January 3rd -No Limits- Chapter 24- Chris Ritchey

 

 

NO LIMITS

Forward: https://thatwoman.wordpress.com/2020/01/02/jan-3rd-no-limits-the-forward-chris-ritchey/

Chapter One :https://thatwoman.wordpress.com/2020/02/03/feb-3rd-no-limits-chapter-1-chris-ritchey/

Chapter Two:https://thatwoman.wordpress.com/2020/03/03/march-3rd-no-limits-

Chapter Three: https://thatwoman.wordpress.com/2020/04/03/april-3rd-no-limits-chapt-3-chris-ritchey/

Chapter Four: https://thatwoman.wordpress.com/2020/05/03/no-limits-chapter-4-chris-ritchey/

Chapter Five: https://thatwoman.wordpress.com/2020/06/03/june-3rd-no-limits-chapter-5-chris-ritchey/

Chapter Six: https://thatwoman.wordpress.com/2020/07/03/july-3rd-no-limits-chapter-6-chris-ritchey/

Chapter Seven: https://thatwoman.wordpress.com/2020/08/03/august-3rd-no-limits-chapter7-chris-ritchey/

Chapter Eight: https://thatwoman.wordpress.com/2020/09/03/sept-3rd-no-limits-chapter-8-chris-ritchey/

Chapter Nine: https://thatwoman.wordpress.com/2020/10/03/oct-3rd-no-limits-chapter-9-chris-ritchey/

Chapter Ten: NO LIMITS- Nov 3rd- Chapter 10- Chris Ritchey | That Woman’s Weblog (wordpress.com)

Chapter Eleven: NO LIMITS-Dec. 3rd- Chris Ritchey- Chapter 11 | That Woman’s Weblog (wordpress.com)

Chapter Twelve: NO LIMITS-Jan 3rd- Chris Ritchey- Chapter 12 | That Woman’s Weblog (wordpress.com)

Chapter Thirteen : NO LIMITS- FEB 3rd- Chris Ritchey- Chapter 13 | That Woman’s Weblog (wordpress.com)

Chapter Fourteen: March 3rd, NO LIMITS, Chapter 14- Chris Ritchey | That Woman’s Weblog (wordpress.com)

Chapter Fifteen: April 3rd- No Limits- Chapter 15- Chris Ritchey | That Woman’s Weblog (wordpress.com)

Chapter Sixteen: May 3rd – No Limits- Chapter 16- Chris Ritchey | That Woman’s Weblog (wordpress.com)

Chapter Seventeen: June 3rd-No Limits-Chris Ritchey-Chapter 17 | That Woman’s Weblog (wordpress.com)

Chapter Eighteen: July 3rd – NO LIMITS- Chapter 18-Chris Ritchey | That Woman’s Weblog (wordpress.com)

Chapter Nineteen: https://thatwoman.wordpress.com/2021/08/03/august-3rd-no-limits-chapter-19-chris-ritchey/

Chapter Twenty: https://thatwoman.wordpress.com/2021/09/03/september-3rd-no-limits-chapter20-chris-ritchey/

Chapter Twenty One:  https://thatwoman.wordpress.com/2021/10/03/october-3rd-no-limits-chapter-21-chris-ritchey/

Chapter Twenty Two : https://thatwoman.wordpress.com/2021/11/03/nov-3rd-no-limits-chapter-22-chris-ritchey/

Chapter Twenty Three: https://thatwoman.wordpress.com/2021/12/03/dec-3rd-no-limits-chapt-23-chris-ritchey/

Cleveland – The Dying Time

 NOTE: Two  years ago  today  I started writing  Chris’ story  of his life and time on this poor planet  . I cannot begin to  tell you  the toll these last few chapters have taken upon my  very  being.

I have to  write at night when all is quiet and I  am alone with  my  tears and gutting pain, trying to  swallow back the emotions that erupt out of  the very  depths of me. It is painful and torturous but I promised and I will keep  that promise to  my  son.

despair. by Chris Ritchey

Chris spent a few days being tested after returning to Cleveland , getting fluids. It was the Friday  before Thanksgiving . I had spoken to  Chris on the phone the night before , he wanted to  come home  for a few days but could he come to  our house as  he didn’t want to  add to Nikki’s work, as she had the baby.

I said that was fine, have Angela drive him here if he was a bit wobbly  to  drive  and I  would get a room ready  and  etc.

On that Friday  I was in K Mart getting  new bedding and towels, groceries  that I knew he would eat etc. for him and anything thing else I could think  of to  make him comfortable for when he came home. I knew that his dog Misty would help  , they  so  loved each  other and Misty  missed him terribly.

My  mother and I  were just  getting ready to  go  through the checkout when Angela called on my  cell phone . I became  a little confused as she said:

“Chris, said that you  were going to  come to the apartment and stay  the night with  him as I  have to  be on duty”

This was the first I  had heard of it , but I didn’t say  anything, maybe Chris had not told her he had wanted to come home . I  would ask him when I  saw him.    I  went along with  her and said

Yes I  can come , what time 

she said  she needed me there by  6.

Ok I will bring him supper  and will be there at 6. 

I went home made arrangements  and took the food up  with  me. When I  arrived, just before 6, Angela had already  left . Chris was lying on the couch  looking dreadful. He hadn’t eaten so  I  thought maybe he needed some nourishment . He ate in silence and then said :

 Mum, you  will have to  go  down and let this guy  in he is coming to  bring an oxygen tank

Why?  what is going on, what happened I thought you  were coming home, I  don’t understand. 

Well it seems he never told Angela about wanting to  come home because he had started having difficulty  breathing  they  went to  South Pointe again.  They  prescribed oxygen to  help  with  the breathing, they  though  he might have the flu.

Oh  that damned flu  shot , I didn’t think  it was the flu  I thought that shot is giving a false reading

but then I thought

it can’t be that bad they  would have kept him in.

The man with  the oxygen tank arrived, hooked  up  this cylinder type tank and Chris looked a little better.  After he left Chris wanted to  watch  a movie . I remember his words so  clearly , he was trying to  put on a movie and the exertion of going across the room  took everything he had.

“This is like drowning must be, not being able to  breathe is so  dibilitating , it is worse than the cancer. Mum what ever don’t let me be pathetic because I  am pathetic now” 

Oh Chris you  aren’t pathetic, you  are wonderful I  love you  and this is  the flu.

 

In my  heart of heart  I knew this was not the flu. I didn’t know what to  say  or do  I  just sat an watched the tv screen, I couldn’t even tell you  what the movie was. I just sat in the chair wanting to  scream out loud to  the gods, to  fate, to  whomever and  desperatly  trying not let my son see I was petrified for him.

He would dose off for a few minutes and then wake fitfully. About 11 pm  Angela called:

She said that she had been speaking to  her father and mother and they  decided they  needed to  get Chris back  to  Houston.

I couldn’t believe what I was hearing

Angela,  and her  parents were making arrangements to put Chris  on a damned train to Texas.   They  had made arrangements  for Chris to  leave at three ( four hours from now) she would be home to  help  get him packed  and help  to  get to  the Amtrack station  and take a train to  Chicago , change trains to  Austin and then it was ONLY  a three hour drive to  Houston!

I was incredulous  what were these people thinking ? This young man dragging around an oxygen tank, had to  have help  getting to  the bathroom. He couldn’t even make it downstairs.

For Christ sake those parents might be intellectually  challenged, in my  opinion,  but Angela was a  resident  soon to  be physician, she had to know that would kill him a journey  like that !

Was I supposed to  go with  him him in 4 hours with  just an overnight bag. I really  couldn’t credit what I  was hearing , surely  they  did not expect  Chris to  drag around on his own.

I said there was no  way  that would be possible.

Chris overhearing the conversation was desperate to  get back to  Houston, he thought they  were his only  hope  and he would fight to  get there .

I knew it would be disasterous  to  even attempt that journey  and for ONCE  in this whole fisaco  of Lombardi-ism I put my  foot down and said NO! that was not going to  happen.

I told Chris,

“Look there is no  way  either of us could make that journey and I  WILL be going with  you , trust me on that . I will start calling around for options in the morning , if I have to  charter a plane or hire an ambulance or drive a damned RV to  Texas myself  I will.”

He said

you can’t drive to Texas

I will do  what ever needs to be done I  will call Dr. Younes in the morning and see what HE suggests.

He then slept for a little and I sat up with him all that night watching every  rise and fall of his chest, every  whince, every  sound………

That was the first night  of two weeks of not sleeping for more than three hours at a time………………………….

 

January 3, 2022 at 2:12 pm 1 comment

Dec 3rd – NO LIMITS- Chapt 23- Chris Ritchey

NO  LIMITS

Forward: https://thatwoman.wordpress.com/2020/01/02/jan-3rd-no-limits-the-forward-chris-ritchey/

Chapter One :https://thatwoman.wordpress.com/2020/02/03/feb-3rd-no-limits-chapter-1-chris-ritchey/

Chapter Two:https://thatwoman.wordpress.com/2020/03/03/march-3rd-no-limits-

Chapter Three: https://thatwoman.wordpress.com/2020/04/03/april-3rd-no-limits-chapt-3-chris-ritchey/

Chapter Four: https://thatwoman.wordpress.com/2020/05/03/no-limits-chapter-4-chris-ritchey/

Chapter Five: https://thatwoman.wordpress.com/2020/06/03/june-3rd-no-limits-chapter-5-chris-ritchey/

Chapter Six: https://thatwoman.wordpress.com/2020/07/03/july-3rd-no-limits-chapter-6-chris-ritchey/

Chapter Seven: https://thatwoman.wordpress.com/2020/08/03/august-3rd-no-limits-chapter7-chris-ritchey/

Chapter Eight: https://thatwoman.wordpress.com/2020/09/03/sept-3rd-no-limits-chapter-8-chris-ritchey/

Chapter Nine: https://thatwoman.wordpress.com/2020/10/03/oct-3rd-no-limits-chapter-9-chris-ritchey/

Chapter Ten: NO LIMITS- Nov 3rd- Chapter 10- Chris Ritchey | That Woman’s Weblog (wordpress.com)

Chapter Eleven: NO LIMITS-Dec. 3rd- Chris Ritchey- Chapter 11 | That Woman’s Weblog (wordpress.com)

Chapter Twelve: NO LIMITS-Jan 3rd- Chris Ritchey- Chapter 12 | That Woman’s Weblog (wordpress.com)

Chapter Thirteen : NO LIMITS- FEB 3rd- Chris Ritchey- Chapter 13 | That Woman’s Weblog (wordpress.com)

Chapter Fourteen: March 3rd, NO LIMITS, Chapter 14- Chris Ritchey | That Woman’s Weblog (wordpress.com)

Chapter Fifteen: April 3rd- No Limits- Chapter 15- Chris Ritchey | That Woman’s Weblog (wordpress.com)

Chapter Sixteen: May 3rd – No Limits- Chapter 16- Chris Ritchey | That Woman’s Weblog (wordpress.com)

Chapter Seventeen: June 3rd-No Limits-Chris Ritchey-Chapter 17 | That Woman’s Weblog (wordpress.com)

Chapter Eighteen: July 3rd – NO LIMITS- Chapter 18-Chris Ritchey | That Woman’s Weblog (wordpress.com)

Chapter Nineteen: https://thatwoman.wordpress.com/2021/08/03/august-3rd-no-limits-chapter-19-chris-ritchey/

Chapter Twenty: https://thatwoman.wordpress.com/2021/09/03/september-3rd-no-limits-chapter20-chris-ritchey/

Chapter Twenty One:  https://thatwoman.wordpress.com/2021/10/03/october-3rd-no-limits-chapter-21-chris-ritchey/

Chapter Twenty Two : https://thatwoman.wordpress.com/2021/11/03/nov-3rd-no-limits-chapter-22-chris-ritchey/

OHIO

I was emotionally  exhausted after the flight home from Houston  although, I  was  thrilled the news was good but  terrified at what I  was seeing with  my own eyes as to  how Chris “looked”.  to  these mother’s eyes.

The “plan” was Chris and Angela would drive  back stopping at various sights  along the way and  be back for a few days in Ohio  and then the  return drive to  Houston for ongoing treatment.

I drew Angela aside  and  begged Angela:

‘Please , please leave the truck here and fly  back  here, the Doctor at MD Anderson didn’t think  it wise for Chris to  do  that journey, can’t you  talk with  him he will listen to  you if YOU say you  want to  fly  back! 

Angela’s  quiet reply:  because Angela never spoke loudly

 

Chris, will be just fine driving back to Ohio.” We will take it easy

photo Angela by Chris Ritchey

It was going to  be a lot of driving  but I  hoped that once Chris was home  home Nikki  and I  could persuade Chris to  fly  back and we would rent him a vehicle.

He was taking so  many  drugs, not eating and to  counter the effects  I found he was taking  exlax  like candy.  It was just 36 hours later after I  left Houston I  received a call from Angela saying they  were stopping for the night  in  Jackson Mississippi

It was later the next day  I  received another call, she had had to  take  Chris to  the local ER for fluids, he had collapsed! The Doctors there   wanted to  admit him but they  declined saying they  wanted to  get back to  the Clinic.  I said

“Angela you  can’t  continue driving if he is that ill, book a flight, you  have the money  from the fundraiser that will will cover that cost , can you  drive  the truck to  the airport  and park it? I will have  his dad and uncle fly  down and drive the truck back, that will put Chris’ mind at rest re the truck  .

 

 Angela “What about the keys we can’t leave them , can you  pick up  the spare set  from my  mother at the bank?

I said I  would .

Arrangements were made . I  went that afternoon to  the bank where Sue Lombardi  worked to  pick up  the keys.  She walked acrosse the lobby   with  a silly  grin on her face

“Tim and I  will pick up  Chris and Angela and take them back to  their apartment “

I was fuming underneath  knowing  I  should have pushed more to  stop  that drive back.  I was barely  able to  speak more than two  or three words incase  I said something that couldn’t be taken back.

Her daughter the Doctor,   had she no  common sense?  Side  trips  to  Memphsis indeed when her husband  was downing pain pills for which she was getting the prescriptions . She had to  see how his driving  was terrible and anger flare ups in traffice in Texas. More than once   seeing his “road rage” I  would remind him

Chris, these guys have guns on their trucks  and you  calling them  “dick head” and driving like you  are  , you  are going to  get me shot…

I dropped off my  husband and brother in law at the airport , drove home  and waited .

Finally  Chris called me from the Lombardi’s car and said they  had been picked up  and would call me  the next day.

He did call me the next day  but not from the apartment , he was back in hospital at South Pointe, where Angela was a resident and getting those prescriptions filled  that  I was worried about. 

It was  an I  am OK mum and getting fluids  sort of call. I  told him his truck was nearly  back in Ohio  , his dad and uncle   had driven straight through and they   would leave his truck at  it at Nikkis,as it was safer there will all the items they  had had to  leave.

I was surprised a half an hour later when Chris called back, the inlaws  and Angela had left  and he said  he was alone and wanted to  talk to  me .

“Mum, I am appreciative of everything you did in Texas

 

I said:

I know that Chris you don’t have to thank me

 

He continued :

But I was so mean to you

referring to  the altercation we had  when Angela had lied to  him  and  he thought Nikki  and I  were excluding her .

SEE Chapter 17 of No  Limits 

I responded :

Chris I am your mother , you are allowed to be mean to me , I understand what you are going through , the lack of control over your own life , the anger – it is OK I love you !

 

He said :

You were right I should have stayed in Houston, I shouldn’t have come back to the apartment….. there are so many bad memories – I should’ve stayed in Houston  and I love you mum I should’ve listened

 

I said

Chris, it is no good dwelling in   hindsight….. we will get through this I will see you Friday . I love you

As always he said

I love you too”

I hung up  and burst into  tears…..

I can still hear his voice in my  head , I can  bring those words  to  the fore of my  memory  as if he were speaking them to  me in the present time and day.

That is probably  because  it was the last time  I ever heard him say  those words out loud…… a mother  clings to  every  bit of her child and his life and voice that she can.

 

Note as I  sit  and type this day  of December 3rd 2021-  it is the anniversary  of his passing and so  I am defeated I have to  leave the keyboard and the desk and release  the pain and heartache.. I can write no  more today  the emotional incontinence  that overwhelms on this day cripples  and crushes my  very  core.  … until the next chapter……. and Chris I still love you  with  all my  being……

 

December 3, 2021 at 2:14 pm 5 comments

Nov 3rd-No LIMITS-Chapter 22-Chris Ritchey

Author’s Note.. It wasn’t planned this way  but as I  reach  the 1st ending of this documentation of my  son before he passed . the  times of publication these chapters   are coinciding with times of his  ending.  I have said before this is  absolutely  crushing and painful to  write as I  have to  relive those moments and memories.  but to  get to  the “after” I  have to  document the “before” . As I  get closer to ” loss of all hope  memories ” I  have to  step  away  for hours  and sometimes days  as it is gutting to  go  through  again  and   a drain  on my  physical and mental being.. 

NO  LIMITS

Forward: https://thatwoman.wordpress.com/2020/01/02/jan-3rd-no-limits-the-forward-chris-ritchey/

Chapter One :https://thatwoman.wordpress.com/2020/02/03/feb-3rd-no-limits-chapter-1-chris-ritchey/

Chapter Two:https://thatwoman.wordpress.com/2020/03/03/march-3rd-no-limits-

Chapter Three: https://thatwoman.wordpress.com/2020/04/03/april-3rd-no-limits-chapt-3-chris-ritchey/

Chapter Four: https://thatwoman.wordpress.com/2020/05/03/no-limits-chapter-4-chris-ritchey/

Chapter Five: https://thatwoman.wordpress.com/2020/06/03/june-3rd-no-limits-chapter-5-chris-ritchey/

Chapter Six: https://thatwoman.wordpress.com/2020/07/03/july-3rd-no-limits-chapter-6-chris-ritchey/

Chapter Seven: https://thatwoman.wordpress.com/2020/08/03/august-3rd-no-limits-chapter7-chris-ritchey/

Chapter Eight: https://thatwoman.wordpress.com/2020/09/03/sept-3rd-no-limits-chapter-8-chris-ritchey/

Chapter Nine: https://thatwoman.wordpress.com/2020/10/03/oct-3rd-no-limits-chapter-9-chris-ritchey/

Chapter Ten: NO LIMITS- Nov 3rd- Chapter 10- Chris Ritchey | That Woman’s Weblog (wordpress.com)

Chapter Eleven: NO LIMITS-Dec. 3rd- Chris Ritchey- Chapter 11 | That Woman’s Weblog (wordpress.com)

Chapter Twelve: NO LIMITS-Jan 3rd- Chris Ritchey- Chapter 12 | That Woman’s Weblog (wordpress.com)

Chapter Thirteen : NO LIMITS- FEB 3rd- Chris Ritchey- Chapter 13 | That Woman’s Weblog (wordpress.com)

Chapter Fourteen: March 3rd, NO LIMITS, Chapter 14- Chris Ritchey | That Woman’s Weblog (wordpress.com)

Chapter Fifteen: April 3rd- No Limits- Chapter 15- Chris Ritchey | That Woman’s Weblog (wordpress.com)

Chapter Sixteen: May 3rd – No Limits- Chapter 16- Chris Ritchey | That Woman’s Weblog (wordpress.com)

Chapter Seventeen: June 3rd-No Limits-Chris Ritchey-Chapter 17 | That Woman’s Weblog (wordpress.com)

Chapter Eighteen: July 3rd – NO LIMITS- Chapter 18-Chris Ritchey | That Woman’s Weblog (wordpress.com)

Chapter Nineteen: https://thatwoman.wordpress.com/2021/08/03/august-3rd-no-limits-chapter-19-chris-ritchey/

Chapter Twenty: https://thatwoman.wordpress.com/2021/09/03/september-3rd-no-limits-chapter20-chris-ritchey/

Chapter Twenty One:  https://thatwoman.wordpress.com/2021/10/03/october-3rd-no-limits-chapter-21-chris-ritchey/

Houston Nights and days – a blur

The days after the fundraiser back in Ohio  were tinged with  gratitude to  those who  were so  generous  and writing thank you’s to  those I  knew had donated.  Chris and I  duly  went about the routine of tests , bloodwork and infusion.  One such  visit brought out the Physicans Assistant , she was concerned that Chris was scheduled for the HINI flu shot.   I hadn’t realized that Angela had set that up   via Cleveland. Chris had never had a  flu shot  of any kind and I was unsure of his reaction to  it. Apparently  the PA was concerned as well, but Chris said :

“My  wife has arranged it so  I will take it”

I  sat without saying a word in a fake leather  vomit coloured chair holding my  breath. I was being pummeled with  thoughts

” don’t let him get this shot , it is not a good thing , something will happen”

all the while arguing  with  myself .

“If you  say  something and he doesn’t get the shot and he gets HINI with  his system so  compromised  then you , who  are not medically  qualified in anyway,  you  could cause him worse issues” 

So  I  said nothing , how I  wish  I  had had the guts  to  tell him no!   Hindsight is 20/20

Chris was always so  tired after the infusion which  he also  had that day .  We came home he ate a little, went to  the bedroom , called Angela  and  then  filled the hot water bottles , took pills and slept.

I  heard him during the night running the hot baths  that almost scalded his skin to  ease the pain  he was in.  I lay  awake  wishing there was more I  could do.

He finally  slept and in the morning I went into  the  bathroom to  collect the wet towels  to  wash  and on the floor were soaking wet T’ shirts. I  flashed back  to  when he was first diagnosed with  Hodgkin’s and the  “night sweats” that soaked his T shirts, pillows and bedding . Something was  wrong , so  very  wrong  and it was  so  sudden.

I wanted Chris to  call the Dr. but he wouldn’t as he was scared they  would take him off the trial . I  wondered  could it be a reaction to the H1N1 shot, it came on so  quickly . The next couple of days saw him getting worse. The lethargy  the pain, not wanting to  eat and running a temperature.

 

Angela (Lomabrdi) ritchey ( Murphy)  ( red) by Chris Ritchey

I  had  already  booked Angela a flight for Nov 3rd  as Chris was meeting with  the “team” to  see how the SGN 35 was working for him on November 5th.

I  was so  worried  and out of my  depth , I called Angela and said Chris is not looking at all well and I  am very  worried , barely  eating  and he won’t go  to  the Doctor or call.  Angela rebooked her flight and came down the day before Hallowe’en.

Chris was naturally  pleased to  see her. She never mentioned to  me if she thought he looked worse but in those few days I  noticed it so  she had to have noticed not seeing him for a couple of weeks .  His eyes seemed sore and red rimmed  , his skin  a strange pallor  tinged with  grey. .

Hallowe’en, we were invited to  JD’s and Karen’s for supper and to  hand out candy. Chris laughed and joined in the conversation, Angela would jump  up  and hand out the candy  and whilst everyone’s focus was on the kids and costumes I would watch  as Chris quietly  would reach  into  his top shirt pocket and pop  another pill. I knew my  son’s strength  but I  also  knew he was dealing with  a lot of pain . Angela had brought down some more medication from Cleveland and I  worried  about the amount and “what”  Chris was taking but once again I  said nothing.

Chris barely  ate in the next few days. He took Angela and I  to  the British  shop  ( he had his truck in Houston now). She and I  went in to  buy  Christening gifts for Gavin , Nikki’s new little baby  . Chris couldn’t get out of the truck, said he  just didn’t want to  shop , although  previously  when he had taken me he loved going in there . Again, I  worried.

On November  4th, the night before meeting with  the team of SGN 35  we went back  to  the “Black Labrador Pub” to  meet JD and Karen  . Chris had wanted to  thank them for all their hospitality  and friendship  whilst we had been in Texas. He loved the Ranch   and lost himself in normalcy  on those excursions to  that ranch.

He told me that when he was well he was going to  buy  some land and get Gavin a horse ...

Chris nibbled at a salad , not at all like him and JD chastised me because  Chris and Angela were going to  drive back to  Cleveland stopping on the way,  if the news was good.  How my  son who  was having a hard time  driving  30  minutes to  the Black Labrador Pub , how the hell was he going to  drive 1,300 miles to  Cleveland. JD, said

He will be fine “let go  of the apron strings  mom” … 

November 5th :

We waited in a little office, Chris once again behind his sunglasses , Angela went to  the restroom  I  sat once again near the door  scared to  breather. The Physician’s Assistant came in , and if  there is one thing I  know it is body  language and  she was happy. The Doctors came in and gave the good news … the SGN 35 was working  all was good.

I  breathed for the first time in  days. And then the tag line  ” the only thing was there was a slight “crackling” of the bottom half of the lungs  that they  were concerned about . Angela spoke up  Oh  she would have the Dr. at the Clinic check  it out, he had had the flu shot . That seemed to  satisfy  them  and they  gave Chris a strength test  and Ok’d him for another infusion before he left for Cleveland.

The first thing Chris did was to  phone JD, whilst I  called Nikki , who  was sick with  worry  and told her the results were good. But she said

can’t he leave the truck there with  JD and Karen  and fly home

No   Angela wanted  to  go  to  Nashville  and  make a vacation of it going home. They  had to  be back  in 10 days . I  flew home that afternoon  .

 

 

To be continued…………….

 

 

November 3, 2021 at 6:17 pm 1 comment

October 3rd- No LIMITS-Chapter 21-Chris Ritchey

NO LIMITS

Forward: https://thatwoman.wordpress.com/2020/01/02/jan-3rd-no-limits-the-forward-chris-ritchey/

Chapter One :https://thatwoman.wordpress.com/2020/02/03/feb-3rd-no-limits-chapter-1-chris-ritchey/

Chapter Two:https://thatwoman.wordpress.com/2020/03/03/march-3rd-no-limits-

Chapter Three: https://thatwoman.wordpress.com/2020/04/03/april-3rd-no-limits-chapt-3-chris-ritchey/

Chapter Four: https://thatwoman.wordpress.com/2020/05/03/no-limits-chapter-4-chris-ritchey/

Chapter Five: https://thatwoman.wordpress.com/2020/06/03/june-3rd-no-limits-chapter-5-chris-ritchey/

Chapter Six: https://thatwoman.wordpress.com/2020/07/03/july-3rd-no-limits-chapter-6-chris-ritchey/

Chapter Seven: https://thatwoman.wordpress.com/2020/08/03/august-3rd-no-limits-chapter7-chris-ritchey/

Chapter Eight: https://thatwoman.wordpress.com/2020/09/03/sept-3rd-no-limits-chapter-8-chris-ritchey/

Chapter Nine: https://thatwoman.wordpress.com/2020/10/03/oct-3rd-no-limits-chapter-9-chris-ritchey/

Chapter Ten: NO LIMITS- Nov 3rd- Chapter 10- Chris Ritchey | That Woman’s Weblog (wordpress.com)

Chapter Eleven: NO LIMITS-Dec. 3rd- Chris Ritchey- Chapter 11 | That Woman’s Weblog (wordpress.com)

Chapter Twelve: NO LIMITS-Jan 3rd- Chris Ritchey- Chapter 12 | That Woman’s Weblog (wordpress.com)

Chapter Thirteen : NO LIMITS- FEB 3rd- Chris Ritchey- Chapter 13 | That Woman’s Weblog (wordpress.com)

Chapter Fourteen: March 3rd, NO LIMITS, Chapter 14- Chris Ritchey | That Woman’s Weblog (wordpress.com)

Chapter Fifteen: April 3rd- No Limits- Chapter 15- Chris Ritchey | That Woman’s Weblog (wordpress.com)

Chapter Sixteen: May 3rd – No Limits- Chapter 16- Chris Ritchey | That Woman’s Weblog (wordpress.com)

Chapter Seventeen: June 3rd-No Limits-Chris Ritchey-Chapter 17 | That Woman’s Weblog (wordpress.com)

Chapter Eighteen: July 3rd – NO LIMITS- Chapter 18-Chris Ritchey | That Woman’s Weblog (wordpress.com)

Chapter Nineteen: https://thatwoman.wordpress.com/2021/08/03/august-3rd-no-limits-chapter-19-chris-ritchey/

Chapter Twenty: https://thatwoman.wordpress.com/2021/09/03/september-3rd-no-limits-chapter20-chris-ritchey/

Houston and Lorain.

The expenses were piling up. Not the hospitals bills you  understand, No,  everything was being covered medically  for Chris thanks to  the 100 percent coverage  his  then “resident” wife received from the Cleveland Clinic.  That, in itself, was truly  amazing and because their Oncologist did not enter him in the SGN 35 trial they  had at the Cleveland Clinic ,as it had closed  on the Friday,  before he went to  his doctor’s appointment on the Monday. The Clinics insurance also  paid for the trial of SGN35 in Houston  at M.D. Anderson.

Of course we still had to  pay  for the living expenses,  the  flights etc. Chris wanted to  use their savings. People had been extremely  generous when he and Angela  got married in the previous June.  Chris was not happy with  the fact his family  were paying for the Houston expenses and flights and rental car etc. He felt he should be able to   cover those expenses .

Our wonderful neighbor of many  years  “Rich” suggested he would like to  put on a fundraiser for Chris , who  was almost like a  3rd son and member of his family.  Chris, was at first very  hesitant , one reason being he was private when it came to  his illness but he also  was aware his mum and dad weren’t wealthy . Chris reluctantly   acquiesed in the end.

I told Rich to  contact the Lombardis , as at one point ,they  had also  made mention  a fund raiser (in the very  begining) but Chris had refused as all the medical bills were being paid for under the no  deductible insurance of the Cleveland Clinic. Chris’s  godparents, his sister  and my  friends and other neighbors  also  wanted to  help and so  I  left it in my  neighbor’s  capable hands, or so  I  thought.

It wasn’t until weeks after that I  was told Rich, Chris’ godparents in fact everyone but Nikki  were told they  didn’t need any  help and that Sue and Tim Lombardi and the sisters of Sue would be handling through  Tim’s bank  First Federal. So  those that offered help in baking, food, clean up and  organizing were told NO  THANKS., they  weren’t needed the Lombardi  Clan would be doing this !

Well now of course I  know the reasons. “Control” a trait that Sue Lombardi definitely  has in her resume in my  opinion borne out  later on  in the saga of the dollar signs.

Not knowing of the Lombardis decisions to   keep out of the fundraiser anyone from Chris’  side I  wrote  blog posts and advertised as much  as I  could  for the sake of this young couple. Chris designed the Logo  in Texas

“The Committee for Chris- aka Chris’ Crew would very much like a head count by this weekend so please if you haven’t got the tickets yet and plan to come please contact Nikki at 440-282-3195

FUNDRAISER FOR CHRIS
When – Sunday – OCTOBER 25TH -1:00 -5:00

Where- Rosewood Place- 4493 Oberlin Avenue- Lorain Ohio 44053

What – Spaghetti Dinner- Silent Auction – 50/50 raffle – Browns Game ( on a big screen TV)

How Much – $15.00 – kinds under 5 eat free.

Tickets and or reservations – please call Nikki -440-282-3195

The Crew tells me there are literally dozens of gift baskets containing something for everyone – from tools, firepits, Cavs games, Browns games and everything to go with them- professional teeth whitening – Celtic goodies- romantic weekends – ( beach condo steps from the water at Catawba )- and hotel rooms- food and drink and a flat screen TV is also in the baskets- So please call is you haven’t already got your tickets- Loraine”

IF I WOULD HAVE KNOWN THEN WHAT I FINALLY  WAS MADE AWARE OF , I WOULD HAVE STOPPED THE WHOLE ROTTEN MESS. 

But I  didn’t know   and being in Houston I was relying on emails  and  half truths being told. When I  questioned Tim Lombardi as to  why Rich wasn’t involved in the accounting of the fundraiser as “

Hi  Tim,

I  hear the sales are going really  well that IS  good news (  and we need good  news) . I  did  ask  Angela over the weekend about  the account at First Federal  but  she said  that you  were handling everything. I  have a couple of  questions, as you  know  I  have run Charleston Villages non profit 501C3 for  twenty  years so  I  was a little  confused……….On a personal  note  after the numbers and figures are all  in if  I  could have a list of  those that donated straight  to  the account I  would  very appreciative as Chris’ Dad and I  want to  send our personal  thank you to  those individuals .

 

he replied  “

Angela , Sue and Tim Lombardi

Hi Loraine,Mon, Oct 19, 2009 at 3:49 PM

Hope all is well with you and Chris in the Lone Star State. Angela may have misunderstood what we did. The account opened at First Federal is a non-interest bearing account as we didn’t want to report any type of interest…….We have tried to keep track of donations and will certainly provide you with the list we have. What do you think about running a thank you ad in the paper?  The generosity of the donors has been over whelming” Tim

I didn’t need to  take out an ad . Tom Skoch editor of the Morning Journal ( lorain)  ran an item as did The Chronicle  ( Elyria) and blogs. People came through  from the Highland Dance Community  from all over the world with  basket items, money, Nikki rallied her friends and Jims friends and realtives all donated .  Since I was in Houston  Nikki  took everything to  the bank and deposited in that damned account.  In hindsight  I  feel sick even to  this day.  Nikki dropped off baskets  and took flyers all around her neighborhood. Tim Lombardi  was right the response was overwhelming .

People of all walks of life , professions  and places  apparently  came to  the event.

Chris and I  waited to hear from Nikki  and family  as to  how things were going. Nikki  called me she was upset , apparently  Sue Lombardi  was telling anyone that would listen the Chris was staying in a terrible place , crime ridden . I was furious and frankly   hurt , I  had done my  damndest to  get Chris and Angela , who  I  naively thought would want to   be with  her husband as much  as she could be. I was wrong about that too.

Chris came into  the living room in Houston he asked what was wrong and I  burst into  tears something  I  rarely  did but the emotiona and exhaustion won out.I  blubed  and blubbered saying I  was sorry … the apartment  was the best I  could find.. and

I  was sorry  it was not what Angela wanted…

What are you  talking about ? said Chris

Finally  I  was able to  tell him what was being said….. he called his sister and told her ”

“don’t tell mum anything that the Lombardis say  about anything it has upset her  and remember [Angela’s  sister], Allie didn’t call her mother “Psycho  Sue ” for no  reason. “

Later on that evening Chris came out of the bedroom after talking to  Angela to  tell me  the fundraiser had made $8,000.00 on the baskets alone  and $36,000.00  in donations  etc. not counting the money  that had already  been deposited by  Nikki  etc to  the account in the bank.

I learned later from the very  mouth  of Sue Lombardi  she opened a “safe deposit box ” in  her bank in Angela’s and her  name for the cash from that night.  I questioned  them as to  a list of donors and what they  donated  so  I  could write thank you notes

Sue said

Oh well we aren’t sure 

I  said

well you  must have deposit slips..and ticket sales. There was over thirty  thousand from the fundraiser alone 

Where did you  hear that ?

It was then I  said:

Angela told Chris and I  know other checks were put into  the accouint at First Federal , I  have that list from Nikki.

And that is when Sue Lombardi  told me directly  she had opened a safety  deposit box in Angela’s name for that cash……..

( So  much  for keeping track. ) and there is more to  come.

Pillars of their Church but money  apparently  can cause even pillars to   fall  for the 7th  deadly  sin of AVARICE!!!!!!

Avarice the 7th deadly sin

to  be continued :

October 3, 2021 at 12:39 pm 5 comments

September 3rd-NO LIMITS-Chapter20-Chris Ritchey

 

NO LIMITS

Forward: https://thatwoman.wordpress.com/2020/01/02/jan-3rd-no-limits-the-forward-chris-ritchey/

Chapter One :https://thatwoman.wordpress.com/2020/02/03/feb-3rd-no-limits-chapter-1-chris-ritchey/

Chapter Two:https://thatwoman.wordpress.com/2020/03/03/march-3rd-no-limits-

Chapter Three: https://thatwoman.wordpress.com/2020/04/03/april-3rd-no-limits-chapt-3-chris-ritchey/

Chapter Four: https://thatwoman.wordpress.com/2020/05/03/no-limits-chapter-4-chris-ritchey/

Chapter Five: https://thatwoman.wordpress.com/2020/06/03/june-3rd-no-limits-chapter-5-chris-ritchey/

Chapter Six: https://thatwoman.wordpress.com/2020/07/03/july-3rd-no-limits-chapter-6-chris-ritchey/

Chapter Seven: https://thatwoman.wordpress.com/2020/08/03/august-3rd-no-limits-chapter7-chris-ritchey/

Chapter Eight: https://thatwoman.wordpress.com/2020/09/03/sept-3rd-no-limits-chapter-8-chris-ritchey/

Chapter Nine: https://thatwoman.wordpress.com/2020/10/03/oct-3rd-no-limits-chapter-9-chris-ritchey/

Chapter Ten: NO LIMITS- Nov 3rd- Chapter 10- Chris Ritchey | That Woman’s Weblog (wordpress.com)

Chapter Eleven: NO LIMITS-Dec. 3rd- Chris Ritchey- Chapter 11 | That Woman’s Weblog (wordpress.com)

Chapter Twelve: NO LIMITS-Jan 3rd- Chris Ritchey- Chapter 12 | That Woman’s Weblog (wordpress.com)

Chapter Thirteen : NO LIMITS- FEB 3rd- Chris Ritchey- Chapter 13 | That Woman’s Weblog (wordpress.com)

Chapter Fourteen: March 3rd, NO LIMITS, Chapter 14- Chris Ritchey | That Woman’s Weblog (wordpress.com)

Chapter Fifteen: April 3rd- No Limits- Chapter 15- Chris Ritchey | That Woman’s Weblog (wordpress.com)

Chapter Sixteen: May 3rd – No Limits- Chapter 16- Chris Ritchey | That Woman’s Weblog (wordpress.com)

Chapter Seventeen: June 3rd-No Limits-Chris Ritchey-Chapter 17 | That Woman’s Weblog (wordpress.com)

Chapter Eighteen: July 3rd – NO LIMITS- Chapter 18-Chris Ritchey | That Woman’s Weblog (wordpress.com)

Chapter Nineteen: https://thatwoman.wordpress.com/2021/08/03/august-3rd-no-limits-chapter-19-chris-ritchey/

Houston Continued:

I have never felt so out of my  depth. All my  life I  have been decisive , could see my  way  to  a solution or know who  to  reach out to  in order to  find a solution. Yet here I  was in a strange city , scared to  death , totally  alone . having to  bury  my  fears, worried I would say  or do  something that would hurt my  son or take away  his thread of hope. I could not let him see my  doubts , my worries.

I would take my  phone  out to  the pool area and call Nikki , my  support , she would get me back on track but I really  could never even be totally  truthful with  her . A young mother with  a little baby , she too ,scared of the future without Chris.

Watching was the hardest part of those weeks in Houston, feeling so  damned inadequate. I had promised him the day  he was born that I  would never let any  harm come to him and I  would always protect him and here I  was totally  useless and not being able to  keep  that promise .

You  do  the deals  with  an unknown powerful being,

take me , let him be cured 

and knowing somehow you  are wasting your time, but you  feel  you  have to  try  anything to  save him. You  spend hours on the internet  researching looking for a glimmer of hope, knowing this  trial is the last chance. If I  had been told,

in order to  save him they  would need every  drop  of my  blood

I would have gladly  died for him. There was never any  choice given to  me.

It is a rollercoaster  ride, lost in a maze of emotions  abysmally  alone.  Despair finds you , weakens you takes you  to  regions of a self made hell

Depths of Despair – artwork Chris Ritchey

The keeping up  a positive face was probably  the most draining for him as well as me.  Chris was still filling out the report forms , everything noted as manageble. He never mentioned in the notes that every  night he couldn’t sleep  for the pain and would run the hottest of baths , sometimes 8 or 9 almost burning his skin to get some relief. He would surround himself with  hot water bottles filled with  boiling water. I pretended not to  notice  but it was hard when the electric kettle would disappear into  his bedroom and the the wet towels would be hung of the shower rail.

I would close the bathroom door and check  the bottles of pain pills  they  were going down at an alarming rate. It was so hard  and finally  I  understood Chris’ artwork to  describe the word HARD , it did truly feel to  me  that I  was rushing headlong into  an impenetrable hell , impossible to  pass through.  I would shake these premonitions as just down to  being  emotionally  exhausted.

Artwork Chris Ritchey— HARD

I so  wanted to  hold and cuddle my  son  as I  did when he was little. But he was a grown man and although  I  would get the occasional pat on the head as he would walk by I knew the last thing he needed was for me to show weakness.

Crying time was when he would go  to  the shooting range or to  Cabelas . I  knew I  would have a couple of hours to  myself . I would, on occasion, take one of his shirts and bury  my  face in the folds just to  be near him and let the tears flow, somehow in that act to  release the pain. I washed a lot of shirts doing that.

We did try normalcy  , some sightseeing but always I  was watching to  see how he was dealing with  the energy  being used  . I waited –  hoping the news would be good at the end of the trial and what he was putting himself through  would all be worth it.

Waiting , it seemed that is all I  had been doing for 13 months. Waiting in doctors and hospital waiting rooms. The chairs in those rooms , no  matter the hospital or city  or state, were clones of one another.

People watching , wondering what the story  was of the man waiting behind the frosted glass , he also  waiting  for good news or bad, feeling that connection with  someone who briefly  passed through  in a moment, never acknowledging  each other not  speaking – but connected.

Waiting whilst announcements were made and the sound of rubbers soles squeaking on tiled floors, the wheels of hospital carts as they rolled down hallways announcing more meds.  Waiting , not daring to  breathe as results from tests were coming and all the time wanting to  run away  far away  but knowing there was no  running from this obscene disease …..

if cancer had a face

to  be continued

 

September 3, 2021 at 12:45 pm 2 comments

August 3rd- NO LIMITS- Chapter 19- Chris Ritchey

Forward: https://thatwoman.wordpress.com/2020/01/02/jan-3rd-no-limits-the-forward-chris-ritchey/

Chapter One :https://thatwoman.wordpress.com/2020/02/03/feb-3rd-no-limits-chapter-1-chris-ritchey/

Chapter Two:https://thatwoman.wordpress.com/2020/03/03/march-3rd-no-limits-

Chapter Three: https://thatwoman.wordpress.com/2020/04/03/april-3rd-no-limits-chapt-3-chris-ritchey/

Chapter Four: https://thatwoman.wordpress.com/2020/05/03/no-limits-chapter-4-chris-ritchey/

Chapter Five: https://thatwoman.wordpress.com/2020/06/03/june-3rd-no-limits-chapter-5-chris-ritchey/

Chapter Six: https://thatwoman.wordpress.com/2020/07/03/july-3rd-no-limits-chapter-6-chris-ritchey/

Chapter Seven: https://thatwoman.wordpress.com/2020/08/03/august-3rd-no-limits-chapter7-chris-ritchey/

Chapter Eight: https://thatwoman.wordpress.com/2020/09/03/sept-3rd-no-limits-chapter-8-chris-ritchey/

Chapter Nine: https://thatwoman.wordpress.com/2020/10/03/oct-3rd-no-limits-chapter-9-chris-ritchey/

Chapter Ten: NO LIMITS- Nov 3rd- Chapter 10- Chris Ritchey | That Woman’s Weblog (wordpress.com)

Chapter Eleven: NO LIMITS-Dec. 3rd- Chris Ritchey- Chapter 11 | That Woman’s Weblog (wordpress.com)

Chapter Twelve: NO LIMITS-Jan 3rd- Chris Ritchey- Chapter 12 | That Woman’s Weblog (wordpress.com)

Chapter Thirteen : NO LIMITS- FEB 3rd- Chris Ritchey- Chapter 13 | That Woman’s Weblog (wordpress.com)

Chapter Fourteen: March 3rd, NO LIMITS, Chapter 14- Chris Ritchey | That Woman’s Weblog (wordpress.com)

Chapter Fifteen: April 3rd- No Limits- Chapter 15- Chris Ritchey | That Woman’s Weblog (wordpress.com)

Chapter Sixteen: May 3rd – No Limits- Chapter 16- Chris Ritchey | That Woman’s Weblog (wordpress.com)

Chapter Seventeen: June 3rd-No Limits-Chris Ritchey-Chapter 17 | That Woman’s Weblog (wordpress.com)

Chapter Eighteen: July 3rd – NO LIMITS- Chapter 18-Chris Ritchey | That Woman’s Weblog (wordpress.com)

Back to  Houston:

The family  all gathered back  at Nikki’s on October 3rd. Jim and Chris were leaving early in the morning on the 4th. Misty, Chris’s dog who  now lived with  us, due to  the situation we all found ourselves dealing with , came along to  Nikki’s to  see her master. She was a loopy  dog  and reminded me of Dino  of the Flintstones . However,  with  Chris she was all business, a totally  different animal , obeyed him and loved him. To  see her reaction when she saw Chris that day brought tears- I dare not shed -to  my  eyes . Chris and his dad and Misty  , who wouldn’t leave his side,  walked into  the woods behind Nikki’s. I didn’t follow,  my  husband hadn’t had many  alone times with  Chris in the preceding months , I  instinctively  felt  I should not follow.

We were loathe to  leave that day. Somehow my  gut told me this was the last time we would all be together . Photos were taken, laughter  was tried. Gavin, his nephew, was now  nearly  8 months old , Chris had missed those early   months and I so hoped he would be there as Gavin grew. He wanted to  be a great uncle to  Gavin  take him four wheeling and after  riding the horses in Texas decided he would buy  some land and get Gavin a horse, or at least a pony. I  wanted that to  happen with  everything that was in me.  Chris , bought Gavin a Texas  belt buckle, it was almost as big as him.

Jim and Chris  were on the road from Cleveland to  Houston  stopping every  so  often to  take in those sights that Chris wanted to  see. They  also  arranged to  go  wild boar hunting on the way  and stop off at a couple of shooting ranges.

 

Although  they  tried to  have a normal “man-cation” Jim told me when they  arrived back in Houston how worried he was.  Chris, was in a lot of pain and was popping pills the whole journey. Jim wasn’t sure what they  were but that I  should try  and see if I could take a look at the medication bottles.

I had arrived back in  Houston on the Saturday  morning. I had just arrived when the phone rang and it was JD’s secretary. JD had once again  been there for this family. His secretary  made arrangements with  me to  pick me up, go  to lunch  and pick up  staples I  would need until Jim and Chris arrived back on the Monday.  Bless her heart , we went to  an English  pub-like restaurant. The Black Labrador Pub.

The food was delicious and I was at my  ease . We then went to  a British  shop also  in Houston where I  carted off “English sausages, tea bags, favorite  biscuits, ( cookies) and snacks  a quick stop  to  a convenient store for bread and milk etc. I  was set for the next couple of days until Jim and Chris arrived. Thinking about it I am not sure what I  would have done for temporary  supplies over that weekend…. called for Pizza  I suppose.

I had just put the groceries away  when Jim called they  would be arriving at the apartment in a couple of hours. They  decided to  cut the “man-cation”  short.  After they  arrived and Chris was showering , Jim told me Chris was not doing well the drive had really  taken it out of him, the pills, and he could see Chris , although  he didn’t say  anything, was in pain.   They  had a supper of omelets and English sausages that evening , I know Jim “suffered” the sausages, as they  are somewhat bland  compared to  American sausages.  Chris, I  don’t think cared what he was eating. He just wanted to  sleep  so Jim and I went to  do  a grocery  shop. Chris looked awful , dark circles under his eyes, the trip  and driving certainly  had taken its toll on his  health and any  energy he had.

Later that night I  was able to  look in Chris’s shaving bag for his medication . There it was a number of bottles of Oxycodone 30 mg. I know he didn’t get it in Houston as the Doctors treating him wouldn’t prescribe it , especially  when he was filling out the forms weekly  stating his pain was at level 3.

I couldn’t ask him why  he had them without letting him know I had spied on him.  I looked at the label and recognized the name of the Dr. at South Pointe  Hospital where Angela was doing her residency.  I  was in a bad position  and didn’t know what to  do. I would just keep  a closer eye on him and hope to  hell these “medical marvels knew what they  were doing”

This medication is used to help relieve moderate to severe pain. Oxycodone belongs to a class of drugs known as opioid analgesics. It works in the brain to change how your body feels and responds to pain.

Since they  were two  days adrift Jim changed his flight back to  be with  Nikki  and the baby. It was agreed I  would keep a close eye on Chris , as much  as I  could.

Once again, we were on the treadmill of  tests, infusions  check ups . His heart rate had been high a steady  114   and he had had a procedure done but they  thought his heart was alright considering what it had been through in the previous months.  I was scared they  would show the drug  ( oxycodone) was in his system when they  did the tests. No  one said anything but he was  taking quite a few in a 24 hour period. He would keep tablets in his pocket and surreptitiously take a couple. As the days went on I notice the hand going into  that pocket more and more. I knew categorically  by  taking those drugs it was tantamount to  being taken off the trial. The trial that was his last chance of a “cure” . I had to  keep quiet and watch……

To  be continued …

 

August 3, 2021 at 12:40 am 3 comments

July 3rd – NO LIMITS- Chapter 18-Chris Ritchey

Forward: https://thatwoman.wordpress.com/2020/01/02/jan-3rd-no-limits-the-forward-chris-ritchey/

Chapter One :https://thatwoman.wordpress.com/2020/02/03/feb-3rd-no-limits-chapter-1-chris-ritchey/

Chapter Two:https://thatwoman.wordpress.com/2020/03/03/march-3rd-no-limits-

Chapter Three: https://thatwoman.wordpress.com/2020/04/03/april-3rd-no-limits-chapt-3-chris-ritchey/

Chapter Four: https://thatwoman.wordpress.com/2020/05/03/no-limits-chapter-4-chris-ritchey/

Chapter Five: https://thatwoman.wordpress.com/2020/06/03/june-3rd-no-limits-chapter-5-chris-ritchey/

Chapter Six: https://thatwoman.wordpress.com/2020/07/03/july-3rd-no-limits-chapter-6-chris-ritchey/

Chapter Seven: https://thatwoman.wordpress.com/2020/08/03/august-3rd-no-limits-chapter7-chris-ritchey/

Chapter Eight: https://thatwoman.wordpress.com/2020/09/03/sept-3rd-no-limits-chapter-8-chris-ritchey/

Chapter Nine: https://thatwoman.wordpress.com/2020/10/03/oct-3rd-no-limits-chapter-9-chris-ritchey/

Chapter Ten: NO LIMITS- Nov 3rd- Chapter 10- Chris Ritchey | That Woman’s Weblog (wordpress.com)

Chapter Eleven: NO LIMITS-Dec. 3rd- Chris Ritchey- Chapter 11 | That Woman’s Weblog (wordpress.com)

Chapter Twelve: NO LIMITS-Jan 3rd- Chris Ritchey- Chapter 12 | That Woman’s Weblog (wordpress.com)

Chapter Thirteen : NO LIMITS- FEB 3rd- Chris Ritchey- Chapter 13 | That Woman’s Weblog (wordpress.com)

Chapter Fourteen: March 3rd, NO LIMITS, Chapter 14- Chris Ritchey | That Woman’s Weblog (wordpress.com)

Chapter Fifteen: April 3rd- No Limits- Chapter 15- Chris Ritchey | That Woman’s Weblog (wordpress.com)

Chapter Sixteen: May 3rd – No Limits- Chapter 16- Chris Ritchey | That Woman’s Weblog (wordpress.com)

Chapter Seventeen:June 3rd-No Limits-Chris Ritchey-Chapter 17 | That Woman’s Weblog (wordpress.com)

Houston and Home:

After the emotion and angst of the previous night , Chris and I  slipped into  the ” don’t mention , don’t dwell on it” mode. We went through  the motions, he pretended he was fine, filled out the daily  reports as to  his well being and lied on them and I  pretended not to notice or mention his pain.

When you  are on a “trial”, apart from the tests,  they  require paperwork.  When his pain was at a level 8 he would put down a 3.

Patients, who  have been diagnosed as terminal and are given a last chance for a cure are not going to  write down anything that might get them taken off the trial  and a last chance of hope. Chris was no  different in that aspect  of trial information. He wanted so  much  to  live , even if it was only  to  50 years old. He wanted life, HIS life and he was fighting for it every  day.

I watched , as unobtrusively  as I  could,  my  heart breaking, not wanting to  overstep  my  bounds. When he would go  out I would cry  in the bathroom , in case he came back in and would catch  me in tears.  I hated that bathroom. The mirrors that didn’t lie, the plethora of pills for pain next to  the normal things like toothbrushes and shaving items.

We had a respite from Houston, Chris was allowed to  take a few days back to  Cleveland , they  could do  the bloodwork there. I kept the apartment, and we turned in the rental car at the airport. We sat in the waiting room . I  pretended to  read whilst he talked to  Angela. He decided to  go  to  Nikki’s first and pick up  his beloved truck., which  he had left there when they  first flew to  Houston a month  before.

That truck was supposed to  be a symbol of normalcy after the first diagnosis and  the “it is cured” . The lease was up on his previous vehicle  and I  remember Nikki  telling me

“Mum he has to  have that truck , he has been through  so  much he has to  have something good that he wants “

I too, had a car I loved, but I guess I  was getting a bit too old and plump  to  get in and out of it anymore. I have always liked cars , leftover from my  dad I suppose.  My  dad’s wish was to  one day  have a Pontiac Trans Am.

I  was trading in my  sensible Ford Cougar and car shopping  when I  noticed in the lot a bright blue Pontiac Trans Am  with  spoiler and T top  and it was love at first sight. My  middle age crisis car I  suppose. It went home with  me that day  much  to  my  husbands annoyance but to  Chris’ delight.

I had given  Chris the use of it  for a few months as the mileage allowance on his lease car ( for which we were paying) was adding up. I drove his lease car and he had the Trans Am to  go  back  and forth  to  Cleveland  and work.

I realized Nikki  was right he had to  have something to  celebrate and if it was a Black Ford 150 with  bells and whistles so  be it.  I gave him the Trans Am and said trade it in on a truck  to  help  with  the payments.

“Are you  sure mum, I  know you  love that car”

I wanted to  say:

not as much  as I  love you ,

but instead I  said:

well Chris it is starting to  have some issues  and frankly  I  am finding it hard to  get in and out  and the seat is hurting my  back…….

Chris and his dad drove off with  the Trans Am and came back with  his truck.

Chris drove back  from the airport  with  his dad and I , we dropped him off at Nikki’s to  pick up  his truck. We didn’t go  in I  wanted Nikki  and Chris to  have some alone time. I  don’t know what they  talked about, maybe Nikki , too, felt it better to  not bring up  the sore subject of Angela’s behaviour towards us.

Being home was good but I  was  on edge , not seeing Chris  and what was happening with  him physically  felt like  a huge hand was clutching at my  throat the whole time.

Oh!  he would call and I  would say  how are you  etc, etc,  and he would say  “fine”.  Then one day he called  the had to  come into  Lorain to pick up and item he had ordered in Houston , maybe we could have lunch. I  said

“sure , do  you  want me to  make something , you  want to  come here see Dad and Nana and Misty  ? “

He hesitated  :

No! why  don’t you  and Nikki  meet us ( himself and Angela) at Applebees , just you  and Nikki!

I realized then this was his way of getting the 4 of us back together in a place that wouldn’t lend itself for any issues we might have after the Houston  happening. I  had not heard directly  from Angela and wasn’t aware if Chris had mentioned anything about our conversation of that horrible night. It would be neutral ground.

It was a strange sort of lunch, again there was an elephant in the room atmosphere , nobody  talking about what they  were really  thinking, chit chat about food, trying to  be normal, smiling   . It was very strange  for Nikki  and I. I  would also  imagine for Chris and Angela as well.

I watched Chris and what he was “not” eating. I was left once again worried he had lost weight. I tried to  tell myself I was imagining things and worrying too  much. I also  noticed he took two  pain meds out of his shirt pocket and quietly  took them .

It was agreed at that lunch,   Chris would come to  Nikki’s on October 3rd , I  would fly  back  alone to  Houston and get the apartment ready  and food in . Jim, would take the week off and drive back with  Chris in his truck, stop  at a couple of place like New Orleans,  go  wild boar hunting   and then fly  home . Nikki , of course, had her little baby  so  would have to  stay  home and my  husband and my  mother would take care of each  other.

I acquiesced to  this arrangement but I  hated it , the premonition of bad things happening was so  strong . I  understood Chris need to  see some of the country  and do  something normal for a change. But I  couldn’t shake the feeling taking the truck was not a good thing………

Back to  Houston.. to  be continued …

July 3, 2021 at 1:19 pm 1 comment

June 3rd-No Limits-Chris Ritchey-Chapter 17

Forward: https://thatwoman.wordpress.com/2020/01/02/jan-3rd-no-limits-the-forward-chris-ritchey/

Chapter One :https://thatwoman.wordpress.com/2020/02/03/feb-3rd-no-limits-chapter-1-chris-ritchey/

Chapter Two:https://thatwoman.wordpress.com/2020/03/03/march-3rd-no-limits-

Chapter Three: https://thatwoman.wordpress.com/2020/04/03/april-3rd-no-limits-chapt-3-chris-ritchey/

Chapter Four: https://thatwoman.wordpress.com/2020/05/03/no-limits-chapter-4-chris-ritchey/

Chapter Five: https://thatwoman.wordpress.com/2020/06/03/june-3rd-no-limits-chapter-5-chris-ritchey/

Chapter Six: https://thatwoman.wordpress.com/2020/07/03/july-3rd-no-limits-chapter-6-chris-ritchey/

Chapter Seven: https://thatwoman.wordpress.com/2020/08/03/august-3rd-no-limits-chapter7-chris-ritchey/

Chapter Eight: https://thatwoman.wordpress.com/2020/09/03/sept-3rd-no-limits-chapter-8-chris-ritchey/

Chapter Nine: https://thatwoman.wordpress.com/2020/10/03/oct-3rd-no-limits-chapter-9-chris-ritchey/

Chapter Ten: NO LIMITS- Nov 3rd- Chapter 10- Chris Ritchey | That Woman’s Weblog (wordpress.com)

Chapter Eleven: NO LIMITS-Dec. 3rd- Chris Ritchey- Chapter 11 | That Woman’s Weblog (wordpress.com)

Chapter Twelve: NO LIMITS-Jan 3rd- Chris Ritchey- Chapter 12 | That Woman’s Weblog (wordpress.com)

Chapter Thirteen : NO LIMITS- FEB 3rd- Chris Ritchey- Chapter 13 | That Woman’s Weblog (wordpress.com)

Chapter Fourteen: March 3rd, NO LIMITS, Chapter 14- Chris Ritchey | That Woman’s Weblog (wordpress.com)

Chapter Fifteen: April 3rd- No Limits- Chapter 15- Chris Ritchey | That Woman’s Weblog (wordpress.com)

Chapter Sixteen: May 3rd – No Limits- Chapter 16- Chris Ritchey | That Woman’s Weblog (wordpress.com)

Houston Days and Nights- continued

I can’t begin to  put into  words how stressful it was for both of us , those days and nights. Chris and myself  “pretending everything was normal “ skirting around issues we both  knew were uppermost on our minds.  Wanting to  talk but not wanting to say  out loud our fears, maybe that way  we could hope a little longer.

Not everything was rosy , mother and son facing a terrible unknown locked together in a small apartment.  .Chris tired and in pain. I  knew it wasn’t me he wanted with  him. I  found a note that Angela had left behind in a desk drawer, Chris  was hurt and disappointed she was leaving Texas and it was me that would be with  him.

I knew my presence in Texas only confirmed that he was dying of Cancer, I was a constant reminder that he needed a care giver ( although you felt he could manage on his own to deal with side effects of a trial drug and Cancer) he would’ve preferred that it would have been his wife, not his mother to be with him.

photo Angela by Chris Ritchey

As a wife, I couldn’t have left my husband knowing that he was living under a death sentence and had been since August 29th -but that was Angela’s choice.

I could never understand Angela’s way  of thinking, but tried to  make allowances  , she too  was dealing with  a terrible situation in her young married life. I couldn’t believe that even during this awful, hopeful , chaotic time  she would still try  to  manipulate a situation and lie as she had done  with Nikki  and Chris  and the engagement ring episode.

Chapter  Three :

March 3rd – NO LIMITS- Chapt 2 – Chris Ritchey | That Woman’s Weblog (wordpress.com)

October 8th:  One month  in and the façade came crashing down, we were due to  come back  to  Cleveland for a few days . I made arrangements to  still keep  the apartment  as they  were so  difficult to  find. To  me, it was worth  paying for it to  be empty  rather than going through  the hassle of  moving and or finding something else.

This one particular day  we did have that heart to  heart that horrible “truth  revealing ” argument  that shouldn’t have happened!

In  the hours before that argument came to a head Chris and I had gone to get his prescriptions- he was tired and in a lot of pain- I said maybe I could pop into Borders ( which was across the way)

I would like to buy the new Dan Brown novel-

I could see he was impatient to get back so I didn’t push it. His mood was dour and his eyes narrowed and lips ( always a sign of anger) were tight. He had been on his cell phone to his wife, Angela, as we waited for his prescriptions. He drove back to the apartment in utter silence . He immediately went out by the pool in the apartment – I could see him sitting not moving. I decided he needed space  -then Nikki called and said that Chris had hung up on her and was very angry.

“but leave him alone mum” he doesn’t want to talk.

I knew my son. I knew whatever it was would fester until he exploded – he was so much like me.

I went to the pool- he said

“I don’t want to talk”

“You don’t have to -you can listen- I need to talk to you”

I was never a crier before Hodgkin’s I was a fighter, a do-er – this blubbering fool that I have become is down to the helplessness and hopelessness that took away happiness. Chris never knew me as a “crier” before his illness – so as the tears fell he sat silently as I told him

Chris, being a mother of a son is so much harder than you can imagine – I have tried so hard to give you and Angela the space you both need in this terrible time. I KNOW Chris, that you are feeling that you have no control over what is happening to your body and your life- I know you need some control , another reason why I have tried so hard to stand aside- you didn’t need me in the mix as well -But I am going to honestly tell you now -if this had been Nikki and not you I would have handled things so much differently – just as Nikki is my child I would not have sat back and taken a back seat to decisions as I have with you and Angela.

You see when a son marries he brings into his life another woman- it is very difficult in the best of circumstances for a mother to sit back and watch decisions being made that in some cases I did not agree with in a normal situation- this terrible situation we find ourselves all thrust into makes it doubly hard. But I have deferred to you both and to her “medical expertise” with this obscenity of Hodgkin’s that has engulfed us. It has been one of the hardest things in the world for me not to interfere or to put in my two cents. There have been times Chris when I have doubted my own abilities and lost confidence in myself – I have gone against my own gut feelings and yet there is a voice that tells me to still be protective of you .

I have tried to give you both your space – to be there when needed and to shut up for your sake when I was totally against some decisions. I have tried for your sake because I love you so much I would do anything and sacrifice anything for your health and happiness.

I don’t know the reason why you are so angry with Nikki and I but you have to know neither of us would intentionally do anything to hurt you . We have tried to put you first in all our thinking – We love you always have and always will. “


With that I left the poolside and went back into the apartment. Chris followed a few minutes later and then it all came out ( as I knew it would) an argument and accusations the finding out of lies that were told

“we had excluded Angela in decision-making as to driving the truck back to Texas.”

He wanted to drive his truck back . I told Angela  in an email ( which I have ) that it wasn’t a good idea him driving, he was having difficulty due to the side effects of SGN35 and I thought she should know since obviously you had been in Ohio since Sept 10th and hadn’t see the problems he was having even driving to Target let alone 1,700 miles.

I never received any  response from Angela to  my  emails ( which  I  still have)

Chris was furious with  me and  Nikki

“You didn’t include Angela”

Me:

“What are you talking about – I included Angela”

CHRIS No you didn’t !

Me.

Would you like to see the emails?

CHRIS: “

Yes! I would”

Me.

So you are calling me a liar ?

CHRIS:

” Don’t give me that F…. shit if I want to see the email then I must be calling you a liar. There aren’t any emails Angela doesn’t lie!

I then pulled up the emails…. all of them sent to Angela

ME:

Look at the dates and times Chris … now tell me I’M the one that lied…… she says here she wants to talk to you about it did she?

CHRIS:

Well she has been busy

ME:

she talks to you 4 or 5 times a day she couldn’t mention it but she could let you believe that Nikki and I didn’t include her?

He broke down  cried….. my  wonderful strong brave son reduced to  tears not by  cancer that night but by  lies and manipulation

She, the loving wife and bride  did that to him by trying to lie by omission … not me ….I held him and he said:

“did you ever think that I want to see something of the country if I am going to be dead in two years.”

My heart broke for him – I cried and we held on tight to each other and I said

Chris none of us know when we will die, the way you are driving lately we could end up dead on the way to hospital tomorrow ….

he laughed a little and I said:

Chris, I know the SGN35 is working, the lump on your neck isn’t visible and you haven’t coughed since Sept 21st.

That  night he went and checked the lumps on his neck for the first time in weeks.  Chris called Nikki back, she and Jim had talked and Jim would take time off work and drive back to  Houston with  Chris in his truck . He told Nikki  he wasn’t really  angry  with  her, just at the hopelessness and helplessness he was feeling. Once again Chris and sister reached out beyond the miles to  each other.

After talking to Nikki he said he wanted to take a drive, we still had the hire car. He left-  I wasn’t sure where and I was worried- he was in so much pain and on so many pills –

A little while later he came back ….. he walked in patted me on the head as a I sat in the chair and handed me a book as he walked to the bedroom – The Lost Symbol by  Dan Brown…………

June 3, 2021 at 1:06 pm 6 comments

May 3rd – No Limits- Chapter 16- Chris Ritchey

 

Forward: https://thatwoman.wordpress.com/2020/01/02/jan-3rd-no-limits-the-forward-chris-ritchey/

Chapter One :https://thatwoman.wordpress.com/2020/02/03/feb-3rd-no-limits-chapter-1-chris-ritchey/

Chapter Two:https://thatwoman.wordpress.com/2020/03/03/march-3rd-no-limits-

Chapter Three: https://thatwoman.wordpress.com/2020/04/03/april-3rd-no-limits-chapt-3-chris-ritchey/

Chapter Four: https://thatwoman.wordpress.com/2020/05/03/no-limits-chapter-4-chris-ritchey/

Chapter Five: https://thatwoman.wordpress.com/2020/06/03/june-3rd-no-limits-chapter-5-chris-ritchey/

Chapter Six: https://thatwoman.wordpress.com/2020/07/03/july-3rd-no-limits-chapter-6-chris-ritchey/

Chapter Seven: https://thatwoman.wordpress.com/2020/08/03/august-3rd-no-limits-chapter7-chris-ritchey/

Chapter Eight: https://thatwoman.wordpress.com/2020/09/03/sept-3rd-no-limits-chapter-8-chris-ritchey/

Chapter Nine: https://thatwoman.wordpress.com/2020/10/03/oct-3rd-no-limits-chapter-9-chris-ritchey/

Chapter Ten: NO LIMITS- Nov 3rd- Chapter 10- Chris Ritchey | That Woman’s Weblog (wordpress.com)

Chapter Eleven: NO LIMITS-Dec. 3rd- Chris Ritchey- Chapter 11 | That Woman’s Weblog (wordpress.com)

Chapter Twelve: NO LIMITS-Jan 3rd- Chris Ritchey- Chapter 12 | That Woman’s Weblog (wordpress.com)

Chapter Thirteen : NO LIMITS- FEB 3rd- Chris Ritchey- Chapter 13 | That Woman’s Weblog (wordpress.com)

Chapter Fourteen: March 3rd, NO LIMITS, Chapter 14- Chris Ritchey | That Woman’s Weblog (wordpress.com)

Chapter Fifteen: April 3rd- No Limits- Chapter 15- Chris Ritchey | That Woman’s Weblog (wordpress.com)

Houston Days and Nights- continued

I haven’t the words to eloquently or adequately   explain the emotions that crash  in and out of your being as you  watch your child battle to  stay  alive. This enemy, came to  conquer , not with guns , bombs or knives it was insidious in its will to  win turning the very  body  of  its victim  against itself. Cells that were made large so  the pumps of the body (lymph nodes) plug  and distort. It circulated through  the life giving blood stream through  the lungs causing coughing that wracked the very  body  trying to deal with  the attacks.  Cancer in all its forms is and obscenity .

I tried so  hard to  keep  cheerful, what 29 year old wants to  be with  his mother. I  know he wanted Angela there knowing the trial was his last hope for a cure or at least remission. I know he wanted to  spend what time he had left with  her . I know I  was the best of a bad deal . I argued with  myself, stop  watching his every move, deliberately  giving him space, taking myself out to  the  pool side to  read, even though  I  was petrified of the little gecko  things running about the pergolas and tables, I  didn’t scream when  they  ran across my  foot or thought I was a roadway  across a chair.

Chris, would spend time going to  the rifle range or to Cabelas.  We tried to  see some of the area when we could and when he felt up to  it.  JD  and Karen, had been out of town for a bit. Chris, after one of the infusions  of SGN 35 could barely  speak the the next day  but when JD called he put strength into  his voice so  JD would not realize how poorly  he was feeling.

Tears welled up  in my  eyes and I  had to  go  out into  the lawn area and have a silent cry  by  myself. Only  I wasn’t by  myself one of the other residents I had noticed  sitting by  the pool, looking as I must look, was there.  She looked up  and me as I was not winning the battle of holding in the tears and noticed she too was crying. She reached up to  hold my  hand  and I  sat down and there we sat for a long time. Two  humans knowing nothing about each other, never speaking  sharing  the impact of cancer. I learned she too, was caring for her  grown daughter as the husband had to  stay  in Indiana for his job and children.  Her daughter was also  on a trial at MD Anderson and a last hope.

 

Hands – Touching- Hands – art work Christopher Ritchey

On the good days we toured Houston. He had wanted to  go  horse back riding. I hadn’t been on a horse in 20 years ( I was then  a lot thinner and in better shape)  and Chris  hadn’t ridden since he was a little one. I made arrangements for the following day. Of course,  that night poured with  rain and  a warm front came  dripping over Houston. I  wrote on my  blog at the time :

NOOOOOO!!! this isn’t a picture of the horse after I rode it. Whew! 90 degrees yesterday after a rain that could’ve floated a boat. My foray into the wild west “avec” plastic helmet. I realize that horse rentals have to protect their clients but you tend to lose heat through your head … just ask a politician 🙂 and when it is covered with plastic and foam OMG!!!! Anyway 2 hours later after riding through swamp and shrub and bush I now remember why cowboys are bowlegged. 

Chris, had become very  interested in life in Texas , so  different from Lorain , Ohio.  One of our days ( again in that heat) was spent at George Ranch Historical Park. It was fascinating seeing the 1830’s cabin and farm  the humble beginnings  to  the 1930’s house “George Cattle Complex” . Of course then there was that oil that helped

“The discovery of oil on the Ranch in the 1920s changed the fortunes of the family and the community forever. The George’s son and only child died while just a toddler and their beloved cousin and presumed heir Mary died tragically when she was a young woman. With no living heirs and a considerable estate, the Georges established The George Foundation to ensure that their wealth would continue to benefit communities across the county into the foreseeable future. This charitable Foundation still exists and gives back today and helps bring you the story of the remarkable family who loved, grieved, rejoiced and lived on this enduring stretch of Texas prairie.”

It was a good day  and Chris was enthusiastic. I  was once again feeling like I would die from the humidity  and heat at any moment but we laughed  and enjoyed a day  without the mention of Doctors or cancer . I would have put up with  heat, humidity  and wading across  the little river filled with  alligators just to  see him smile and laugh .

Mothers and Fathers who  are losing their child will do  the deal with  God, the stars , fate  whatever they  believe, ”

“take me instead  let my  son/ daughter have life and laughter and old age…………”

To  be continued………

 

May 3, 2021 at 1:53 pm 3 comments

April 3rd- No Limits- Chapter 15- Chris Ritchey


untitled

Forward: https://thatwoman.wordpress.com/2020/01/02/jan-3rd-no-limits-the-forward-chris-ritchey/

Chapter One :https://thatwoman.wordpress.com/2020/02/03/feb-3rd-no-limits-chapter-1-chris-ritchey/

Chapter Two:https://thatwoman.wordpress.com/2020/03/03/march-3rd-no-limits-

Chapter Three: https://thatwoman.wordpress.com/2020/04/03/april-3rd-no-limits-chapt-3-chris-ritchey/

Chapter Four: https://thatwoman.wordpress.com/2020/05/03/no-limits-chapter-4-chris-ritchey/

Chapter Five: https://thatwoman.wordpress.com/2020/06/03/june-3rd-no-limits-chapter-5-chris-ritchey/

Chapter Six: https://thatwoman.wordpress.com/2020/07/03/july-3rd-no-limits-chapter-6-chris-ritchey/

Chapter Seven: https://thatwoman.wordpress.com/2020/08/03/august-3rd-no-limits-chapter7-chris-ritchey/

Chapter Eight: https://thatwoman.wordpress.com/2020/09/03/sept-3rd-no-limits-chapter-8-chris-ritchey/

Chapter Nine: https://thatwoman.wordpress.com/2020/10/03/oct-3rd-no-limits-chapter-9-chris-ritchey/

Chapter Ten: NO LIMITS- Nov 3rd- Chapter 10- Chris Ritchey | That Woman’s Weblog (wordpress.com)

Chapter Eleven: NO LIMITS-Dec. 3rd- Chris Ritchey- Chapter 11 | That Woman’s Weblog (wordpress.com)

Chapter Twelve: NO LIMITS-Jan 3rd- Chris Ritchey- Chapter 12 | That Woman’s Weblog (wordpress.com)

Chapter Thirteen : NO LIMITS- FEB 3rd- Chris Ritchey- Chapter 13 | That Woman’s Weblog (wordpress.com)

Chapter Fourteen: March 3rd, NO LIMITS, Chapter 14- Chris Ritchey | That Woman’s Weblog (wordpress.com)

Houston: Days and Nights continued:

Being able to  sleep at night did not last long. Although,  I  was more relaxed because I  could try  and take care of Chris, see to  his needs, cook for him I spent my  days watching every  nuance of his being, and nights listening to  his cough  and worrying. 

After the first weekend we settled into  a routine of trips to  the hospital , taking the infusions and blood test. One of the protocols of the trial of SGN 35 involved writing down  and filling in a daily  chart as to  his  physical and mental responses each  day, reactions to  the medications etc.

A Pivotal Open-Label Trial of Brentuximab Vedotin for Hodgkin Lymphoma – Full Text View – ClinicalTrials.gov

Chris, understood,  along with  tests this questionnaire and his answers would be part of the decision making as to  whether he would be able to  continue with  the drug/infusion SGN 35. And that is a problem, when you are told you  last chance for a “cure” ( there is that word used by  Dr. Brad Pohlman a couple of weeks prior basically  giving Chris the death  sentence) you  will do  anything to  stay  on the trial. Chris would duly  fill out the questionnaire every  day  and turn it in on his appointment days. The problem is  I know his pain level was NOT a three, that he was not having any  significant side effects.

After the first week I went to  the evaluation with  Dr. Younes’ PA, she was extremely  nice  but was concerned as Chris had lost 4 lbs. since she had seen he and Angela that 1st week. I wanted to tell her that he probably  had had nothing to  eat but a plate of spaghetti for days but kept my  mouth  shut.  I assured her I  would be cooking his meals at least three times a day . When we met with  Doctor Younes Chris asked him  for a prescription for Oxycodone  for pain. I watched the Doctors face 

“You shouldn’t be feeling pain on that level, why are you  on Oxycodone it isn’t in your notes….”

I immediately  realized Chris had committed a grave sin in asking. I knew Angela had a prescription filled for him from the Clinic. I hurriedly  stated. 

Oh! he was given a few after the lumpectomy when they  did the biopsy on his neck  a few days ago  and he was in a lot of pain after that surgery  and  that is why as the prescription  was only  for a few of them. 

That seemed to  satisfy  the doctor. When Angela called that evening I  explained what happened and that the Dr. had prescribed Darvon . I  mentioned the Doctor was not happy  with  Chris being on the Oxycodone  . She just  giggled and said

don’t worry  I  will get Chris a prescription….. Darvon  is nothing more than Tylenol and does nothing” . 

Darvon

Well I wasn’t going to argue after all she was the 3rd year Resident. Apparently  by  this time Chris had developed a tolerance to  pain killers. He told Angela the Darvon wasn’t doing anything  and she said just double the dosage, until I  come down next week . Keeping my  mouth  shut was getting more and more difficult. 

Hurricane Ike had left its mark on many areas even a year later. We decided to take a drive to Galveston, I had been there with Nikki for dance competitions a few years previously and it was very interesting. Unfortunately, Ike had done a lot of damage and it was depressing . On the way Chris got a phone call from the Cleveland Clinic. The results of the compatibility test for his sister being a donor for the stem cell transplant were in. They asked if Nikki was his twin because the results were extremely good , very high and they usually don’t get those type of results except with identical twins

Breathing a sigh of relief as we now had another option in our arsenal we stopped for lunch. Our view of the sea front was dismal

.

The Flagship Hotel remains after Hurricane Ike destroyed most other businesses on the coastline in Galveston, Texas, Sept. 19, 2008. U.S. Sailors assigned to Helicopter Sea Combat Squadron (HSC) 28 embarked aboard the amphibious assault ship USS Nassau (LHA 4) are providing defense support to the city?s civil authorities. (U.S. Navy photo by Chief Mass Communication Specialist Chris Hoffpauir/Released)

 

There was one seafood restaurant open and we sat in the balcony over looking what was once the USS Flagship Hotel.

I deserved and needed  a drink, something I don’t often do . The pier on which the Hotel was located obviously had been pretty hard hit . The waiter told us a lot of the business along the sea wall had not survived. Chris walked down along the beach and called Angela with the results from the Clinic and I sat on the bench and called Nikki. Once again HOPE!!!!!

To be continued

April 3, 2021 at 12:04 pm 1 comment

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