being on the Oxycodone  . She just  giggled and said

don’t worry  I  will get Chris a prescription….. Darvon  is nothing more than Tylenol and does nothing” . 

Darvon

Well I wasn’t going to argue after all she was the 3rd year Resident. Apparently  by  this time Chris had developed a tolerance to  pain killers. He told Angela the Darvon wasn’t doing anything  and she said just double the dosage, until I  come down next week . Keeping my  mouth  shut was getting more and more difficult. 

Hurricane Ike had left its mark on many areas even a year later. We decided to take a drive to Galveston, I had been there with Nikki for dance competitions a few years previously and it was very interesting. Unfortunately, Ike had done a lot of damage and it was depressing . On the way Chris got a phone call from the Cleveland Clinic. The results of the compatibility test for his sister being a donor for the stem cell transplant were in. They asked if Nikki was his twin because the results were extremely good , very high and they usually don’t get those type of results except with identical twins

Breathing a sigh of relief as we now had another option in our arsenal we stopped for lunch. Our view of the sea front was dismal

.

The Flagship Hotel remains after Hurricane Ike destroyed most other businesses on the coastline in Galveston, Texas, Sept. 19, 2008. U.S. Sailors assigned to Helicopter Sea Combat Squadron (HSC) 28 embarked aboard the amphibious assault ship USS Nassau (LHA 4) are providing defense support to the city?s civil authorities. (U.S. Navy photo by Chief Mass Communication Specialist Chris Hoffpauir/Released)

 

There was one seafood restaurant open and we sat in the balcony over looking what was once the USS Flagship Hotel.

I deserved and needed  a drink, something I don’t often do . The pier on which the Hotel was located obviously had been pretty hard hit . The waiter told us a lot of the business along the sea wall had not survived. Chris walked down along the beach and called Angela with the results from the Clinic and I sat on the bench and called Nikki. Once again HOPE!!!!!

To be continued

April 3, 2021 at 12:04 pm 1 comment

Feb 3rd- sick of hospitals- Chris Ritchey

Artwork Chris Ritchey Face Book page

A whole month  has passed since I  last wrote  and I  have in the last three weeks spent more time in ER’s  talking to  Doctors -that  don’t know us -explaining past issues. ICU becoming my  2nd home and all the different  protocols.

I want to  get off this band wagon of monitors, that beep  and fluctuate I have seen too many  of them since you  were in that dreadful Main Campus  Cleveland Clinic (Tausig).  I have traversed the  halls , waiting rooms in hospitals in Elyria, Westlake , Houston Texas  and Lorain.

I  am so  tired of the unexpected and having to  have the strength to  advocate.  This latest ill-health  go  around sudden and quick is going to  drag out into months. Touch  and go  10  days ago…….

The flawed Hand of the Healer by Chris Ritchey

.

I can spot an officious nurse at 10 places, know the ones that listen , talked to  professionals , that know their stuff I  am sure , but the accent is thick so  I  become infuriating to  them as I  have  to say  “repeat that please.”

 

I have sat in ER’s  waiting for results of scans and tests. I have sat in the waiting rooms with  total strangers that reflect the fear , hopefulness and dread that I know is written on my  face just as it is on theirs .

I am exhausted with illness, dying and decisions , keeping up my  strength  to be my  family’s advocate all the while wanting to  run away  and not have to  deal with  anything at all.  Life changes looming.

One of the most infuriating things is the fact that all these different hospital systems  but when it is  an emergency  you  are taken to  the  nearest ER . If they  are under a different network your health  records are not available, so  the ER does not have a base line as to  your previous health issues. Family  are left explaining in layman’s terms as to  your history and then when you  contact you  own medical team you  have to  explain the new issues. You  can request those medical records be sent  ( they  don’t like it  but insist).

Anyway   weeks of hell again looking at those monitors for every  heartbeat…………… and the horrible reminders of your last days flooding in my  brain as the smells , the squeak of rubber shoes on shiny  floor , the monitor alarms add yet another pain to  deal  with as you  sit quietly  waiting………..

I love you  still  and your bravery  still reminds me to  fight

Hands – Touching- Hands – art work Christopher Ritchey

 

 

February 3, 2019 at 11:54 am 3 comments

Oct. 3rd – the episode – Chris Ritchey

chris
So many October 3rds have come and gone in real time but not in my time . The anniversary of those last photos of you with your family before heading back to MD Anderson and Texas for the trial of SGN 35 to save your life. The head and shoulders shot taken that day – apparently used at the funeral home.

Friday , your dad, was undergoing a procedure. I was once again in a hospital- and I so hate hospitals – I gear myself to go – I put on an armor of self-protection- walk through the pitfalls of triggers – knowing where they are in those places.

I prepared myself as I drove to the appointment for the laughter of those individuals working in these places as they go about their working day, white coats and scrubs , the sound of rubber soles squeaking on polished tiles, the smells, the sights of those who lay in various positions hooked up to life sustaining fluids that drip silently into their veins, the alarms going off when they don’t , those sitting in wheelchairs and those who wait in chairs that provide no comfort, the sound of curtains being drawn around a patients bed, the calls for doctors and needs over the speakers, technicians scurrying with vials of blood in handy little carrying cases,

All routine every day happenings in any hospital but for me a minefield. I have managed in this recent bout of illness and emergency rooms with your dad. I have walked myself through each day each diagnosis, each “episode” ( meaning) “a finite period in which someone is affected by a specified illness”. A throw away word which has much more meaning to some than others.

“Oh he had an episode” during the night……………..

I took a book with me to try to read , that didn’t work , I read the words but did not comprehend , my brain too busy trying to control, block and filter out unwanted sights, sounds and thoughts. I sat and waited.

The procedure was taking longer than they had said. My mind started racing and my blocking mechanism to such thoughts kicked in to hold down the doubts and thoughts which started to form.

“CODE BLUE CATH LAB” ,

A rushing of movement, a curtain being pulled once more across the entrance to the lab corridor, people flying past yet at the same time controlled, disturbing the air where I sat, carts arriving , staff with an intense look to their faces heeding the call. Then nothing just quiet efficiency from those that remained, no more laughter a deadly seriousness entered the area like a spectre waiting to gather in all hope.

I watched the curtain across the corridor, willing it to open , waiting for your dad to reappear from the place behind – nothing and then another “Code Blue Cath Lab” call— more people going through and behind the curtain.

Chris Ritchey  BFA- CIA

Chris Ritchey BFA- CIA

A nurse walked by and looked at me –

are you alright-

No!

came the answer forced from my throat. She wasn’t to know I was no longer in St. John’s Westshore but in a waiting room all alone on a Thanksgiving Day at the Cleveland Clinic and another CODE BLUE continually ringing through the hall the Code Blue being called to your bedside.

White Coat of Death by  Chris Ritchey

White Coat of Death by Chris Ritchey

The armor crumbled, the blocking wall fell slow motion like into so much dust, intentions to stay in the present ripped away – leaving the raw and exposed wound of a scar of grief that never fully heals. I was undone and collapsed like the wall once again in two worlds…………

Although not involved with our case, the nurse checked and it wasn’t your dad. Some other loved one was sending shock waves of terror to their family .

The nurse came back held my hand – “I couldn’t help but notice your eyes – they were so full of fear…..”

I didn’t explain that the woman she had helped and was talking to was just a mere shell – the rest of her was elsewhere still trying to breathe………..

Depths of Despair by  Chris Ritchey

Depths of Despair by Chris Ritchey

October 3, 2016 at 12:42 pm 5 comments

Thanksgiving USA- celebrations – one breath at a time – Chris Ritchey

Yes! there is a turkey in the oven this morning – Queen Anne potatoes and roasted veggies getting prepared to take the journey to Nikki’s. There will be smiles and little boys getting into mischief helping
Family will gather and some of us will push away the memories of the last Thanksgiving Day when we “were a family complete” in order to make happy memories for children and realtives.

The tears will be held in check as best as able with a helping hand from those loved beyond all tears- they are my life support . I know I am not alone on this day , there are other mothers and fathers , sisters and brothers who are being brave this day and remembering and missing silently with controlled breathing –
chrisbrowns

Thanksgiving Day I sat all alone in a waiting room, hustled out of the ICU room as my son, with tears slowly filling his eyes dropping silently on his cheek, was being prepared for the vent as he had started choking on the sip of water I had given him.

I heard the last words he ever spoke that Thanksgiving Day. I waited in the ICU waiting room as Code Blue was called , the technicians coming out high fiving as they had completed the procedure in record time – celebrating their own kind of “touchdown”. Did they not realize they broke my heart…. and then a young doctor coming out to me asking if I wanted Clergy as my son was dying. That was our last Thanksgiving Chris. There was no one there in that waiting room- I was alone, totally in another world , reality crashing forth into my brain my heart not accepting….,
my mind whirling with wanting to stop time , to find a way to wake from an nightmare.

The Cretans of Control ( Lombardi and co)
https://thatwoman.wordpress.com/2011/11/23/thanksgiving-2011-a-time-not-to-remember-chris-ritchey/
showing up later with their nut rolls and recipe swap – I couldn’t grasp what was happening , who were these people invading my terror with their leftovers? –

The missing is monumental…. it is taking all I have to keep breathing.

So I am thankful this year for my own special life support, Nikki, Jim, my husband, Nana my wonderful friends, cousins and especially those two little boys Gavin and Braedyn, who make me smile when I struggle to breathe .

IMG_0022

November 27, 2014 at 4:46 pm 1 comment

The Faces of the Black Box Warning- Humira

The Flawed Hand of the Healer by Chris Ritchey

The flawed Hand of the Healer by Chris Ritchey

Part One – The Faces of Humira

Every day searches come to this blog on the drug Humira , cancer in all its obscenity and Hodgkin’s Lymphoma . They are people looking for answers, hope and direction but most of all answers…….
In part three of the series The Good???? Dr.

The “Good???” Dr. – Drugs- Trust – Selling of hope- Part 3

I touched upon the drug Humira and the story of Maxx Wendell – the obscenity of a drug that caused his young life to end and his mother’s torment to begin. Last week, a comment came to this blog requesting information about Humira. I contacted Maxx’s mother, Lisa , for her input and the question and her thoughts will be in Part Two. In the meantime, let us once again look at Humira . In the post “Selling of Hope” ( above ) I stated:

I have watched the commercial, as probably you have ( the commerce drug of the moment- this drug in the billions of dollars – bigger than some country’s budgets ) HUMIRA for many months and any of number of times a night. I have noted the voice over of the side effects- can cause . Lymphoma/ Cancer Tuberculosis ( this is a CURE!!!!!”) and HOW MANY SERIOUS SIDE EFFECTS HAPPENED? I walked the path of the Curable Lymphoma – Hodgkin’s
Why would anyone take this drug
? from their own website
http://www.humira.com

What is a Black Box Warning :

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3101972/
black box

Emphasis mine:

“Important Safety Information About HUMIRA® (adalimumab)1

White Coat of Death by  Chris Ritchey

White Coat of Death by Chris Ritchey

What is the most important information I should know about HUMIRA?

You should discuss the potential benefits and risks of HUMIRA with your doctor. HUMIRA is a TNF blocker medicine that can lower the ability of your immune system to fight infections. You should not start taking HUMIRA if you have any kind of infection unless your doctor says it is okay.
Serious infections have happened in people taking HUMIRA. These serious infections include tuberculosis (TB) and infections caused by viruses, fungi, or bacteria that have spread throughout the body. Some people have died from these infections. Your doctor should test you for TB before starting HUMIRA, and check you closely for signs and symptoms of TB during treatment with HUMIRA. If your doctor feels you are at risk, you may be treated with medicine for TB.


Cancer. For children and adults taking TNF blockers, including HUMIRA, the chance of getting lymphoma or other cancers may increase. There have been cases of unusual cancers in children, teenagers, and young adults using TNF blockers. Some people have developed a rare type of cancer called hepatosplenic T-cell lymphoma. This type of cancer often results in death. If using TNF blockers including HUMIRA, your chance of getting two types of skin cancer (basal cell and squamous cell) may increase. These types are generally not life-threatening if treated; tell your doctor if you have a bump or open sore that doesn’t heal.”

humiracom
Let us look at the language in this Black Box Warning for the drug Humira that is played over and over and over again on our electronic media. The soft-spoken voice over for the commercial showing the young woman playing with her son , the guy living his life

man humira

as music plays and laughter abounds under the voice over quietly downplaying stating in a matter of fact way :

serious infections , bacteria and cancer has happened and it has resulted in death and other cancer types have happened but they are “GENERALLY” aren’t life threatening if treated

Question Humira( Abbott Laboratories ) Who pays for the non life threatening cancer to be treated? Abbott Laboratories ?

Maxx Wendell ALSO a face of Humira

Maxx Wendell ALSO a face of Humira

And while we are at it- Why don’t you show the faces of those “some people” their light, laughter and life denied to them and their families along side the happy families…. I don’t think that would make good ad copy would it.

prescrition pad

And why are we showing these drug ads to the general population-

Could it be you want the general population to play Dr.? Is this just another avenue to get to the physicians prescription pad?

Because in Humira’s disclaimers they state again and again “ask your doctor” – your doctor should- tell your doctor.

So why are you not just advertising to “doctors “? We know that you and every other pharmaceutical group canvass and sell their pills and potions to “the doctor”.

http://www.schmidtandclark.com/confessions-of-a-pharmaceutical-sales-rep

snake-oil-salesman-big-418x500

But this is the biggest of businesses and Abbott Laboratories say it themselves as to why they have such an aggressive ad campaign- Emphasis mine!


First, ‘STRONG PATIENT DEMAND’ has lead to global market share gains in both dermatology and gastroenterology.”

Ah! there you have it – it isn’t the doctors driving Humira’s success it is the “patients demands”
From Abbotts report October 2012

Abbott Laboratories Management Discusses Q3 2012 Results – Earnings Call Transcript

http://finance.yahoo.com/news/abbott-laboratories-management-discusses-q3-175012192.html

Certainly, HUMIRA remains the cornerstone of our portfolio and is a strong driver for AbbVie, and will remain so. Not many brands are able to achieve and sustain the level of performance we’ve demonstrated with HUMIRA.

Clearly, HUMIRA has a strong clinical profile. Our commercial, our development and our regulatory execution on HUMIRA have been outstanding. HUMIRA’s performance continues to be exceptional, as evidenced by the strong double-digit growth this year.

Several factors are driving that performance. First, strong patient demand has lead to global market share gains in both dermatology and gastroenterology. Second, the addition of 2 new indications for patients; UC here in the U.S. and Europe, as well as axial SpA in Europe. HUMIRA now treats a total of 8 approved indications and 4 more in late-stage development.bbw abbot

Finally, the global biologic market growth remains strong, and HUMIRA continues to outpace that growth. We expect HUMIRA demand to continue to grow, given the relative modest biologic penetration rates across all market segments, but in particular, the dermatology segment, where biological penetration rates are still mid single digits.

TO BE CONTINUED ……..

August 7, 2013 at 9:48 pm 8 comments

Between the worlds – The Black Hole Feeds

SOURCE

There is an article today on the BBC website about the Giant Black Hole getting set to feed in our galaxy
http://www.bbc.co.uk/news/science-environment-20278812

“Black holes have had a bad rap. We’ve always thought of them as these dark, brooding destructive entities, but it turns out their influence is much more creative. Black holes help to regulate galaxies, acting a bit like a pressure valve that prevents star formation from running away with itself”.


The Black Hole a pressure valve??? I have fought the “black hole” that pulls me in my grief like the clouds of cosmic dust that I have become – no longer stable and solid -just fragments of what I once was sliding around without direction in my own painful universe.

This week I am between worlds – I live and relive the last days of Chris’s existence on this planet- the terrors that held me and still reach out- I tried to find answers in these months of longing for release from a gravity of grief. There are no answers – where is the love and compassion that should come with the death of a son? Lost – in greed and selfishness. And yet I remember … these days of just yesterday ……….


Angela Lombardi Ritchey DO- Sue Lombardi- Tim Lombardi

THE ACTS OF PEOPLE- I still can’t understand-
https://thatwoman.wordpress.com/2010/12/04/dec-4th-how-cold-is-cold-lombardi/

I still find this scenario incredible What kind of people are more concerned in the “funeral fashion statement” of their son-in-law and new husband will wear as he is clinging to life. Who calmly looks at their dying groom and is concerned about jacket or no jacket, what kind of people are these ?- How could you even discuss this as a sister holds her dying brothers hand and tries to give him comfort. How could Angela even contemplate that next move? I just know that anyone who loved my son deeply would not be thinking of “dressing him in his coffin” in their last moments together !

THE CRUELTY ,
https://thatwoman.wordpress.com/2010/12/11/december-11th-the-beginning-of-the-beginning/

I don’t know how I am going to write this today- I have been told due to the surgery earlier in the week not to blow my nose – ( I won’t go into detail)- that is hard not to do when tears are streaming down cheeks and all that goes with that. Writing about the events of the past year has been tremendously difficult – there are times I am crying so hard I can’t see- but our story has to be told- the truth must see the light of day because Chris is worth every tear , every word- He was taken from this family- by Cancer and by self-serving cruelty – this is the story as it effected and still effects this family and it will be written – it is the only closure given to me………….

THE LOSS OF WONDER.
https://thatwoman.wordpress.com/2010/12/03/xii-december-omega-alpha-chris-ritchey/

The Alpha- The beginning of another kind of hell that day of losing our hope and your life that continues to swirl and pull – no peace -a closure denied – – the discovery of wickedness that shows the depths of selfishness that can be found even amongst those that preach compassion and love – an evil wickedness that compounds and adds to the already unthinkable that of outliving your child.

As shock and disbelief mixed with grief and love stirred with wickedness of self-service of those that proclaim faith an anger started to fill the emptiness of the vessel of my being -an anger that replaced the hope- an anger that grew with every passing day fed by the actions of cruelty and selfishness of those that professed a love.

and I drift ever closer , spinning in an unknown universe to what???
A work by Chris Ritchey

November 29, 2012 at 3:13 pm Leave a comment

September 3rd -“Drs.” Love- Labor- Lost – Cleveland Clinic – Chris Ritchey

2 faces of life- by Chris Ritchey

September 2009– found only 4 blog posts for that month- We had been given the devastating news on August 29th delivered with cold clinical monotone by Dr. Brad Pohlman – as he strode through the door into the “holding room” where Chris, Angela , Nikki and I sat.

“This is bad- very bad – the cancer is back- your only hope for a cure is SGN 35 – and we ( the Cleveland Clinic) closed our trial last Friday-”

I remember thinking at the time as his words only confirmed my greatest fear of the last weeks:

“you have messed around with tests, biopsies, for 4 weeks – knowing as we did, 8 days previously, the cancer was back and you couldn’t have put him on the list for the trial. Bloody Drs. they knew days ago the prognosis- he knew the results the day before when we were called to come in- why wasn’t he or they ready with information as to the next step”.

I looked over at you, behind my own sunglasses as you absorbed the news , there was a swallowing and a slight lifting of your chin only lower it to your chest, your nostrils flared slightly as you sucked in a breath, your knuckles turned white as your hands balled into fists at your side, lips pressed tight together .

We waited, silenced, to be told the next course of action – Dr Pohlman folded his slim frame , with his still elegant slacks and starched white coat and expensive leather loafers into an empty chair.

SGN 35 is your only hope. You will need to find a trial that is still open- but most have closed, as we did, on Friday”

I don’t understand

I said- anger at this man who just delivered my son’s death sentence with the same matter of factness as a mechanic telling you “You need new tires”.

Chris can’t get on the trial here????-

No,

stated the clinician in his lab coat

we are allowed only so many and we are full and have a waiting list – St Louis might have an opening- I will check on the internet this weekend……

I couldn’t believe what I was hearing ” he would check the internet over the weekend-” Hell he has a staff of dozens why wasn’t that information available already?

My son, it seemed to me was a “failure” of the double stem cell transplant – his refractory Hodgkin’s lymphoma back with a vengeance – he would not to be counted as a “medical” success story and so was seemingly to me and to Nikki was being passed off- the lab rat didn’t pass the test- I could almost see the wiping of the hands .

I looked at you sitting so still, back pressed hard against the wall( trying to keep upright), eyes hidden behind your aviator sunglasses once again, hiding the tears I know were filling your eyes . Nikki looking with utter disbelief at this man with the white lab coat , diamond earing and white frame glasses who had just delivered a death sentence.
Nikki spoke, her tone incredulous :

What do you mean St. Louis? – this is the Cleveland Clinic you are supposed to be the best- and you are done? Can’t you put Chris on SGN 35 here on compassionate grounds?

A slight shrug of his shoulders, No! as she shook his head-the beautifully coiffered silvery hair not moving. I got the feeling he just wanted out of there…..

Angela, who had said nothing during this time except

” we purchased a juicer and Chris is drinking fresh juices” –

Pohlman looked at this ‘Dr. in training” with a surprise flickering across his face and said

“be careful with how much you do with that it might throw off any treatment results .”

Nikki said :

Isn’t there anything the Clinic can do?

came the reply from Dr. Pohlman .

We could try a ” Allogeneic” stem cell transplant . Are you his sister? We could test you but I think the insurance company will deny it – Chris’ immune system is not recognizing the cancer and chances are your immune system won’t kick in in time , but we will test you, if you like, to see if there is a match I will have the paperwork sent to you .

Meanwhile you sat, saying nothing as your very hope of a life disappearing, as you were “discussed” – words of death echoing off the stark cold walls. I know you daren’t speak. Finally interview over, you walked from the room Nikki and Angela followed you out the door. I stayed back stood up , legs shaking , my world crashing in ….

White Coat of Death- Chris Ritchey


I looked at this Dr. so removed from the cruel news he had delivered and I said:

Is there nothing ? Chris did every damned thing he was told to do – you sat here on June 29th after the double stem cell transplant, in this very room telling me he was clear- dismissing me – when I questioned his need for another PET scan in August? You said – NO! there is no need all his CT scans are clear -He wouldn’t need to be seen until November – this can’t be happening- isn’t there anything you can do you are his Dr. the trial is here – hope is here

I could hear myself “begging” this man for hope…….

I will check with St. Louis, you will have to excuse me , I had to fit Chris in- I have patients waiting…….

The next days were a whirlwind of everyone of us on the internet and phone following leads trying to find trials with openings with the SGN35- St. Louis, Chicago became options but it was to MD Anderson , Houston Texas you went- they called could you “be there tomorrow” for an appointment and we made sure you were. Your Labor day exploring a Texas ranch whilst you waited to start with SGN 35

I wrote, on the following, September 3rd…….

https://thatwoman.wordpress.com/2010/09/03/remember-the-kind-of-september-chris-ritchey/

this will work it has to be a sign- fate or whomever decides our destiny couldn’t be so cruel as to keep giving hope only to dash us on the rocks of despair- to give us the “avenue of against the odds”.

3 months later -you died but not from the cancer
https://thatwoman.wordpress.com/2012/06/03/concrete-in-the-lungs-june-3rd-chris-ritchey/

and a year later this post – where the juice was mixed with tequilla


https://thatwoman.wordpress.com/2011/09/03/september-3rd-war-movin-on-hell-truly-is-other-people-chris-ritchey/

NOTE: I have also categorised this post under the Doctors and Physician series “The Good Doctor”, although this post is a little out of the ‘running order”.
Part One
https://thatwoman.wordpress.com/2012/02/28/the-good-doctor-or-dentist/

Part Two
https://thatwoman.wordpress.com/2012/04/22/the-good-dr-or-dentist-part-two/

This is the story of what happened to THIS family from MY perspective, as we lived through those dark days that ultimately took my son -and from my own “non medical” opinion– I realize there are thousands of experiences with blood cancers and the Cleveland Clinic and I am sure with great success for some

http://www.cleveland.com/metro/index.ssf/2012/06/a_healthy_fathers_day_for_clev.html

I am hoping readers experiencing the obscenity of Cancer and other catastrophic illness will find they aren’t alone and maybe just maybe those of the white coats who become immune to emotions of death , as they scan the records of their next patient in the holding room, will remember the beating heart does more than pump blood……………….

September 3, 2012 at 12:05 am 2 comments

Gridlocked and the writing stop sign!

It isn’t as if I have writers’ block , maybe it is grief gridlock or that I am a becoming a marshmallowy pillow of a vehicle . I keep absorbing the information, the stories, tucking away the posts in a part of my mind but although I am taking on board the fuel I just can’t get to the gas pedal. I could write about so many things – most of them already started:


The continuing journey of in search of my son but the stop sign on that particular street is the cost to continue – it takes a great toll on me physically and emotionally- I have to move forward slowly – there is no E-Z pass available .

Healthcare and the Drs. – that has been started with so much to cover but I know eventually I will have to pull out the terrible memories at the Cleveland Clinic and relive those days of horror in order to explain the treatment courses for “refractory Hodgkin’s Lymphoma”.

This particular stop sign finds me with “guilt gridlock” as I know I can help those that come to my blog every day with the search term “is Hodgkin’s curable”. I know, just like I did, they need and want answers in lay terms and I could help with the potholes and speed bumps and no exits on that journey. The engine of bravery is barely ticking over.


The Rape of Lorain by conglomerate Landlords and Banks

The research needed and time to discover the who is who- there is an apathy that has controlled me these past weeks and I can’t get out of 1st gear on this one. So the information sits and idles on my desk top!

Religion- Heaven and Hell -The organisation of the masses

It is all there waiting – the caution lights blinking – because the road to be followed is not on the map and the responsibility of the driver’s seat has left me stalled. The openness of the road is daunting.

City of Lorain – history, politics, crime, people – the good and bad, schools

That vehicle is so full it cannot get past the weight scales to get back on the road. There are just so many passengers it is a quandary as to who should get off the bus first. There are 65 categories on this blog and I have a tale to tell for each and everyone of them .

Freedom – the price of freedom – and the perception of freedom- is freedom relative?
Exploring this road finds me in need of a licence to continue?


Happiness

This vehicle has an empty seat and its fuel gauge is hovering around low so short trips are the outcome . There seems to be “missing” stops signs along the way.

So here I am in the lay by of life at the moment assessing thedamage of continuous fender benders waiting for the gridlock to break and finding the energy needed to start the engine and continue.

August 27, 2012 at 11:04 am 7 comments

“I trail my life behind me like an endless scarf-”

I feel as if I had been in the world a thousand years, and I trail my life behind me like an endless scarf“Act II – The Sea-Gull – Anton Chekhov (1860-1904)

I can relate – sometimes the scarf will twist, knot , catch, pulling at my throat forcing me to stop before I strangle.

Other times the wind of friendship will playfully lift its length from the path that is mine to tread causing the weight to be taken from me if just for a brief moment of respite. The freedom of lightness of days when I danced along on my journey eyes unseeing the succubus of wickedness , deceit and control, selfishness, hypocrisy and disease that lay in wait –

reaching out with bony fingers from the safety of their impenetrable blackness of control to grasp, to catch, to pull me into the realm of unhappiness and the dank decaying darkness of loss of trust .

A brief blinding of my eyes as the folds hid from view their true nature and now the scarf shape shifts and wraps like a serpent around my heart bringing with it the biting cold of their deeds and the obscenity of the cancer.

Yet once again, gentle hands of love and friendship tug and pull me back, loosening the grip of those who dwell in the darkness for just another moment in the light.
Sketch of Isadora Duncan – Jose Clara

It’s discouraging to think how many people are SHOCKED BY HONESTY by and HOW FEW BY DECEIT.”
― Noël Coward, Blithe Spirit

Note:

Isadora Duncan

Duncan’s fondness for flowing scarves was the cause of her death in an automobile accident in Nice, France when she was passenger in an Amilcar, and her silk scarf, draped around her neck, became entangled around the open-spoked wheels and rear axle, breaking her neck.

July 16, 2012 at 1:57 pm 6 comments

Time Lapse- July 3rd-Chris Ritchey

1st Mother’s Day card- Christopher Ritchey


Another month has gone- and another 3rd of the month comes round-I know the weeks and months keep passing whilst I am standing still. If I choose to look, I can see through the veil of grief the lines etched upon your father’s face as they become deeper, the slowing of your Nana’s walk and the way her frail little body is bending more and more- her own struggle and pain written there – a countenance of sorrow. Misty no longer the puppy – Gavin who is now a little boy and Braedyn who arrived on the planet months after your death.

Yes I know time has moved on- people have moved on-
https://thatwoman.wordpress.com/2011/09/03/september-3rd-war-movin-on-hell-truly-is-other-people-chris-ritchey/
you are now just a memory fading in the hearts and minds of most- even those that professed love of you- Do you sometimes creep into their thoughts or have you become

Oh! you remember him what was his name again? Yeah Chris- Chris Ritchey- that was it –

Medical records deemed so important now archived …..unless….. they mistake your death. A phone call……

” Can I speak to Christopher Ritchey please?”

My heart constricts and time stops – I bite my lips as tears stream from eyes in that second’s pause- I choke out the words

” This is his mother – can I help you ?”

IS his mother – not WAS – try not to scream- try to hold onto the present – close your eyes so the world that is whirling about is blocked .

“Oh! Yes — this is the Cleveland Clinic can you remind Christopher he has a PET scan scheduled for tomorrow morning at 9:00 am.”

Tears now awash, flooding from my eyes , their path following the fingers of my hand as it grips the phone against my cheek , the taste of warmth and salt find the corner of my mouth. tears or blood from the biting of my lip- it makes no matter , breathe , the world is out of sync once more as I fight to bring the words up from the depths of my grief.

” Chris died” –

“Excuse me- I am sorry what did you say?”

The words strangle – they will not form, choking , forced from that place of dark reality- an intake of breath- a sharp cold pain – eyes squeezed shut – the words escaping from their imprisonment……
My son Chris, is dead”

Silence – confused – mumbling- from the “scheduling person”

I don’t understand – I am so sorry – there is obviously a mistake- sorry again – is this Chis’s full name- is this his information( which went into detail)- his Dr. ? Dr Pohlman-“


HARD- design Chris Ritchey

Yes! thoughts spinning as I see once again the man, from the Cleveland Clinic- Dr.Pohlman in his crisp starched white coat, beautifully talored slacks, white framed glasses and a small diamond stud catching the flourescent light of his examination room, he of the ice cold hands- he is before me once more- with his charts – every word reaching- pulling me back to the past – the memory of those days of death. The confused voice on the other end of the phone breaks through to the present

Er.. I am so sorry for your loss – I am not sure what happened Sorry I am sorry………

and she hung up

She- presumably went on with the rest of her day scheduling the tests or whatever calls she had to make – unaware she was the unwitting conductor opening once again the portal to a time past filled with anguish and pain..

https://thatwoman.wordpress.com/2012/04/22/the-good-dr-or-dentist-part-two/

I was once again in my living nightmare – unable to stop the tears and the missing of you – seeing you hooked up to machines and the “team” Drs. who now smile at me from the television screen selling their miracles——- yes another month and once again time stops with just a phone call…………..

and another night begins and another day — waiting for release ……. as the world rushes on ………. and it is so damned hard !

July 3, 2012 at 10:43 am 4 comments

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