Posts filed under ‘grief’
October 3rd- No LIMITS-Chapter 21-Chris Ritchey
NO LIMITS
Forward: https://thatwoman.wordpress.com/2020/01/02/jan-3rd-no-limits-the-forward-chris-ritchey/
Chapter One :https://thatwoman.wordpress.com/2020/02/03/feb-3rd-no-limits-chapter-1-chris-ritchey/
Chapter Two:https://thatwoman.wordpress.com/2020/03/03/march-3rd-no-limits-
Chapter Three: https://thatwoman.wordpress.com/2020/04/03/april-3rd-no-limits-chapt-3-chris-ritchey/
Chapter Four: https://thatwoman.wordpress.com/2020/05/03/no-limits-chapter-4-chris-ritchey/
Chapter Five: https://thatwoman.wordpress.com/2020/06/03/june-3rd-no-limits-chapter-5-chris-ritchey/
Chapter Six: https://thatwoman.wordpress.com/2020/07/03/july-3rd-no-limits-chapter-6-chris-ritchey/
Chapter Seven: https://thatwoman.wordpress.com/2020/08/03/august-3rd-no-limits-chapter7-chris-ritchey/
Chapter Eight: https://thatwoman.wordpress.com/2020/09/03/sept-3rd-no-limits-chapter-8-chris-ritchey/
Chapter Nine: https://thatwoman.wordpress.com/2020/10/03/oct-3rd-no-limits-chapter-9-chris-ritchey/
Chapter Ten: NO LIMITS- Nov 3rd- Chapter 10- Chris Ritchey | That Woman’s Weblog (wordpress.com)
Chapter Eleven: NO LIMITS-Dec. 3rd- Chris Ritchey- Chapter 11 | That Woman’s Weblog (wordpress.com)
Chapter Twelve: NO LIMITS-Jan 3rd- Chris Ritchey- Chapter 12 | That Woman’s Weblog (wordpress.com)
Chapter Thirteen : NO LIMITS- FEB 3rd- Chris Ritchey- Chapter 13 | That Woman’s Weblog (wordpress.com)
Chapter Fourteen: March 3rd, NO LIMITS, Chapter 14- Chris Ritchey | That Woman’s Weblog (wordpress.com)
Chapter Fifteen: April 3rd- No Limits- Chapter 15- Chris Ritchey | That Woman’s Weblog (wordpress.com)
Chapter Sixteen: May 3rd – No Limits- Chapter 16- Chris Ritchey | That Woman’s Weblog (wordpress.com)
Chapter Seventeen: June 3rd-No Limits-Chris Ritchey-Chapter 17 | That Woman’s Weblog (wordpress.com)
Chapter Eighteen: July 3rd – NO LIMITS- Chapter 18-Chris Ritchey | That Woman’s Weblog (wordpress.com)
Chapter Nineteen: https://thatwoman.wordpress.com/2021/08/03/august-3rd-no-limits-chapter-19-chris-ritchey/
Chapter Twenty: https://thatwoman.wordpress.com/2021/09/03/september-3rd-no-limits-chapter20-chris-ritchey/
Houston and Lorain.
The expenses were piling up. Not the hospitals bills you understand, No, everything was being covered medically for Chris thanks to the 100 percent coverage his then “resident” wife received from the Cleveland Clinic. That, in itself, was truly amazing and because their Oncologist did not enter him in the SGN 35 trial they had at the Cleveland Clinic ,as it had closed on the Friday, before he went to his doctor’s appointment on the Monday. The Clinics insurance also paid for the trial of SGN35 in Houston at M.D. Anderson.
Of course we still had to pay for the living expenses, the flights etc. Chris wanted to use their savings. People had been extremely generous when he and Angela got married in the previous June. Chris was not happy with the fact his family were paying for the Houston expenses and flights and rental car etc. He felt he should be able to cover those expenses .
Our wonderful neighbor of many years “Rich” suggested he would like to put on a fundraiser for Chris , who was almost like a 3rd son and member of his family. Chris, was at first very hesitant , one reason being he was private when it came to his illness but he also was aware his mum and dad weren’t wealthy . Chris reluctantly acquiesed in the end.
I told Rich to contact the Lombardis , as at one point ,they had also made mention a fund raiser (in the very begining) but Chris had refused as all the medical bills were being paid for under the no deductible insurance of the Cleveland Clinic. Chris’s godparents, his sister and my friends and other neighbors also wanted to help and so I left it in my neighbor’s capable hands, or so I thought.
It wasn’t until weeks after that I was told Rich, Chris’ godparents in fact everyone but Nikki were told they didn’t need any help and that Sue and Tim Lombardi and the sisters of Sue would be handling through Tim’s bank First Federal. So those that offered help in baking, food, clean up and organizing were told NO THANKS., they weren’t needed the Lombardi Clan would be doing this !
Well now of course I know the reasons. “Control” a trait that Sue Lombardi definitely has in her resume in my opinion borne out later on in the saga of the dollar signs.
Not knowing of the Lombardis decisions to keep out of the fundraiser anyone from Chris’ side I wrote blog posts and advertised as much as I could for the sake of this young couple. Chris designed the Logo in Texas
“The Committee for Chris- aka Chris’ Crew would very much like a head count by this weekend so please if you haven’t got the tickets yet and plan to come please contact Nikki at 440-282-3195
FUNDRAISER FOR CHRIS
When – Sunday – OCTOBER 25TH -1:00 -5:00Where- Rosewood Place- 4493 Oberlin Avenue- Lorain Ohio 44053
What – Spaghetti Dinner- Silent Auction – 50/50 raffle – Browns Game ( on a big screen TV)
How Much – $15.00 – kinds under 5 eat free.
Tickets and or reservations – please call Nikki -440-282-3195
The Crew tells me there are literally dozens of gift baskets containing something for everyone – from tools, firepits, Cavs games, Browns games and everything to go with them- professional teeth whitening – Celtic goodies- romantic weekends – ( beach condo steps from the water at Catawba )- and hotel rooms- food and drink and a flat screen TV is also in the baskets- So please call is you haven’t already got your tickets- Loraine”
IF I WOULD HAVE KNOWN THEN WHAT I FINALLY WAS MADE AWARE OF , I WOULD HAVE STOPPED THE WHOLE ROTTEN MESS.
But I didn’t know and being in Houston I was relying on emails and half truths being told. When I questioned Tim Lombardi as to why Rich wasn’t involved in the accounting of the fundraiser as “
|
Hi Tim, I hear the sales are going really well that IS good news ( and we need good news) . I did ask Angela over the weekend about the account at First Federal but she said that you were handling everything. I have a couple of questions, as you know I have run Charleston Villages non profit 501C3 for twenty years so I was a little confused……….On a personal note after the numbers and figures are all in if I could have a list of those that donated straight to the account I would very appreciative as Chris’ Dad and I want to send our personal thank you to those individuals . |
he replied “
”
Angela , Sue and Tim Lombardi
Hi Loraine,Mon, Oct 19, 2009 at 3:49 PM
Hope all is well with you and Chris in the Lone Star State. Angela may have misunderstood what we did. The account opened at First Federal is a non-interest bearing account as we didn’t want to report any type of interest…….We have tried to keep track of donations and will certainly provide you with the list we have. What do you think about running a thank you ad in the paper? The generosity of the donors has been over whelming” Tim
I didn’t need to take out an ad . Tom Skoch editor of the Morning Journal ( lorain) ran an item as did The Chronicle ( Elyria) and blogs. People came through from the Highland Dance Community from all over the world with basket items, money, Nikki rallied her friends and Jims friends and realtives all donated . Since I was in Houston Nikki took everything to the bank and deposited in that damned account. In hindsight I feel sick even to this day. Nikki dropped off baskets and took flyers all around her neighborhood. Tim Lombardi was right the response was overwhelming .
People of all walks of life , professions and places apparently came to the event.
Chris and I waited to hear from Nikki and family as to how things were going. Nikki called me she was upset , apparently Sue Lombardi was telling anyone that would listen the Chris was staying in a terrible place , crime ridden . I was furious and frankly hurt , I had done my damndest to get Chris and Angela , who I naively thought would want to be with her husband as much as she could be. I was wrong about that too.
Chris came into the living room in Houston he asked what was wrong and I burst into tears something I rarely did but the emotiona and exhaustion won out.I blubed and blubbered saying I was sorry … the apartment was the best I could find.. and
I was sorry it was not what Angela wanted…
What are you talking about ? said Chris
Finally I was able to tell him what was being said….. he called his sister and told her ”
“don’t tell mum anything that the Lombardis say about anything it has upset her and remember [Angela’s sister], Allie didn’t call her mother “Psycho Sue ” for no reason. “
Later on that evening Chris came out of the bedroom after talking to Angela to tell me the fundraiser had made $8,000.00 on the baskets alone and $36,000.00 in donations etc. not counting the money that had already been deposited by Nikki etc to the account in the bank.
I learned later from the very mouth of Sue Lombardi she opened a “safe deposit box ” in her bank in Angela’s and her name for the cash from that night. I questioned them as to a list of donors and what they donated so I could write thank you notes
Sue said
Oh well we aren’t sure
I said
well you must have deposit slips..and ticket sales. There was over thirty thousand from the fundraiser alone
Where did you hear that ?
It was then I said:
Angela told Chris and I know other checks were put into the accouint at First Federal , I have that list from Nikki.
And that is when Sue Lombardi told me directly she had opened a safety deposit box in Angela’s name for that cash……..
( So much for keeping track. ) and there is more to come.
Pillars of their Church but money apparently can cause even pillars to fall for the 7th deadly sin of AVARICE!!!!!!
Avarice the 7th deadly sin
to be continued :
September 3rd-NO LIMITS-Chapter20-Chris Ritchey
NO LIMITS
Forward: https://thatwoman.wordpress.com/2020/01/02/jan-3rd-no-limits-the-forward-chris-ritchey/
Chapter One :https://thatwoman.wordpress.com/2020/02/03/feb-3rd-no-limits-chapter-1-chris-ritchey/
Chapter Two:https://thatwoman.wordpress.com/2020/03/03/march-3rd-no-limits-
Chapter Three: https://thatwoman.wordpress.com/2020/04/03/april-3rd-no-limits-chapt-3-chris-ritchey/
Chapter Four: https://thatwoman.wordpress.com/2020/05/03/no-limits-chapter-4-chris-ritchey/
Chapter Five: https://thatwoman.wordpress.com/2020/06/03/june-3rd-no-limits-chapter-5-chris-ritchey/
Chapter Six: https://thatwoman.wordpress.com/2020/07/03/july-3rd-no-limits-chapter-6-chris-ritchey/
Chapter Seven: https://thatwoman.wordpress.com/2020/08/03/august-3rd-no-limits-chapter7-chris-ritchey/
Chapter Eight: https://thatwoman.wordpress.com/2020/09/03/sept-3rd-no-limits-chapter-8-chris-ritchey/
Chapter Nine: https://thatwoman.wordpress.com/2020/10/03/oct-3rd-no-limits-chapter-9-chris-ritchey/
Chapter Ten: NO LIMITS- Nov 3rd- Chapter 10- Chris Ritchey | That Woman’s Weblog (wordpress.com)
Chapter Eleven: NO LIMITS-Dec. 3rd- Chris Ritchey- Chapter 11 | That Woman’s Weblog (wordpress.com)
Chapter Twelve: NO LIMITS-Jan 3rd- Chris Ritchey- Chapter 12 | That Woman’s Weblog (wordpress.com)
Chapter Thirteen : NO LIMITS- FEB 3rd- Chris Ritchey- Chapter 13 | That Woman’s Weblog (wordpress.com)
Chapter Fourteen: March 3rd, NO LIMITS, Chapter 14- Chris Ritchey | That Woman’s Weblog (wordpress.com)
Chapter Fifteen: April 3rd- No Limits- Chapter 15- Chris Ritchey | That Woman’s Weblog (wordpress.com)
Chapter Sixteen: May 3rd – No Limits- Chapter 16- Chris Ritchey | That Woman’s Weblog (wordpress.com)
Chapter Seventeen: June 3rd-No Limits-Chris Ritchey-Chapter 17 | That Woman’s Weblog (wordpress.com)
Chapter Eighteen: July 3rd – NO LIMITS- Chapter 18-Chris Ritchey | That Woman’s Weblog (wordpress.com)
Chapter Nineteen: https://thatwoman.wordpress.com/2021/08/03/august-3rd-no-limits-chapter-19-chris-ritchey/
Houston Continued:
I have never felt so out of my depth. All my life I have been decisive , could see my way to a solution or know who to reach out to in order to find a solution. Yet here I was in a strange city , scared to death , totally alone . having to bury my fears, worried I would say or do something that would hurt my son or take away his thread of hope. I could not let him see my doubts , my worries.
I would take my phone out to the pool area and call Nikki , my support , she would get me back on track but I really could never even be totally truthful with her . A young mother with a little baby , she too ,scared of the future without Chris.
Watching was the hardest part of those weeks in Houston, feeling so damned inadequate. I had promised him the day he was born that I would never let any harm come to him and I would always protect him and here I was totally useless and not being able to keep that promise .
You do the deals with an unknown powerful being,
take me , let him be cured
and knowing somehow you are wasting your time, but you feel you have to try anything to save him. You spend hours on the internet researching looking for a glimmer of hope, knowing this trial is the last chance. If I had been told,
in order to save him they would need every drop of my blood
I would have gladly died for him. There was never any choice given to me.
It is a rollercoaster ride, lost in a maze of emotions abysmally alone. Despair finds you , weakens you takes you to regions of a self made hell
Depths of Despair – artwork Chris Ritchey
The keeping up a positive face was probably the most draining for him as well as me. Chris was still filling out the report forms , everything noted as manageble. He never mentioned in the notes that every night he couldn’t sleep for the pain and would run the hottest of baths , sometimes 8 or 9 almost burning his skin to get some relief. He would surround himself with hot water bottles filled with boiling water. I pretended not to notice but it was hard when the electric kettle would disappear into his bedroom and the the wet towels would be hung of the shower rail.
I would close the bathroom door and check the bottles of pain pills they were going down at an alarming rate. It was so hard and finally I understood Chris’ artwork to describe the word HARD , it did truly feel to me that I was rushing headlong into an impenetrable hell , impossible to pass through. I would shake these premonitions as just down to being emotionally exhausted.
Artwork Chris Ritchey— HARD
I so wanted to hold and cuddle my son as I did when he was little. But he was a grown man and although I would get the occasional pat on the head as he would walk by I knew the last thing he needed was for me to show weakness.
Crying time was when he would go to the shooting range or to Cabelas . I knew I would have a couple of hours to myself . I would, on occasion, take one of his shirts and bury my face in the folds just to be near him and let the tears flow, somehow in that act to release the pain. I washed a lot of shirts doing that.
We did try normalcy , some sightseeing but always I was watching to see how he was dealing with the energy being used . I waited – hoping the news would be good at the end of the trial and what he was putting himself through would all be worth it.
Waiting , it seemed that is all I had been doing for 13 months. Waiting in doctors and hospital waiting rooms. The chairs in those rooms , no matter the hospital or city or state, were clones of one another.
People watching , wondering what the story was of the man waiting behind the frosted glass , he also waiting for good news or bad, feeling that connection with someone who briefly passed through in a moment, never acknowledging each other not speaking – but connected.
Waiting whilst announcements were made and the sound of rubbers soles squeaking on tiled floors, the wheels of hospital carts as they rolled down hallways announcing more meds. Waiting , not daring to breathe as results from tests were coming and all the time wanting to run away far away but knowing there was no running from this obscene disease …..
if cancer had a face
to be continued
August 3rd- NO LIMITS- Chapter 19- Chris Ritchey
Forward: https://thatwoman.wordpress.com/2020/01/02/jan-3rd-no-limits-the-forward-chris-ritchey/
Chapter One :https://thatwoman.wordpress.com/2020/02/03/feb-3rd-no-limits-chapter-1-chris-ritchey/
Chapter Two:https://thatwoman.wordpress.com/2020/03/03/march-3rd-no-limits-
Chapter Three: https://thatwoman.wordpress.com/2020/04/03/april-3rd-no-limits-chapt-3-chris-ritchey/
Chapter Four: https://thatwoman.wordpress.com/2020/05/03/no-limits-chapter-4-chris-ritchey/
Chapter Five: https://thatwoman.wordpress.com/2020/06/03/june-3rd-no-limits-chapter-5-chris-ritchey/
Chapter Six: https://thatwoman.wordpress.com/2020/07/03/july-3rd-no-limits-chapter-6-chris-ritchey/
Chapter Seven: https://thatwoman.wordpress.com/2020/08/03/august-3rd-no-limits-chapter7-chris-ritchey/
Chapter Eight: https://thatwoman.wordpress.com/2020/09/03/sept-3rd-no-limits-chapter-8-chris-ritchey/
Chapter Nine: https://thatwoman.wordpress.com/2020/10/03/oct-3rd-no-limits-chapter-9-chris-ritchey/
Chapter Ten: NO LIMITS- Nov 3rd- Chapter 10- Chris Ritchey | That Woman’s Weblog (wordpress.com)
Chapter Eleven: NO LIMITS-Dec. 3rd- Chris Ritchey- Chapter 11 | That Woman’s Weblog (wordpress.com)
Chapter Twelve: NO LIMITS-Jan 3rd- Chris Ritchey- Chapter 12 | That Woman’s Weblog (wordpress.com)
Chapter Thirteen : NO LIMITS- FEB 3rd- Chris Ritchey- Chapter 13 | That Woman’s Weblog (wordpress.com)
Chapter Fourteen: March 3rd, NO LIMITS, Chapter 14- Chris Ritchey | That Woman’s Weblog (wordpress.com)
Chapter Fifteen: April 3rd- No Limits- Chapter 15- Chris Ritchey | That Woman’s Weblog (wordpress.com)
Chapter Sixteen: May 3rd – No Limits- Chapter 16- Chris Ritchey | That Woman’s Weblog (wordpress.com)
Chapter Seventeen: June 3rd-No Limits-Chris Ritchey-Chapter 17 | That Woman’s Weblog (wordpress.com)
Chapter Eighteen: July 3rd – NO LIMITS- Chapter 18-Chris Ritchey | That Woman’s Weblog (wordpress.com)
Back to Houston:
The family all gathered back at Nikki’s on October 3rd. Jim and Chris were leaving early in the morning on the 4th. Misty, Chris’s dog who now lived with us, due to the situation we all found ourselves dealing with , came along to Nikki’s to see her master. She was a loopy dog and reminded me of Dino of the Flintstones . However, with Chris she was all business, a totally different animal , obeyed him and loved him. To see her reaction when she saw Chris that day brought tears- I dare not shed -to my eyes . Chris and his dad and Misty , who wouldn’t leave his side, walked into the woods behind Nikki’s. I didn’t follow, my husband hadn’t had many alone times with Chris in the preceding months , I instinctively felt I should not follow.
We were loathe to leave that day. Somehow my gut told me this was the last time we would all be together . Photos were taken, laughter was tried. Gavin, his nephew, was now nearly 8 months old , Chris had missed those early months and I so hoped he would be there as Gavin grew. He wanted to be a great uncle to Gavin take him four wheeling and after riding the horses in Texas decided he would buy some land and get Gavin a horse, or at least a pony. I wanted that to happen with everything that was in me. Chris , bought Gavin a Texas belt buckle, it was almost as big as him.
Jim and Chris were on the road from Cleveland to Houston stopping every so often to take in those sights that Chris wanted to see. They also arranged to go wild boar hunting on the way and stop off at a couple of shooting ranges.
Although they tried to have a normal “man-cation” Jim told me when they arrived back in Houston how worried he was. Chris, was in a lot of pain and was popping pills the whole journey. Jim wasn’t sure what they were but that I should try and see if I could take a look at the medication bottles.
I had arrived back in Houston on the Saturday morning. I had just arrived when the phone rang and it was JD’s secretary. JD had once again been there for this family. His secretary made arrangements with me to pick me up, go to lunch and pick up staples I would need until Jim and Chris arrived back on the Monday. Bless her heart , we went to an English pub-like restaurant. The Black Labrador Pub.
The food was delicious and I was at my ease . We then went to a British shop also in Houston where I carted off “English sausages, tea bags, favorite biscuits, ( cookies) and snacks a quick stop to a convenient store for bread and milk etc. I was set for the next couple of days until Jim and Chris arrived. Thinking about it I am not sure what I would have done for temporary supplies over that weekend…. called for Pizza I suppose.
I had just put the groceries away when Jim called they would be arriving at the apartment in a couple of hours. They decided to cut the “man-cation” short. After they arrived and Chris was showering , Jim told me Chris was not doing well the drive had really taken it out of him, the pills, and he could see Chris , although he didn’t say anything, was in pain. They had a supper of omelets and English sausages that evening , I know Jim “suffered” the sausages, as they are somewhat bland compared to American sausages. Chris, I don’t think cared what he was eating. He just wanted to sleep so Jim and I went to do a grocery shop. Chris looked awful , dark circles under his eyes, the trip and driving certainly had taken its toll on his health and any energy he had.
Later that night I was able to look in Chris’s shaving bag for his medication . There it was a number of bottles of Oxycodone 30 mg. I know he didn’t get it in Houston as the Doctors treating him wouldn’t prescribe it , especially when he was filling out the forms weekly stating his pain was at level 3.
I couldn’t ask him why he had them without letting him know I had spied on him. I looked at the label and recognized the name of the Dr. at South Pointe Hospital where Angela was doing her residency. I was in a bad position and didn’t know what to do. I would just keep a closer eye on him and hope to hell these “medical marvels knew what they were doing”
This medication is used to help relieve moderate to severe pain. Oxycodone belongs to a class of drugs known as opioid analgesics. It works in the brain to change how your body feels and responds to pain.
Since they were two days adrift Jim changed his flight back to be with Nikki and the baby. It was agreed I would keep a close eye on Chris , as much as I could.
Once again, we were on the treadmill of tests, infusions check ups . His heart rate had been high a steady 114 and he had had a procedure done but they thought his heart was alright considering what it had been through in the previous months. I was scared they would show the drug ( oxycodone) was in his system when they did the tests. No one said anything but he was taking quite a few in a 24 hour period. He would keep tablets in his pocket and surreptitiously take a couple. As the days went on I notice the hand going into that pocket more and more. I knew categorically by taking those drugs it was tantamount to being taken off the trial. The trial that was his last chance of a “cure” . I had to keep quiet and watch……
To be continued …
June 3rd-No Limits-Chris Ritchey-Chapter 17
Forward: https://thatwoman.wordpress.com/2020/01/02/jan-3rd-no-limits-the-forward-chris-ritchey/
Chapter One :https://thatwoman.wordpress.com/2020/02/03/feb-3rd-no-limits-chapter-1-chris-ritchey/
Chapter Two:https://thatwoman.wordpress.com/2020/03/03/march-3rd-no-limits-
Chapter Three: https://thatwoman.wordpress.com/2020/04/03/april-3rd-no-limits-chapt-3-chris-ritchey/
Chapter Four: https://thatwoman.wordpress.com/2020/05/03/no-limits-chapter-4-chris-ritchey/
Chapter Five: https://thatwoman.wordpress.com/2020/06/03/june-3rd-no-limits-chapter-5-chris-ritchey/
Chapter Six: https://thatwoman.wordpress.com/2020/07/03/july-3rd-no-limits-chapter-6-chris-ritchey/
Chapter Seven: https://thatwoman.wordpress.com/2020/08/03/august-3rd-no-limits-chapter7-chris-ritchey/
Chapter Eight: https://thatwoman.wordpress.com/2020/09/03/sept-3rd-no-limits-chapter-8-chris-ritchey/
Chapter Nine: https://thatwoman.wordpress.com/2020/10/03/oct-3rd-no-limits-chapter-9-chris-ritchey/
Chapter Ten: NO LIMITS- Nov 3rd- Chapter 10- Chris Ritchey | That Woman’s Weblog (wordpress.com)
Chapter Eleven: NO LIMITS-Dec. 3rd- Chris Ritchey- Chapter 11 | That Woman’s Weblog (wordpress.com)
Chapter Twelve: NO LIMITS-Jan 3rd- Chris Ritchey- Chapter 12 | That Woman’s Weblog (wordpress.com)
Chapter Thirteen : NO LIMITS- FEB 3rd- Chris Ritchey- Chapter 13 | That Woman’s Weblog (wordpress.com)
Chapter Fourteen: March 3rd, NO LIMITS, Chapter 14- Chris Ritchey | That Woman’s Weblog (wordpress.com)
Chapter Fifteen: April 3rd- No Limits- Chapter 15- Chris Ritchey | That Woman’s Weblog (wordpress.com)
Chapter Sixteen: May 3rd – No Limits- Chapter 16- Chris Ritchey | That Woman’s Weblog (wordpress.com)
Houston Days and Nights- continued
I can’t begin to put into words how stressful it was for both of us , those days and nights. Chris and myself “pretending everything was normal “ skirting around issues we both knew were uppermost on our minds. Wanting to talk but not wanting to say out loud our fears, maybe that way we could hope a little longer.
Not everything was rosy , mother and son facing a terrible unknown locked together in a small apartment. .Chris tired and in pain. I knew it wasn’t me he wanted with him. I found a note that Angela had left behind in a desk drawer, Chris was hurt and disappointed she was leaving Texas and it was me that would be with him.
I knew my presence in Texas only confirmed that he was dying of Cancer, I was a constant reminder that he needed a care giver ( although you felt he could manage on his own to deal with side effects of a trial drug and Cancer) he would’ve preferred that it would have been his wife, not his mother to be with him.
photo Angela by Chris Ritchey
As a wife, I couldn’t have left my husband knowing that he was living under a death sentence and had been since August 29th -but that was Angela’s choice.
I could never understand Angela’s way of thinking, but tried to make allowances , she too was dealing with a terrible situation in her young married life. I couldn’t believe that even during this awful, hopeful , chaotic time she would still try to manipulate a situation and lie as she had done with Nikki and Chris and the engagement ring episode.
Chapter Three :
March 3rd – NO LIMITS- Chapt 2 – Chris Ritchey | That Woman’s Weblog (wordpress.com)
October 8th: One month in and the façade came crashing down, we were due to come back to Cleveland for a few days . I made arrangements to still keep the apartment as they were so difficult to find. To me, it was worth paying for it to be empty rather than going through the hassle of moving and or finding something else.
This one particular day we did have that heart to heart that horrible “truth revealing ” argument that shouldn’t have happened!
In the hours before that argument came to a head Chris and I had gone to get his prescriptions- he was tired and in a lot of pain- I said maybe I could pop into Borders ( which was across the way)
I would like to buy the new Dan Brown novel-
I could see he was impatient to get back so I didn’t push it. His mood was dour and his eyes narrowed and lips ( always a sign of anger) were tight. He had been on his cell phone to his wife, Angela, as we waited for his prescriptions. He drove back to the apartment in utter silence . He immediately went out by the pool in the apartment – I could see him sitting not moving. I decided he needed space -then Nikki called and said that Chris had hung up on her and was very angry.
“but leave him alone mum” he doesn’t want to talk.
I knew my son. I knew whatever it was would fester until he exploded – he was so much like me.
I went to the pool- he said
“I don’t want to talk”
“You don’t have to -you can listen- I need to talk to you”
I was never a crier before Hodgkin’s I was a fighter, a do-er – this blubbering fool that I have become is down to the helplessness and hopelessness that took away happiness. Chris never knew me as a “crier” before his illness – so as the tears fell he sat silently as I told him
Chris, being a mother of a son is so much harder than you can imagine – I have tried so hard to give you and Angela the space you both need in this terrible time. I KNOW Chris, that you are feeling that you have no control over what is happening to your body and your life- I know you need some control , another reason why I have tried so hard to stand aside- you didn’t need me in the mix as well -But I am going to honestly tell you now -if this had been Nikki and not you I would have handled things so much differently – just as Nikki is my child I would not have sat back and taken a back seat to decisions as I have with you and Angela.
You see when a son marries he brings into his life another woman- it is very difficult in the best of circumstances for a mother to sit back and watch decisions being made that in some cases I did not agree with in a normal situation- this terrible situation we find ourselves all thrust into makes it doubly hard. But I have deferred to you both and to her “medical expertise” with this obscenity of Hodgkin’s that has engulfed us. It has been one of the hardest things in the world for me not to interfere or to put in my two cents. There have been times Chris when I have doubted my own abilities and lost confidence in myself – I have gone against my own gut feelings and yet there is a voice that tells me to still be protective of you .
I have tried to give you both your space – to be there when needed and to shut up for your sake when I was totally against some decisions. I have tried for your sake because I love you so much I would do anything and sacrifice anything for your health and happiness.
I don’t know the reason why you are so angry with Nikki and I but you have to know neither of us would intentionally do anything to hurt you . We have tried to put you first in all our thinking – We love you always have and always will. “
With that I left the poolside and went back into the apartment. Chris followed a few minutes later and then it all came out ( as I knew it would) an argument and accusations the finding out of lies that were told
“we had excluded Angela in decision-making as to driving the truck back to Texas.”
He wanted to drive his truck back . I told Angela in an email ( which I have ) that it wasn’t a good idea him driving, he was having difficulty due to the side effects of SGN35 and I thought she should know since obviously you had been in Ohio since Sept 10th and hadn’t see the problems he was having even driving to Target let alone 1,700 miles.
I never received any response from Angela to my emails ( which I still have)
Chris was furious with me and Nikki
“You didn’t include Angela”
Me:
“What are you talking about – I included Angela”
CHRIS No you didn’t !
Me.
Would you like to see the emails?
CHRIS: “
Yes! I would”
Me.
So you are calling me a liar ?
CHRIS:
” Don’t give me that F…. shit if I want to see the email then I must be calling you a liar. There aren’t any emails Angela doesn’t lie!
I then pulled up the emails…. all of them sent to Angela –
ME:
Look at the dates and times Chris … now tell me I’M the one that lied…… she says here she wants to talk to you about it did she?
CHRIS:
Well she has been busy
ME:
she talks to you 4 or 5 times a day she couldn’t mention it but she could let you believe that Nikki and I didn’t include her?
He broke down cried….. my wonderful strong brave son reduced to tears not by cancer that night but by lies and manipulation
She, the loving wife and bride did that to him by trying to lie by omission … not me ….I held him and he said:
“did you ever think that I want to see something of the country if I am going to be dead in two years.”
My heart broke for him – I cried and we held on tight to each other and I said
Chris none of us know when we will die, the way you are driving lately we could end up dead on the way to hospital tomorrow ….
he laughed a little and I said:
Chris, I know the SGN35 is working, the lump on your neck isn’t visible and you haven’t coughed since Sept 21st.
That night he went and checked the lumps on his neck for the first time in weeks. Chris called Nikki back, she and Jim had talked and Jim would take time off work and drive back to Houston with Chris in his truck . He told Nikki he wasn’t really angry with her, just at the hopelessness and helplessness he was feeling. Once again Chris and sister reached out beyond the miles to each other.
After talking to Nikki he said he wanted to take a drive, we still had the hire car. He left- I wasn’t sure where and I was worried- he was in so much pain and on so many pills –
A little while later he came back ….. he walked in patted me on the head as a I sat in the chair and handed me a book as he walked to the bedroom – The Lost Symbol by Dan Brown…………
May 3rd – No Limits- Chapter 16- Chris Ritchey
Forward: https://thatwoman.wordpress.com/2020/01/02/jan-3rd-no-limits-the-forward-chris-ritchey/
Chapter One :https://thatwoman.wordpress.com/2020/02/03/feb-3rd-no-limits-chapter-1-chris-ritchey/
Chapter Two:https://thatwoman.wordpress.com/2020/03/03/march-3rd-no-limits-
Chapter Three: https://thatwoman.wordpress.com/2020/04/03/april-3rd-no-limits-chapt-3-chris-ritchey/
Chapter Four: https://thatwoman.wordpress.com/2020/05/03/no-limits-chapter-4-chris-ritchey/
Chapter Five: https://thatwoman.wordpress.com/2020/06/03/june-3rd-no-limits-chapter-5-chris-ritchey/
Chapter Six: https://thatwoman.wordpress.com/2020/07/03/july-3rd-no-limits-chapter-6-chris-ritchey/
Chapter Seven: https://thatwoman.wordpress.com/2020/08/03/august-3rd-no-limits-chapter7-chris-ritchey/
Chapter Eight: https://thatwoman.wordpress.com/2020/09/03/sept-3rd-no-limits-chapter-8-chris-ritchey/
Chapter Nine: https://thatwoman.wordpress.com/2020/10/03/oct-3rd-no-limits-chapter-9-chris-ritchey/
Chapter Ten: NO LIMITS- Nov 3rd- Chapter 10- Chris Ritchey | That Woman’s Weblog (wordpress.com)
Chapter Eleven: NO LIMITS-Dec. 3rd- Chris Ritchey- Chapter 11 | That Woman’s Weblog (wordpress.com)
Chapter Twelve: NO LIMITS-Jan 3rd- Chris Ritchey- Chapter 12 | That Woman’s Weblog (wordpress.com)
Chapter Thirteen : NO LIMITS- FEB 3rd- Chris Ritchey- Chapter 13 | That Woman’s Weblog (wordpress.com)
Chapter Fourteen: March 3rd, NO LIMITS, Chapter 14- Chris Ritchey | That Woman’s Weblog (wordpress.com)
Chapter Fifteen: April 3rd- No Limits- Chapter 15- Chris Ritchey | That Woman’s Weblog (wordpress.com)
Houston Days and Nights- continued
I haven’t the words to eloquently or adequately explain the emotions that crash in and out of your being as you watch your child battle to stay alive. This enemy, came to conquer , not with guns , bombs or knives it was insidious in its will to win turning the very body of its victim against itself. Cells that were made large so the pumps of the body (lymph nodes) plug and distort. It circulated through the life giving blood stream through the lungs causing coughing that wracked the very body trying to deal with the attacks. Cancer in all its forms is and obscenity .
I tried so hard to keep cheerful, what 29 year old wants to be with his mother. I know he wanted Angela there knowing the trial was his last hope for a cure or at least remission. I know he wanted to spend what time he had left with her . I know I was the best of a bad deal . I argued with myself, stop watching his every move, deliberately giving him space, taking myself out to the pool side to read, even though I was petrified of the little gecko things running about the pergolas and tables, I didn’t scream when they ran across my foot or thought I was a roadway across a chair.
Chris, would spend time going to the rifle range or to Cabelas. We tried to see some of the area when we could and when he felt up to it. JD and Karen, had been out of town for a bit. Chris, after one of the infusions of SGN 35 could barely speak the the next day but when JD called he put strength into his voice so JD would not realize how poorly he was feeling.
Tears welled up in my eyes and I had to go out into the lawn area and have a silent cry by myself. Only I wasn’t by myself one of the other residents I had noticed sitting by the pool, looking as I must look, was there. She looked up and me as I was not winning the battle of holding in the tears and noticed she too was crying. She reached up to hold my hand and I sat down and there we sat for a long time. Two humans knowing nothing about each other, never speaking sharing the impact of cancer. I learned she too, was caring for her grown daughter as the husband had to stay in Indiana for his job and children. Her daughter was also on a trial at MD Anderson and a last hope.
Hands – Touching- Hands – art work Christopher Ritchey
On the good days we toured Houston. He had wanted to go horse back riding. I hadn’t been on a horse in 20 years ( I was then a lot thinner and in better shape) and Chris hadn’t ridden since he was a little one. I made arrangements for the following day. Of course, that night poured with rain and a warm front came dripping over Houston. I wrote on my blog at the time :
NOOOOOO!!! this isn’t a picture of the horse after I rode it. Whew! 90 degrees yesterday after a rain that could’ve floated a boat. My foray into the wild west “avec” plastic helmet. I realize that horse rentals have to protect their clients but you tend to lose heat through your head … just ask a politician 🙂 and when it is covered with plastic and foam OMG!!!! Anyway 2 hours later after riding through swamp and shrub and bush I now remember why cowboys are bowlegged.
Chris, had become very interested in life in Texas , so different from Lorain , Ohio. One of our days ( again in that heat) was spent at George Ranch Historical Park. It was fascinating seeing the 1830’s cabin and farm the humble beginnings to the 1930’s house “George Cattle Complex” . Of course then there was that oil that helped
“The discovery of oil on the Ranch in the 1920s changed the fortunes of the family and the community forever. The George’s son and only child died while just a toddler and their beloved cousin and presumed heir Mary died tragically when she was a young woman. With no living heirs and a considerable estate, the Georges established The George Foundation to ensure that their wealth would continue to benefit communities across the county into the foreseeable future. This charitable Foundation still exists and gives back today and helps bring you the story of the remarkable family who loved, grieved, rejoiced and lived on this enduring stretch of Texas prairie.”
It was a good day and Chris was enthusiastic. I was once again feeling like I would die from the humidity and heat at any moment but we laughed and enjoyed a day without the mention of Doctors or cancer . I would have put up with heat, humidity and wading across the little river filled with alligators just to see him smile and laugh .
Mothers and Fathers who are losing their child will do the deal with God, the stars , fate whatever they believe, ”
“take me instead let my son/ daughter have life and laughter and old age…………”
To be continued………
April 3rd- No Limits- Chapter 15- Chris Ritchey
Forward: https://thatwoman.wordpress.com/2020/01/02/jan-3rd-no-limits-the-forward-chris-ritchey/
Chapter One :https://thatwoman.wordpress.com/2020/02/03/feb-3rd-no-limits-chapter-1-chris-ritchey/
Chapter Two:https://thatwoman.wordpress.com/2020/03/03/march-3rd-no-limits-
Chapter Three: https://thatwoman.wordpress.com/2020/04/03/april-3rd-no-limits-chapt-3-chris-ritchey/
Chapter Four: https://thatwoman.wordpress.com/2020/05/03/no-limits-chapter-4-chris-ritchey/
Chapter Five: https://thatwoman.wordpress.com/2020/06/03/june-3rd-no-limits-chapter-5-chris-ritchey/
Chapter Six: https://thatwoman.wordpress.com/2020/07/03/july-3rd-no-limits-chapter-6-chris-ritchey/
Chapter Seven: https://thatwoman.wordpress.com/2020/08/03/august-3rd-no-limits-chapter7-chris-ritchey/
Chapter Eight: https://thatwoman.wordpress.com/2020/09/03/sept-3rd-no-limits-chapter-8-chris-ritchey/
Chapter Nine: https://thatwoman.wordpress.com/2020/10/03/oct-3rd-no-limits-chapter-9-chris-ritchey/
Chapter Ten: NO LIMITS- Nov 3rd- Chapter 10- Chris Ritchey | That Woman’s Weblog (wordpress.com)
Chapter Eleven: NO LIMITS-Dec. 3rd- Chris Ritchey- Chapter 11 | That Woman’s Weblog (wordpress.com)
Chapter Twelve: NO LIMITS-Jan 3rd- Chris Ritchey- Chapter 12 | That Woman’s Weblog (wordpress.com)
Chapter Thirteen : NO LIMITS- FEB 3rd- Chris Ritchey- Chapter 13 | That Woman’s Weblog (wordpress.com)
Chapter Fourteen: March 3rd, NO LIMITS, Chapter 14- Chris Ritchey | That Woman’s Weblog (wordpress.com)
Houston: Days and Nights continued:
Being able to sleep at night did not last long. Although, I was more relaxed because I could try and take care of Chris, see to his needs, cook for him I spent my days watching every nuance of his being, and nights listening to his cough and worrying.
After the first weekend we settled into a routine of trips to the hospital , taking the infusions and blood test. One of the protocols of the trial of SGN 35 involved writing down and filling in a daily chart as to his physical and mental responses each day, reactions to the medications etc.
Chris, understood, along with tests this questionnaire and his answers would be part of the decision making as to whether he would be able to continue with the drug/infusion SGN 35. And that is a problem, when you are told you last chance for a “cure” ( there is that word used by Dr. Brad Pohlman a couple of weeks prior basically giving Chris the death sentence) you will do anything to stay on the trial. Chris would duly fill out the questionnaire every day and turn it in on his appointment days. The problem is I know his pain level was NOT a three, that he was not having any significant side effects.
After the first week I went to the evaluation with Dr. Younes’ PA, she was extremely nice but was concerned as Chris had lost 4 lbs. since she had seen he and Angela that 1st week. I wanted to tell her that he probably had had nothing to eat but a plate of spaghetti for days but kept my mouth shut. I assured her I would be cooking his meals at least three times a day . When we met with Doctor Younes Chris asked him for a prescription for Oxycodone for pain. I watched the Doctors face
“You shouldn’t be feeling pain on that level, why are you on Oxycodone it isn’t in your notes….”
I immediately realized Chris had committed a grave sin in asking. I knew Angela had a prescription filled for him from the Clinic. I hurriedly stated.
Oh! he was given a few after the lumpectomy when they did the biopsy on his neck a few days ago and he was in a lot of pain after that surgery and that is why as the prescription was only for a few of them.
That seemed to satisfy the doctor. When Angela called that evening I explained what happened and that the Dr. had prescribed Darvon . I mentioned the Doctor was not happy with Chris being on the Oxycodone . She just giggled and said
don’t worry I will get Chris a prescription….. Darvon is nothing more than Tylenol and does nothing” .
Well I wasn’t going to argue after all she was the 3rd year Resident. Apparently by this time Chris had developed a tolerance to pain killers. He told Angela the Darvon wasn’t doing anything and she said just double the dosage, until I come down next week . Keeping my mouth shut was getting more and more difficult.
Hurricane Ike had left its mark on many areas even a year later. We decided to take a drive to Galveston, I had been there with Nikki for dance competitions a few years previously and it was very interesting. Unfortunately, Ike had done a lot of damage and it was depressing . On the way Chris got a phone call from the Cleveland Clinic. The results of the compatibility test for his sister being a donor for the stem cell transplant were in. They asked if Nikki was his twin because the results were extremely good , very high and they usually don’t get those type of results except with identical twins
Breathing a sigh of relief as we now had another option in our arsenal we stopped for lunch. Our view of the sea front was dismal
.
There was one seafood restaurant open and we sat in the balcony over looking what was once the USS Flagship Hotel.
I deserved and needed a drink, something I don’t often do . The pier on which the Hotel was located obviously had been pretty hard hit . The waiter told us a lot of the business along the sea wall had not survived. Chris walked down along the beach and called Angela with the results from the Clinic and I sat on the bench and called Nikki. Once again HOPE!!!!!
To be continued
NO LIMITS-Jan 3rd- Chris Ritchey- Chapter 12
ED NOTE: It has been one year since I started this journey of serialization of my book/posts on my son’s, Christopher Ritchey, journey. I had thought, initially, to intersperse the posts as usual with other posts, pertaining to life, Lorain, crime and politics. I have found I just do not have the energy and the apathy is all consuming . I have come to the sad realization what I think and my passions on those subjects just don’t matter and don’t make a bit of difference in the real world. However, my journey with NO LIMITS continues, as hard as these chapters are to write and reliving the journey of hope and no hope there is a light at the end of this journey . I will continue to tell of our journey with transparency and truths.
No Limits – The Book
Forward: https://thatwoman.wordpress.com/2020/01/02/jan-3rd-no-limits-the-forward-chris-ritchey/
Chapter One :https://thatwoman.wordpress.com/2020/02/03/feb-3rd-no-limits-chapter-1-chris-ritchey/
Chapter Two:https://thatwoman.wordpress.com/2020/03/03/march-3rd-no-limits-
Chapter Three: https://thatwoman.wordpress.com/2020/04/03/april-3rd-no-limits-chapt-3-chris-ritchey/
Chapter Four: https://thatwoman.wordpress.com/2020/05/03/no-limits-chapter-4-chris-ritchey/
Chapter Five: https://thatwoman.wordpress.com/2020/06/03/june-3rd-no-limits-chapter-5-chris-ritchey/
Chapter Six: https://thatwoman.wordpress.com/2020/07/03/july-3rd-no-limits-chapter-6-chris-ritchey/
Chapter Seven: https://thatwoman.wordpress.com/2020/08/03/august-3rd-no-limits-chapter7-chris-ritchey/
Chapter Eight: https://thatwoman.wordpress.com/2020/09/03/sept-3rd-no-limits-chapter-8-chris-ritchey/
Chapter Nine: https://thatwoman.wordpress.com/2020/10/03/oct-3rd-no-limits-chapter-9-chris-ritchey/
Chapter Ten: NO LIMITS- Nov 3rd- Chapter 10- Chris Ritchey | That Woman’s Weblog (wordpress.com)
Chapter Eleven: NO LIMITS-Dec. 3rd- Chris Ritchey- Chapter 11 | That Woman’s Weblog (wordpress.com)
Chapter 12 : The Trial and Tribulations
The days following the biopsy found me sitting by the phone. I knew in my heart of hearts the news was awful but I clung to the hope they could be wrong, it had been known. I knew it was a foolish hope but you grab anything you can to hold onto.
Chris came to stay with Nikki that last weekend in August . He was so pale and quiet. I went over bearing his favourite food . Nikki told me he had been out in the woods for hours on his four wheeler , alone and not wanting to talk to anyone.
We waited, and when he came in I saw my son trying to put on a brave face. We all tried to act normally I sat with him at the kitchen counter , trying to eat . He was , for my sake, trying to force the food down. A friend of my son-in-law, oblivious to the situation, came in talking about the hunting season to come and new equipment he was planning to purchase. It was so normal and so damned surreal. Chris left the kitchen , I knew he was thinking
I probably won’t be here for that season.
I waited, trying to swallow my scream. Nikki came into the kitchen and said ”
Mum, Chris is not good, you had better come upstairs
I followed her up to the guest room, also now known as Chris’ room. He was laying on top of the bed and had broken down, the fear, the hope, the fact he would die crashing down on him and he could no longer put on a brave face that day .
I didn’t know what to say or do . I felt totally helpless. I sat on the bed next to him and Nikki was on the other side and we huddled and cried together. After a while I said , not knowing really what I was saying
“The three of us like this, Chris , is probably Angela’s worst nightmare”
Finally a weak smile and I said to my son , almost believing it myself
Chris , I will move heaven and earth to find another way another treatment, even if it means going to Germany or Europe
( I had heard they were making strides in Germany with Refractory Hodgkin’s)
Chris went back out into the woods riding and I went home to get on the computer and research.
I went home worried beyond reason for my beautiful son. The phone rang it was Angela’s mother Sue Lombardi wanting to know something inconsequential.
I said Sue:
I can’t even think about that know ( I can’t even remember what it was ) I have just left Chris and he is in a terrible state.
WELL! she said NOW YOU KNOW WHAT ANGELA HAS BEEN PUTTING UP WITH .
I couldn’t believe the sanctimonious, cold hearted cow!
PUTTING UP WITH , he is dying and scared and turning to his wife.. don’t talk to me .. putting up with ????
she said :
maybe putting up with wasn’t the right choice of words .
No! it wasn’t I am going now. I have things to of more importance to deal with
Finally Tuesday came when we once again sat in the offices of Dr. Pohlman. Chris sat alone on the side of the room, he had on his aviator glasses and cap was pulled down, as I looked at my son , knowing these glasses were his defense against the emotions he was feeling being shown to us. Nikki and I sat together and Angela drew up a chair on the opposite wall.
No-one said a word, and Dr. Pohlman of the diamond earing , white framed glasses , starched white coat and Italian leather shoes entered the room.
I was never keen on him , his bed side manner was decidedly lacking , but Chris liked him, why? I don’t know . As he sat down he looked at us , looked at the report and said coldly:
“This is bad, very bad. Your immune system, ( looking at Chris who had not moved but sat like stone) does not recognize the cancer. As your body deals with the good cells it is also helping the cancer cells . Another stem cell transplant , this would be a donor transplant in the hopes that their immune system would take over (allogeneic) is a remote possibility , but the insurance probably would not OK it.
Nikki , spoke ” well why can’t we try? “
Pohlman looked as if he had noticed her for the first time,
“and you are his sister? Well we could test you as a donor, are you willing “
“Of course I am willing I will do anything “
Polhman then continued.
Chris your only hope for a “cure” ( and yes he said the word “cure” )is to get on a trial for the drug SGN35 .
I finally found my voice,
how do we do that?
Unfortunately,
he said ( and this was the Tuesday morning after waiting for days for the results of the biopsy)
We.at the Clinic closed down the admittance to the trial of SGN 35 we have here on Friday and there are no more spaces available. I am not sure there are any openings around the country.
I was incredulous , this young man had been treated by them from the very beginning they KNEW the cancer had returned , they knew he would need options , they held out the hope again to only withdraw it coldly and clinically. I was so angry I couldn’t speak. Angela sat there ,
For god’s sake I thought Angela say something, you are a resident going to be a Dr. a member of the Cleveland Clinic yourself say something!!!!!This is your husband fight for him.
Angela said nothing, it was Nikki who spoke :
You are the Cleveland Clinic , the best in the nation, and you are telling me that Chris has been your patient all this time and you come in here offering nothing, just that a trial has closed, why didn’t you reserve him a space. You KNEW what those results were . and all you can say is “this is bad , very bad ” and there is a hope for a cure but not here . Then Where????? Don’t kick him to the curb, he is not a lab rat……
Chris’ face book page
I am not sure Polhman was expecting that , I know Angela looked shocked. Polhman was the big shot specialist, I am sure she wasn’t happy with Nikki questioning him. Polhman turned his hands outward in a gesture of “oh well” said that he would send his assistant to set up a test for Nikki and he would have them see if there were any openings for SGN 35 in other states , but the trials had all closed on the Friday . He had other patients he had to see.
As they all walked out I asked what about Europe, Germany , he looked perplexed. He didn’t know and was that an option. I said:
anything is an option to save my son’s life and walked out.
The rest of the day found Angela looking into options, contacting people she had been in medical school with. Nikki on the computer and I called family in the medical community , who dealt with Cancer research . They put me in touch with Chicago and Columbus trials, talking to Doctors, setting up appointments.
Angela had the best options with MD Anderson Houston Texas . She sent Chris records through to a friend who said they would get them to Dr. Younes who was doing the trial.
Wednesday morning , Nikki and I picked up Chris from his apartment and we went to the Clinic for them to be matched for a allogeneic transplant. This done we went back to his apartment, not really speaking . We stayed for a little while, I was so worried about Chris , he had lost hope. I left Nikki and Chris in the living room and went to busy myself making the bed incase he needed to rest. Nikki came flying into the room. Dr. Younes’ PA from MD Anderson was on the phone and they had an opening for an appointment the next day in Houston.
The next afternoon at two o’clock . OMG!!! the thoughts tumbled and whirled through my mind. Take the appointment , call the airlines, Chris call Angela , where is my credit card , get them on a flight, book a hotel near the hospital , get some money . By eight o’clock they were boarding a flight to Houston….
the roller coaster ride was starting up again
to be continued……..
NO LIMITS-Dec. 3rd- Chris Ritchey- Chapter 11
No Limits- The book
Forward: https://thatwoman.wordpress.com/2020/01/02/jan-3rd-no-limits-the-forward-chris-ritchey/
Chapter One :https://thatwoman.wordpress.com/2020/02/03/feb-3rd-no-limits-chapter-1-chris-ritchey/
Chapter Two:https://thatwoman.wordpress.com/2020/03/03/march-3rd-no-limits-
Chapter Three: https://thatwoman.wordpress.com/2020/04/03/april-3rd-no-limits-chapt-3-chris-ritchey/
Chapter Four: https://thatwoman.wordpress.com/2020/05/03/no-limits-chapter-4-chris-ritchey/
Chapter Five: https://thatwoman.wordpress.com/2020/06/03/june-3rd-no-limits-chapter-5-chris-ritchey/
Chapter Six: https://thatwoman.wordpress.com/2020/07/03/july-3rd-no-limits-chapter-6-chris-ritchey/
Chapter Seven: https://thatwoman.wordpress.com/2020/08/03/august-3rd-no-limits-chapter7-chris-ritchey/
Chapter Eight: https://thatwoman.wordpress.com/2020/09/03/sept-3rd-no-limits-chapter-8-chris-ritchey/
Chapter Nine: https://thatwoman.wordpress.com/2020/10/03/oct-3rd-no-limits-chapter-9-chris-ritchey/
Chapter Ten: NO LIMITS- Nov 3rd- Chapter 10- Chris Ritchey | That Woman’s Weblog (wordpress.com)
THE HOPING TIME- CHAPTER 11
I was never one for organized religion. My brain always questioning as to the logic of faith. The stories written by men with agendas put in the form of a bible, or a book, tablets, writings, of whatever faith was in vogue, translations based on the politics of the day. But I prayed to an all-powerful, all knowing being commonly known in my society as God! I prayed every waking minute silently, and every night alone I prayed out loud. Please God take me not him, let him have his life and happiness. I did the deals parents do when they believe someone magical being can overturn a fate. I would have sacrificed myself on any alter “He” deemed needed to save my son.
Almost every church in Lorain had him on their prayer chain. Churches both Catholic and Protestant in England, Scotland, New Zealand Australia and Canada reached out to the heavens in my son’s name. Synagogues, Buddhists and Native Americans joined in with their prayers . I was sent so many little bottles of Holy Water from Lourdes, from pilgrimages made on behalf of Chris that I could have opened a market stall.
The thoughts kept going through my head.
“If there is a God as most seem to believe and he has no use for me and no reason to answer my prayers surely He can’t ignore the hundreds of people who are praying for Chris, and especially his wife and family a pillar of the Catholic Church. What about their prayers does my lack of faith tip the scale against hundreds of believers?
What about Chris what did he ever do in his young life to deserve this ? His sister what had she ever done, his father his Nana? The believers told me God has a plan? Well I don’t like his plan when the drug dealer who has raped and caused hell to his parents is walking around procreating and causing such turmoil why not him I asked why Chris? I did not get an answer and ten years on nothing has changed for the drug dealer except his vehicles.
June turned into July , I watched as my son started to look better from his chemical death. He grew stronger and I started to breathe a little better. Late July found him going on a 4 wheeler trip with the guys.
Normalcy and fun , so I thought. Dr. Pohlman had told him in June he wasn’t going to have to see him until November and he had no restrictions as such, just to stay away from people who may be ill etc. When Chris came back from that trip he was obviously tired but there was something else going on . I prayed it wasn’t the cancer coming back again.
Chris opened up to Nikki that he thought the lump was coming back on his neck a compromised lymph node . My understanding is the cancer cells in the blood are larger than normal cells and so can’t get through and block the system causing the lumps ( tumors) . That of course is the very simplest of explanations , there is so much more .
Chris finally having shared his fears with Nikki and they called the staff member in Pohlman’s office he had been given as a contact. They basically said to keep an eye on it and he had an appointment moved up until August.
The Doctors decided to do a biopsy on August 21st , Chris’ birthday. I will never be able to think of his birthday in the same way again.
I drove to the downtown Cleveland Clinic wanting to throw up all the way. I was so scared I couldn’t even think straight. Chris and Angela were already there. Nikki having fed the baby,( she was breast feeding) was on her way. We sat in silence in the waiting room , Chris, Angela and I , I had no words. Nikki arrived looked at her brother and said “Birthday” he smiled . He was taken back to pre-op Nikki and Angela went with him . I sat along in a corridor trying not to fall apart, everything within me was screaming.
Chris was taken down and we went to the waiting room only to find Angela’s support team. One of them her grandmother , they wanted to get something to eat so I duly followed on. The grandmother who was nice enough in her way but in my opinion sadly lacking in forethought said:
“What a shame, on his birthday too. Oh isn’t it your birthday in a couple of days, are you having a party to celebrate”
and on she “clacked”. I thought has this woman any idea of what Nikki and I are going through. I sat quietly through the “meal”, whilst they ate and rattled on about this and that, we then went back to the waiting room.
The big board with all the operations and who was in surgery and who was in recovery kept changing. The grandmother true to form had not finished. Nikki had left me to go and express her milk. As I sat there visualizing what was happening to my son Grandmother pipes up:
Let’s have a contest , everyone pick a time as to when Chris goes to recovery, how much longer do you think it will be. Angela you are the Dr. so you start.
and they did . I was by this time bringing up bile in my mouth, I could no longer sit there , was not one of Angela’s support team going to shut this stupid woman up. Did they not see how inappropriate this was and how painful?
I got up and left and went outside crying. Nikki found me as they had no idea where I had gone. Chris had come through the surgery and was in recovery. The surgeon came out and said it went well and they were sending the sample for tests. Angela left to share the news. Nikki looked at the surgeon and said:
is the cancer back?
He was very nice and said
we have to wait for the results.
Nikki looked at him and said :
You have done hundreds of these and you can tell, I know , is the cancer back
He looked at her and just nodded.
Mum, you can’t go back into the recovery room . Chris will take one look at you and know . You have to leave.
and so I did . I don’t remember driving home . I was numb , perplexed desperate.
Chris missed my birthday but came two days after with my “candles” he always bought me candles since he was a little boy.
April 3rd- The Candle Connection- Chris Ritchey | That Woman’s Weblog (wordpress.com)
As soon as Chris was old enough and earning money, he would buy me special candles – the trouble was they were always artistic and expensive and I couldn’t bring myself to light them. After one more such gift of candles I couldn’t bear to burn , I told you:
“Chris, these are far too nice to burn – just buy me ones I can feel OK with lighting” .
The next birthday came the “Daisy Candles” and once again I didn’t have the heart to burn them I supposed you had forgotten the request .
I noticed the cellophane around the “Daisy Candles” was definitely yellowing and becoming brittle. My thought was to bring them into the living room where my mum, who loves daisies might get some cheer from them as a symbol of “spring will eventually arrive and with it daisies”
I brought the candles downstairs , took off the wrapper and then saw the instructions-
I realized as I read those words you had listened to me– because the candles were special- the wick would burn for 29-30 hours and when it was done the outside of the candle would still be intact and I could insert tea light candle that would illuminate the outer shell.
the thought struck me the candle was yet another symbol- how your life burned with beauty and strength for as many years as those candles had hours (29) and what was left was a mere glimmer of memories that would only burn as long as I lighted the “memory of you” . The “tea light” of the 3rd of every month where once again your life is lived!
The candles , the last he bought me, are still waiting to give a light that has been lost to us.
To be continued………
Sept. 3rd – No Limits- Chapter 8- Chris Ritchey
No Limits- The book
Forward: https://thatwoman.wordpress.com/2020/01/02/jan-3rd-no-limits-the-forward-chris-ritchey/
Chapter One :https://thatwoman.wordpress.com/2020/02/03/feb-3rd-no-limits-chapter-1-chris-ritchey/
Chapter Two:https://thatwoman.wordpress.com/2020/03/03/march-3rd-no-limits-
Chapter Three: https://thatwoman.wordpress.com/2020/04/03/april-3rd-no-limits-chapt-3-chris-ritchey/
Chapter Four: https://thatwoman.wordpress.com/2020/05/03/no-limits-chapter-4-chris-ritchey/
Chapter Five: https://thatwoman.wordpress.com/2020/06/03/june-3rd-no-limits-chapter-5-chris-ritchey/
Chapter Six: https://thatwoman.wordpress.com/2020/07/03/july-3rd-no-limits-chapter-6-chris-ritchey/
Chapter Seven: https://thatwoman.wordpress.com/2020/08/03/august-3rd-no-limits-chapter7-chris-ritchey/
After the Wedding- Chapter 8
All during the trip to Europe I was in a state of panic . I tried not to show my fear, after all Nikki was pregnant it was a time of celebration, of being with family and supposedly moving forward with hope and happiness. No matter how I tried I could not quell the terror that would shake me awake at night or in unguarded moments transport me to a dark place.
I wasn’t alone in this thing called premonition, Chris as a little boy had dreams and premonitions too. They faded as he grew or maybe he just didn’t pay attention to them. The day I brought my son home from the hospital, I sat gazing at his little flushed faced and those eyes , new to the wonder of a world experienced for the first time and my mother admiring her new grandson , I heard myself saying as I looked at my miracle and said out-loud as my mum sat with me – he will have a sad life! I don’t know what made me say it, I put it down to post-partum nonsense but I was always, in hindsight, since that utterance tried to make sure Chris’ life would not be sad. I spoiled him and loved him, laughed with him, enabled him and tried everything I could to protect him.
After Chris had completed his radiation treatments and we were finally over our “European Flu” , my husband and I were invited to the newlyweds apartment for dinner. I hadn’t seen Chris in a couple of weeks he had been travelling out of state for Wyse Advertising in his position as an Art Director. He had the Meineke Account and they were shooting a new ad based on Chris’ ideas which would be aired on CNN and on the Meineke Bowl December 27th 2008.
As I walked into their apartment that evening in November 2008 my arms full of wine and flowers , my son was sitting in “his” chair – one he had purchased after the wedding- men always have to have “their chair”. I stopped short as I looked at my son – something was wrong, his eyes, dark circles , pallor I knew it was not good, but he had been through a lot and was back at work; logical reasoning’s flooded into my thought process but I knew all the while knowing this wasn’t good. I smiled and said:
I will just give these things to Angela, talk to your dad, I will be back in a second.
I joined Angela in the small kitchen , I had hoped that my wariness of her , which I had felt from the first day I was introduced to her, would have dissipated now they were married. But no! it hadn’t, there was something that made me uncomfortable around her, something that made me try too hard with her, not be me. I remember thinking:
she is like her mother in so many ways but there has to be something I am not seeing in her that Chris does.
I knew from Chris’s own lips, Sue Lombardi, the mother in law, was an irritant to him and didn’t gladly suffer her. There were times my son used the cancer and fatigue as an excuse NOT to go to the Lombardi gatherings, and yet was well enough to join Jim and others at the Irish pub.
Angela, Chris does not look well to me is he OK…. is this the after effects of the treatment?
Oh No! she said
he caught cold on the trip for Wyse – flying you tend to pick up stuff and his immune system is down because of the chemo and radiation. He is on antibiotics from the Dr. at South Pointe.
I felt somewhat relieved, after all she was now a resident, the hospital staff knew Chris and his situation and so we sat down to dinner. I couldn’t take my eyes off my son, even though I was careful not to let him see I was looking and the quiet fear became a deafening roar.
Thanksgiving 2008 came, Angela was working (supposedly), I am not sure to this day that I believed that .. I felt that she wanted to spend Thanksgiving with her family and Chris with his, so they decided to each go their own way and Chris would go to Lombardi’s for dessert.
Chris sat as his usual place at the dining room table. I realized I hadn’t really seen Angela but a couple of times, and then only briefly, since they had been married. Chris would come to Nikki’s every weekend but never did Angela stay, she was usually with her family.
I had cooked Chris all his favorite dishes that Thanksgiving Day but they largely went untouched. After he left to join Angela at her mother’s, Nikki was worried:
We have to do something, Mum, something is not right with Chris, I don’t care what Angela says he is ill. .
Chris had been scheduled for a PET Scan but he didn’t want Christmas to be a blow out so he scheduled the scan after Christmas. We had a Christmas , Nikki and I treading on eggshells and swallowing our fears like they were broken glass.
Angela stayed at her parents and Chris as usual stayed with Nikki, he had his own room. I went over Christmas morning and Nikki was very worried Chris looked dreadful .
Angela duly arrived that morning in her pajamas and coat , she called up to Chris to
get up and come on she was waiting ,
they, the Lombardi Clan were all going to the cemetery where the little cousin who had been killed by the falling tree branch that September was buried in their pajamas with gifts for the grave , opening Christmas stockings and decorate a tree.
I heard my son say
“No that is sick I am not going to be part of that ,you go but I am NOT!
Angela Ritchey- In red – by Chris Ritchey
Angela’s face darkened , you could tell she was angry and that Chris had disagreed with her in front of me and his Nana . I heard her say as she left the room
” things will be different next year”
I remember my mum looking at me and saying:
you know that girl has a coldness in her I hadn’t realized….
prophetic words indeed.
Dec 27th, Chris was still at Nikki’s where we all tried to help him, Angela pretty much stayed away sulking somewhat after the Christmas morning incident, Chris explained . We duly sat around the flat screen to watch the Meineke Bowl for his ad.
I was sitting on the couch and Chris slowly started to slump over his head on my lap , like he did when he was a little boy and I knew…… time was not going to be kind…..
Chris, had the PET Scan January 3rd went back to Dr. Abraksia , the oncologist, who originally over saw the chemo treatments and eventually the worst fears materialized. Less than 3 months after being pronounced cured of the curable cancer Hodgkin’s Lymphoma morphed into Refractory Hodgkin’s Lymphoma.
Nikki was around 6 months pregnant when Chris called me that January evening with the news the cancer was back. I knew I had to tell Nikki in person – her being pregnant was something unexpected and we were treating her like crystal, as just 4 months before her pregnancy Drs. and specialists told her she would not be able to have children. But I knew she was pregnant before she did , I told Chris , he got angry with me
Mum, stop it you know how much Nikki wants a baby that is wrong of you.
I said ,
well I just know she is....
and when she came over with the scan I said
Oh Nikki I have to tell Chris……
there was such excitement
I knew that Nikki had to be told carefully so got into my car and drove to her home. It was snowing and icy and I nearly took out a mail box . Jim answered the door, one look at me and he knew things were bad- I told Nikki what I knew and she crumpled in two, just sort of folded up.
her baby brother –
she wanted to go to him right away but we convinced her otherwise- tomorrow we said .
Nikki and I went to Best Buy on the way and purchased a small flat screen for Chris’s bedroom- knowing he would be shut in that room whilst new treatments were tried. Chris was waiting for us, I started to unpack the TV whilst Nikki and Chris went to the bedroom- I heard him say-
Nik- I did everything they told me to do, why is it back it is supposed to be curable?
Other self by Chris Ritchey
My heart was in my mouth- I stayed out in the living room giving Nikki and Chris space” to be”. It was always the two of them against the world.
And so another medical chapter in the journey of the obscenity of Cancer began. I will write of that journey of stem cell transplants, trials the hope and the horror , the circus that is cancer . However, this book is not about the journey of medical treatment but that of life and connection.
The Touch- Chris Ritchey
August 3rd- No Limits- Chapter7- Chris Ritchey
No Limits- The book
Forward: https://thatwoman.wordpress.com/2020/01/02/jan-3rd-no-limits-the-forward-chris-ritchey/
Chapter One :https://thatwoman.wordpress.com/2020/02/03/feb-3rd-no-limits-chapter-1-chris-ritchey/
Chapter Two:https://thatwoman.wordpress.com/2020/03/03/march-3rd-no-limits-
Chapter Three: https://thatwoman.wordpress.com/2020/04/03/april-3rd-no-limits-chapt-3-chris-ritchey/
Chapter Four: https://thatwoman.wordpress.com/2020/05/03/no-limits-chapter-4-chris-ritchey/
Chapter Five: https://thatwoman.wordpress.com/2020/06/03/june-3rd-no-limits-chapter-5-chris-ritchey/
Chapter Six: https://thatwoman.wordpress.com/2020/07/03/july-3rd-no-limits-chapter-6-chris-ritchey/
After the Wedding:
I got through the wedding with a pretense of happiness, and the chemo and radiation treatments continued. We actually didn’t see Angela for weeks , she and Chris would come back to Lorain from Cleveland on weekends, Angela would stay with her parents but Chris would spend the weekend at his sisters, where I would see him. It was a bit strange but since I got to see him I wasn’t bothered.
Before Chris’s diagnosis his father and I, my mum and Nikki booked a trip to Europe. Mainly to attend a family event in September and for Nikki and her dad to go to Scotland and Germany, a cruise up the Rhine. It was supposed to be celebration of retirement and a break for us.
Unfortunately , it turned out to be the trip from hell. Apart from the fact none of us , after Chris diagnosis wanted to go and surprise, surprise Nikki found out she was 8 weeks pregnant, Nana was going to be a great grandmother at least this news was wonderful!
We still dithered about going but Chris insisted he was on his last treatment and only had some radiation to get through and we should go an enjoy. Enjoy was not the word we would ever use with that trip.
There were some good times whilst in England and Chris was only a phone call away from his worrying family . We checked on him daily, he probably got fed up but was patient with us.
It was when we left England the trouble started, we were the last train out of the Euro Tunnel to France when the tunnel caught fire caught fire. We weren’t aware of that until we reached Strasbourg and our hotel. We had only planned to stay in Strasbourg the one night Sept 11th . We had called home to tell them we would be out of phone contact for a week on the boat up the Rhine, only to be greeted with the news that the rail crossing and tunnel would be closed due to the fire and no-one was sure when it would open.
The boat on the Rhine was not good, Nikki was feeling queasy , no one spoke English and my French was poor , although I managed, we still couldn’t get any news and I hated every minute. Even the weather matched my mood
After 4 days I could stand it no longer and we left the boat early and travelled back to Strasbourg to the little hotel by the cathedral. Nikki put in a call to England whilst her dad and I went to look for food. Upon our return to the room we were greeted with the news Angela’s young cousin had been riding his bike home when a storm hit and he was killed by a falling tree limb.
Nikki was sitting cross legged on the bed the open Pizza box in front of her and no -one ate. The time difference meant we had to wait to try and get hold of Chris and Angela, and we had no idea what to do or say.
There is nothing worse than being away from your loved ones when something like this happens, you feel totally inadequate and helpless. The next morning , although I am not a Catholic, I walked across the square to Strasbourg Cathedral to light a candle of remembrance for this child who was of that faith.
My mind was not on the beautiful windows, architecture, statues and carvings
I watched the tourists as they quietly took in all the beauty that surrounded them, the sound of the Cathedral’s bells reverberating through the stillness.
My heart heavy, I leaned against a pillar whilst my husband took photos and noticed the stone pillar was scarred and what looked ( to me) like bullet holes, it hadn’t been fixed. Had there been a battle of some sort that had scarred the stone? Then I noticed
Life has a way of making you realize what is truly important “life itself”, I lit a candle for a little boy lost in Lorain, another for those brave men, boys really, whose mothers also wept whose young lives were lost all the time wondering what the future would bring , would prayers be answered…. and fighting down the tears I hoped I would not have to shed for my own son.
I knew Angela and her aunts were religious and fervent Catholics, but not sharing those same beliefs I wasn’t sure what we could do to ease or give comfort. Nikki and I purchased two rosaries from the Cathedral and had them blessed by the priest, one for Angela and one for her aunt whose sorrow I know was crippling.
Nikki flew back earlier and my husband and I stayed, he came down with some sort of horrible flu and by the time we traveled back 10 days later , we all had it, my mum, me and him. Mum ended up in hospital and I was out for the count for 11 days. It meant that I didn’t get to see Chris, none of us did because we daren’t with his compromised immune system . I didn’t get to see him until a month later. He had changed in the months I hadn’t seen him, his blonde hair had come back in dark, he had a goatee sort of beard that was tinged with red, he looked older in fact his nose had changed , I am not sure if the Chemo did something to the cartilage but his nose was thinner, a bit more beaky . I stared at him quietly seeing the changes in the lines of his face , his eyes , his smile was still the same though. Chris didn’t often smile but when he did he could light up a room and when I saw that smile as we walked into Nikki’s great room he lit up my heart once more and I remembered the years of smiles and love he had given to us always…….
To be Continued >>>
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