Posts filed under ‘health’
It has been a month since I last wrote on this blog- July has come and gone- I dread July because bad things always seem to happen. Your grandfather died unexpectedly in July , ill-health news over the years has been diagnosed in July, and the engagement I wished had never happened – on the anniversary of the day your grandfather died. You weren’t to know that day held that significance as you had champagne and roses sent to the top of the Lorain Lighthouse with the “will you marry me” .
It was also the day and weekend I was introduced to avarice and selfishness of the “incoming family” . A cold shiver ran over me that day – harbinger of things to come. I couldn’t believe your “bride to be” and her ” aunts” spent the day and next day touting the engagement ring around to local jewelers to see its monetary worth.
You had paid six thousand for that ring and I ended up having it professionally evaluated by an independent jeweler just to reassure you and the “family” it was worth what you paid for it. You got what you paid for and in fact was worth two thousand more . But what kind of a “bride” does that ? I remember saying to you –
I don’t understand the ring was a symbol of love and not money, I was pleased with a little diamond because it was given in love..
Then all hell broke loose and once again ambulances, ICU’s waiting in uncomfortable chairs, watching clocks that didn’t seem to move. The machines, the IV’ fluids, every beep of the monitor, oxygen levels, breathing counts, heart rates, every foot fall of the nurses, the chairs, the smells another two weeks of memories flooding in from the dying days of you , the alarms, doctor’s faces, the looks- you know those looks, this is not good. The tests, the scans the results. The drives to and from the hospital four and five times a day, all those emotions invading my new world of worry- pushing them away in order to deal with the latest health crisis, crippling once again. Walking once again in the early morning across the hospital parking lot- holding ones’ breath hoping the news overnight was positive , crisis in the middle of the night , waiting for the damned phone NOT to ring in the early hours, no sleep, running on empty.
But your Nana picking up the slack at home- 97 years old- and I would come home to a meal, a clean house, my bed made and a cup of tea. Too tired to answer the many phone calls wanting an update.
So went July- and with it another part of me, a another slice of strength and tolerance …….. August…….. your birthday …… and the cycle continues ….. the past became the present and the future counted in days and the time between remains blurred in the moment
Life continues to be in an upheaval , what with concrete chunks through windows, downspouts of retribution being the “breaking news” as Nikki stated to me as I breakfasted with her.
Anymore Breaking News this morning?
Sounded like something YOU would say and it did bring a smile. As I get older , I realize there really is nothing you can do to stop uncivilized behavior or downright meanness for because we can sake.
It was your Great Uncle John’s 104th birthday this week. Memories returned- letting you drive ( on the wrong side of the road) down the lanes to his cottage when we were on our trip to England for soccer. We went to the pub and introduced you to “real cider” – You thought it like American cider, it wasn’t – as you soon found out , needless to say you did not drive back.
In order to escape my mind and life in Lorain I tuned out of the present and tuned into all things British Acorn TV-
I have been watching a series Lilies
Lilies details the lives of Iris, May and Ruby Moss, three Catholic sisters living with their widowed father and brother in a terraced house in Liverpool in the early 1920s. The story is set in the years immediately after the First World War and, as such, the after effects of that conflict are apparent
Their little two up – two down terraced house with the back “yard” once again brought back the familiar; Nana’s sister , my Auntie Kath, who had the self- same little house- although in Ipswich not Liverpool. I remember playing in such a familiar yard, the step down into the kitchen, my granddad plucking the chicken for Sunday dinner. The program covered the Scarlet Fever epidemic
and once again memory bells went off!
Your Nana had written about her experience with having Scarlet Fever during that epidemic of the late 1920’s. You had designed the cover of that book , written initially for Nikki the only grandchild she had at that time of writing , then adding more for you.
Nana has lived here in this house now for 4 years, thanks to mean mindedness of yet another “in law” relative. Although she never really bounced back from that episode in her life , more fragile than she was , she is still one of the very few to whom I can turn with my demons.
But what a joy it is to have my mother here, her wonderful take on life- so different from my own, caring hands that bring a cup of tea when I am in pieces, for such a tiny person she has the strength of the ages. Maybe it was what her generation had to deal with the poverty, the great depression, World War 2 being bombed three times , I don’t know all I do know is she is a hell of a lot stronger than I ever was or can be. As she helped clear the glass from the window destruction
she said with a smile
I think I will change my address to High Street, Afghanistan.
Can one imagine a little girl not much older than Gavin, being taken from your home by ambulance ( Fever Van) and put into an isolation hospital, no mother or father to visit? http://www.ncbi.nlm.nih.gov/pmc/articles/PMC539454/
“The presence of a fever van in the street meant that a child would be forcibly taken from the family, with a strong likelihood of never returning, such was the high mortality of scarlet fever and diphtheria. Moreover, there were more materialistic concerns. The disinfection procedure that followed the removal of the child was likely to have a very destructive effect: ‘The child’s books and toys were to be destroyed, its bedroom disinfected by the application of concentrated solutions of powerful germicides to the floor, bed, walls and furniture. Wallpaper must also be stripped and burned’.5 These procedures caused much disruption and discomfort for the household.
The Isolation Hospital –
Hendon Isolation Hospital was the place Nana, her sister Renee, brothers- Mark and Paisy were taken . The hospital had been built near the Hendon Sewage Works and Johnson Chemical Factory – Hindsight – what were they thinking category!!!
Hospital marked with cross- you can see the proximity to the “sewage farm”
Nana remembers well the sewage farm, the smell coming in the windows but apparently the tomatoes grown in the vicinity of that sewage farm were huge and plentiful( apparently tomato seeds are not easily digested and sprout) and sewage is used even today http://jonbarron.org/article/tomatoes-salmonella-and-sewage#.VecOvunwsc8 .
For six weeks she , her sister and brothers stayed in that hospital, no contact with kith or kin or the outside world. Mere children , taken from all that was familiar put into in scratchy hospital shirts and boots. The food she remembered was awful-
“it was like a minced beef – only I am not sure how much beef there was in it- horrible tasting stuff and bread with no butter , the bread fell apart and crumbles
– her young mind turning to poetry wrote :
“There is a place, a barn of a place right in the middle of the sewer and mince and crumbs come out our bums and back into the middle of the sewer”
not bad for an 8-year-old .
The children were sectioned in very long open wards similar to the photo shown here ( no source found and believed to be in the public domain)
Her brothers were separated from the girls and were put in the men’s ward. Mark, just two years her senior, found a way to sneak from the men’s isolation ward where there was a large cupboard( storage) housing fruits and vegetables . Mark would appropriate the fruit , sneak in during the nurses break to his little sisters loaded with the fruit which eased their sore little throats. Nana said after the Scarlet Fever rash went away your outer layers of skin would flake off just like having had a bad sunburn. She thinks the taste of that wonderful fruit gave her the love of fruits and vegetables she has today.
” I think all those stolen fruits and raw vegetables Mark smuggled into us each night certainly helped us as Renee and I recuperated much quicker than anyone else on that ward.
This is a guest blog post by my wonderful friend – Paula Tobias- Paula has been fighting her own battle with Ovarian Cancer –
How are the Department of Defense and Ovarian Cancer connected?
When I read this yesterday I was in one of many daily Pain moments; you know, on the scale of 1 – 10 (10 being the worst) I was a 9. The weather and more importantly the surgery, chemo and subsequent meds, tests, x-rays and PET/CT scans I believe have something to do with the agony dealt with on a daily basis.
The Department of Defense has funded innovative biomedical research programs for years that impact troop readiness. The Ovarian Cancer Research Program was added in 1997 and has since been funding research primarily aimed at finding an early detection test and better treatments for ovarian cancer.
Finding an early detection test for ovarian cancer is of critical importance to the military. Currently, any active duty military woman with a suspected case of ovarian cancer must receive her treatment in the United States (due to the availability of specialists here), so correctly identifying women that either do or do not have ovarian cancer is of critical importance to the military. Over the last five years alone, over 2,600 military women have had a suspected case of ovarian cancer. “
Senator John McCain will be adding an amendment to a bill in the Senate that would strip many of the research programs run by the Department of Defense, including the $20 million for the Ovarian Cancer Research Program(OCRP). The OCRP funds $20 million in innovative, high-risk, high-reward ovarian cancer research each year.
Senate staffers are calling this the biggest threat to medical research in 20 years.
I immediately called my Senators and left voice mails with my history. It took a lot to maintain composure while doing this and as soon as I was done, Frank (my loving, caring, patient husband) came in from work and surprised me. Well I surprised him with a burst of tears and language a soldier would blush hearing. At the end of that tirade I said, “Do you think the Senator would be asking this if it were his testicles at stake?”
I support all battling their cancer diagnosis, patient or family. I volunteer at my Oncologists office to empathize with those. I try to offer hope and comfort.
• Click here to send your Senator an action alert email that will tell them to oppose the McCain Amendment.http://cqrcengage.com/ovarian/app/write-a-letter?0&engagementId=108520
• Call your Senators and tell them to oppose the McCain Amendment
Please help and pass along this information and if we (Frank is still my miracle -13 yr. Pancreatic Cancer Survivor) can help anyone with their Cancer Battle, contact Loraine and she’ll connect us. Paula Tobias
ED NOTE: Whilst looking for the date of the vote I came across the following – it seems McCain’s amendment will not only effect Ovarian Cancer funding but Prostate Cancer funding as well –
Senator McCain amendment might kill Prostate Cancer research funding
Again and again and again Senator McCain (R-AZ) has attacked the Congressionally Directed Medical Research Program (CDMRP), which for PROSTATE CANCER has been among the most productive research vehicles we have to conquer PROSTATE CANCER.
It is beyond my understanding why he has taken up this vendetta. Every year he is our biggest enemy, trying his best to stop the great progress we have made. As usual, he is at it again!
Senator McCain is a major advocate for funding of the Defense Department, but he seems not to understand that the money that flows to the CDMRP does not take one dollar away from our defense budget. The money that flows to the CDMRP is over and above any budget dollar that will go to the Defense Department. So, why the vendetta against the CDMRP, I cannot explain it.
January 3rd- All over this planet people are starting this year of 2015 with goals- losing weight , spending more time with family, giving up smoking etc. My goal, is to be able to sit in the chair in the den long enough to write my 3rd of the month post for you my son. Not to do so would be , for me , breaking faith with not letting the world forget as so many in your life have already done, that you existed were loved and made a difference.
Without going into too much detail, I have had chronic pain for a few months. First the drugs were tried and they took care of it so it was manageable for a few weeks at a time but then more and stronger were needed. I have learned through your months of “hospitals and doctors ” more negatives than I ever wished to know about the health care system and some “professionals and hospitals”. Because of my life for those many months watching and seeing the outcomes I now trust only my instincts , my intelligence and my own research.
Yes that is right Chris, the one thing I learned is that I should have taken more charge of what was happening to you- I didn’t. Would the outcome have been the same? In all probability YES but the pain of our journey would have been lessened and hope would not have been sold “wholesale” for as long as the insurance paid and you would not have been Cleveland Clinic “lab rat”.
As I researched and interviewed Drs. I refused to be sent to anyone having anything to do with my dreaded Cleveland Clinic or doctors that took their residency under a certain Program Director at South Pointe Hospital –
I knew too much about that aspect of Dr. training from personal experience.
You would be amazed at the faces of potential health care professionals when I interviewed them. I am sure a couple were getting out the “white coat” for me. But remember this is my body , my choice, they are not gods, just people earning a living in the health care industry and not all doctors are of the same level. Putting a MD or DO to their name doesn’t make then all-knowing or of more than a “passable” expertise ! You and your insurance are paying for their expertise and yet so often we turn ourselves over to people we don’t know or know very little about or who know about you and say “save me”. You trust in their ability or the ability to refer but to whom?? You have rights as a patient and I now choose to exercise those rights.
However, I have managed even with my “outrageous to some” criteria to find a few wonderful doctors, and two very special hospitals, small enough to know my name and to whom , I and my family are people and not just an insurance number or the next condo in the islands payment .
One, St. John West Shore http://www.sjws.net/
has literally saved my husband’s life twice in the past 18 months and have treated my strange proclivity’s with patience, caring and understanding.
The pain worsened , I managed with drugs and hot water bottles and a lot of understanding from family and friends for the two weeks it took for the “insurance” to tell my doctor it was Ok for the next step.
Every time I filled the red hot water bottle , too hot for my bare skin, I thought of you the hundreds of times the five hot water bottles we filled in Texas as you went through the “trial” with no one but you and I. The number of scalding hot baths you took every night to ease the pain in your body. You never complained to me I know you didn’t want to scare me , you were “eating pain pills like candy” I knew you were just trying “to be”. I watched the pain envelope you but the phone would ring and you would answer in a voice so strong so as to hide the agony you were going through.
December 17th found me having the first procedure which went well, in fact better than expected and for 10 wonderful days I had only very slight discomfort- the pain forgotten as I got through Christmas. I was waiting for the procedure in the operating room and the anesthesiologist as he stated ” you will feel a little burn then nothing”- I remember thinking
I wish you could make me feel nothing! I wish you and your anesthesia had something to erase this horrible debilitating grief( that you are unaware of as I lay here)
But just like the tsunami of grief that is held at bay whilst life continues, so the pain laid low for a bit roared back into being . It came back after departing for a just a brief while,- contained – only to break through the medical barrier stronger for the respite as my body probably was doing more than it should without the warning of pain.
New Years Eve, found me once again laying on the table waiting to have my misery relieved. I have in the past months learned to live outwardly not showing for the most part the grieving mess I really am- the powder and paint of normalcy painted on like a mask every morning.
This time although I felt nothing due to the anesthesia and how that works is a mystery to me and also to others
” Despite their necessity in modern medicine, scientists aren’t sure exactly how anesthetics work. The best theory suggests that they dissolve some of the fat present in brain cells, changing the cells’ activity. But, the precise mechanisms remain unknown. ”
Well the fat cells in my brain may have been dissolved but apparently “according to the nurse” my fat body ( she didn’t say that though) was not co-operating and was moving around in pain on the table for a bit even after my brain was anesthetized .
Not such a good thing for the doctor, I would assume, poised to do a delicate procedure. I, of course was unaware this happened although in my mind’s eye this great lump of a body laden with grief flopping around on the table half-naked probably wasn’t a great sight for him that New Years Eve. He earned his money that day.
So here it is January 2nd , my pain has lessened although I am not fully functional but I am endeavouring to sit in a chair for as long as it takes to finish this post for you. – a lap top may be in my future-
But somehow I will get this post written and posted even if I have to take jpgs of these scribbles and post them.
Another year without you in our lives will not be happy but hopefully it will at least be free from physical pain…. and I think of you every waking minute of every pain filled moment… I love you Chris
Disclaimer : The views and opinions in this post as to various doctors and hospitals are entirely my own based upon my varied experiences with such entities through out the illness of my family members and myself. I have no medical expertise but the life experience of having been there immersed in the world of medicine !
The day war was declared- your Nana, a survivor of living history,remembers that Sunday well like it was yesterday.
It was one of those defining moments in life. A war, that saw your grandfather have his youth , innocence and joie de vivre ripped from his being , not to ever fully come back to him.
Their young lives changed forever by a few words spoken on that September 3rd .
Your life was changed forever and ended by words – you have cancer
I know that I have changed but I hadn’t realized how much. Last month a gift- a VHS tape – found on the floor of the garage-
Your dad brought in the bag of VHS tapes and started to play them. There you were, once again, your childhood played out in the pool, on the soccer field , rowing boats , Christmas morning, skiing laughing and loving with us
I still can’t watch most of the tapes , it is like trying to breathe underwater. Looking at the dance tape of Nikki with Braedyn and Gavin – little Braedyn glued to the screen as his mummy danced, Gavin telling his mummy – you are beautiful
I saw myself , the MC of the event taking center stage – I was so confident, knowledgable , open to the audience , carefree, laughing, smiling and welcoming. I saw myself in a swimming pool with our family, your sister and friends racing the lengths of the pool , the music of laughter rang once more in this house as the tape played and those voices of summer came back from the past. .
And then a Christmas morning , the living room which held so many Christmases, your Nana and I sitting on the couch surrounded by presents , the noise, everyone talking at once, the puppy – that was Sheena , the paper wrapping making a pile in the center for Sheena to attack. What struck home with me was the laughter and conversation in which Nana and I were engaged. We didn’t stop talking and laughing – I was confident enough to make a complete fool of myself with the most horrendous pair of earrings. I still have those damned earrings , but I no longer have you or the me that I was.
I knew I lost ME when you got cancer and died- but I hadn’t realized how much of me I had lost . I was looking at another person, not recognizing her at all anymore. She died too and I grieve for the faces of life caught in a web of video. I grieved for the loss of laughter, happiness and confidence. I am so different , no longer the daughter, wife, mother , friend and neighbor of before.
I am reminded by the collage that will play such an integral part of the book I am writing “of you”
Confidence Gone– I opened up to you and my lack thereof – in Texas on another September day as you wrestled with cancer and untruths- set in a holiday setting of palm trees and sparkling waters – I spoke to you that day – unsure…
You see when a son marries he brings into his life another woman- it is very difficult in the best of circumstances for a mother to sit back and watch decisions being made that in some cases I did not agree with in a normal situation- this terrible situation we find ourselves all thrust into makes it doubly hard. But I have deferred to you both and to her “medical expertise” with this obscenity of Hodgkin’s that has engulfed us. It has been one of the hardest things in the world for me not to interfere or to put in my two cents. There have been times Chris, when I have doubted my own abilities and lost confidence in myself – I have gone against my own gut feelings and yet there is a voice that tells me to still be protective of you .
and so I continue – no longer me – no longer with hope, no longer belief in a greater all knowing supreme being, no longer happy, welcoming and confident just a transparent shell of before…. whose smile only surfaces when two little boys break through the endless night of losing you…….. the other self
A couple of months ago I watched a television program on
past lives and regression therapy.
Being the cynic that I am , I looked at the show with more than a hint of skepticism. In ALL things I look at the “agenda” who profits from promoting “health” – “beliefs” from organized religions of the world to those that can talk to the dead and those that can say we are reincarnated. As I reach my sell by date in this life I suppose I will find out the truth soon enough😉
However, curiosity got the better of me , I decided to try this regression therapy- after all I pride myself in not being a follower, having some intelligence , not easily fooled. I also wondered IF hypnotism would work – maybe I could change the habit of “food for comfort” !
I spent a few days researching those practitioners within a reasonable driving distance who had certain qualifications – one being clinical psychologists who would allow the session to taped and also witnessed. I found half a dozen that fit most of the criteria but only one ( who happened to be the most reasonable – this does not come cheap) the closest and also the ONLY one who allowed the taping and the witness. That was the deciding factor for me ! I was going to see a complete stranger on their turf. I wanted one of my own with me . I didn’t want to end up barking like a dog at the next council meeting if someone gave a trigger word.
Purposely , I did not research what it is like to be hypnotized, what happens, regression techniques, or relaxation techniques. I did not want to go to the session with any preconceived ideas planted in my brain.
I took my daughter with me and our trusty tape recorder and for once a “purposely” open mind .
Would I really find out it I had lived before? Would THIS life and the tragedy that befell me and mine with the losing of my son finally make any sense? Because none of it in this life time makes any sense to me, not the faith-based religions, not the medical diagnosis and subsequent explanations which amounted to a “shoulder shrug” or the crassness experienced by those that supposed to love. Would I find out from a previous existence what I had done?
Answers, we spend our life looking for answers to questions of the unknown, looking for logic where there is none. Humankind, desperate to find out we are somehow “special” – more so than the other inhabitants both vegetable and animal of this planet who come into being, live, feed, procreate and die leaving another generation to carry on. What makes us so special to think there is a plan” for us? We certainly haven’t learned much from all the teachings in the books of organized religions. Thinking that maybe I WAS “special” and there was a plan, a reason for this gutting pain that would ,at last make, some sense.
Had I done something in my past life that now revisted me in kind in this? Was I supposed to right a wrong or deal with the cretans in this life I had neglected so to do in a past life? Some sort of Karma ?
Karma is a Sanskrit word from the root “Kri” to do or to make and simply means “action.” It operates in the universe as the continuous chain reaction of cause and effect. It is not only confined to causation in the physical sense but also it has moral implications. “A good cause, a good effect; a bad cause a bad effect” is a common saying. In this sense karma is a moral law.
Now human beings are constantly giving off physical and spiritual forces in all directions. In physics we learn that no energy is ever lost; only that it changes form. This is the common law of conservation of energy. Similarly, spiritual and mental action is never lost. It is transformed. Thus Karma is the law of the conservation of moral energy.
By actions, thoughts, and words, man is releasing spiritual energy to the universe and he is in turn affected by influences coming in his direction. Man is therefore the sender and receiver of all these influences. The entire circumstances surrounding him is his karma.
With each action-influence he sends out and at the same time, receives, he is changing. This changing personality and the world he lives in, constitute the totality of his karma.
Karma should not be confused with fate. Fate is the notion that man’s life is preplanned for him by some external power, and he has no control over his destiny. Karma on the other hand, can be changed. Because man is a conscious being he can be aware of his karma and thus strive to change the course of events. In the Dhammapada we find the following words, “All that we are is a result of what we have thought, it is founded on our thoughts and made up of our thoughts.”
The first part of the session which lasted over two hours, was a getting to know each other and explanations of what would be happening to me as I went through the process. The do’s and don’ts and also the “why” I wanted this session. I was completely open and relaxed……
The following links explain pretty much what I was told in the beginning of the session
I was told- I would be aware of my immediate surroundings, I would hear the “outside noises etc” and so we began
……. To be continued……….
Every single day this blog receives searches looking for answers and information on Humira and other auto- immune medications. The information on this blog has been garnered not from the medical community, the drug sales force, the commercials but from the mothers of those who are the faces of the “black box warning” .
– No one wants another mother to share their pain. Graciously in the midst of their own suffering they have answered emails sent through this blog and elsewhere to advise from their own personal experience- the following is one such response to those that search.
You are right to look for information about Humira, and any other kind of powerful auto-immune medication–and there are several on the market today of similar biological make-up. In addition, there are other drugs that are frequently prescribed in combination with these auto-immune drugs (a protocol called recombinent drug therapy) which when taken together, can have additional serious (deadly) adverse side effects. All of these meds are/can be very, very dangerous, but every situation and individual is different.
If you are concerned, it will be entirely up to you and/or your family to do the appropriate research before you make a decision one way or another to take these kinds of medications.
Please, DO NOT waste your time contacting the sales reps for the drug company. They do not know, and WILL NOT tell you anything even if they do. They are not research scientists, doctors, or experts in anything except how to sell a product and make a commission.
Unfortunately, it is probable that your doctor will not know much more since they, too, purchase the meds from these same salespeople. Nor can you assume or expect a pharmacist to know any more about the dangers of these drugs than what is included in the package insert they dispense. The bottom line is no one can give you information unless it has first been provided by the drug companies and this is precisely why we are in such trouble.
I strongly suggest that you do as much research as possible about any auto-immune medication being prescribed for whatever your particular condition might be. Humira and other similar medications can be, and are used safely by thousands of people, but not everyone.
You may be fine with this medication, but it would probably still be a good idea to
1. find another one or two doctors for second or third opinions.
2. Ask as many questions as you can about length of treatment and expected outcome.
3.You should also go online to the FDA website for information about Humira (and other auto-immune drugs) and look for material specifically regarding adverse events. You need definitely to do this, if you do nothing else.
Any information about dangerous side effects for these drugs will be listed there. You will not be able to get this information in any format that is intelligible, providing you can even find it, on the label.
It is interesting to note as well, that Canada’s equivalent of the FDA is often years ahead of the U.S. in terms of issuing safety warnings for a variety of drugs that are freely prescribed in this country without a second thought. I would suggest that anyone with concerns check Canada’s governmental health website.
Also, here are two excellent websites.
Do a thorough search of your condition and its drug treatment in the professional medical journals. I cannot stress this enough. This means you will need the help of a librarian, possibly at a University, school, or hospital who will have electronic access to a wide range of peer-reviewed serials and/or medical databases that you will not be able to find online on your own. This is important because a lot of what you can locate through a Google Search will not include the kind of information you will find in peer-reviewed medical journals—which are ONLY available at a medical (hospital) or university library. And it is this specific information you want.
The important thing is not to panic. Do your homework and don’t rush into anything before you feel as comfortable as possible with your decision. Our sorrow is a result of not being fully informed (warned) in advance of the dangers associated with these meds–because the information was not made available either to the general public or prescribing physicians until years after my boy died.
The bottom line really is ask questions about everything, do your research and if you feel uncomfortable with any kind of vague response…be cautious. Ultimately, you will have to make a decision, but an informed decision is absolutely necessary.
Consider all possibilities, including NOT taking a drug and what that might mean for you as well. Sometimes, horrible things happen regardless of how much you know and the most carefully considered decision. Sometimes, all that we can do, and have done, is not enough. Sometimes, there is no other choice–taking a particular medication is the lesser of two evils (disease vs. treatment). But, there is everything to be gained by being fully informed about ALL possibilities/options before you put yourself or a loved one at risk.