The “Good???” Dr. – Drugs- Trust – Selling of hope- Part 3

April 24, 2012 at 9:19 pm 11 comments

UPDATE: The latest FDA information on the drugs mentioned can be found here
http://www.fda.gov/Drugs/DrugSafety/ucm250913.htm

Reaching out- art work- Christopher Ritchey

Part One -http://thatwoman.wordpress.com/2012/02/28/the-good-doctor-or-dentist/

Part Two -http://thatwoman.wordpress.com/2012/04/22/the-good-dr-or-dentist-part-two/

As I stated in Part two – reliving the journey of my experience with Doctors/ hospitals – the medical profession and what ultimately became our tragedy in the loss of my son - Christopher Ritchey – I knew writing the series was going to emotionally take me to places I may not be strong enough to go . So, like a marathon runner in training to get to the main event, I decided to start at the beginning of my experiences hence my memories of a three-year old.

During the course of my journey of grief at the loss of my son I have met so many people , especially mothers, who share my road. I was introduced to Joanne Cacciatore, PhD and her blog where “those in part of the “healing profession , are trying to pigeon-hole and make grief just another disease to take a pill”
http://thatwoman.wordpress.com/2012/03/20/a-parents-grief-apa-diagnosis-you-are-mentally-ill/
and move on. Some of the drugs prescribed for this “illness of grief” can be found here : http://www.drugs.com/condition/depression.html

Depression is big business for the drug companies- I “STRONGLY” suggest you check and see the side effects of these drugs- but Hey! not to worry if you suffer a few – that is OK – I am sure Doctor MD/DO will have another drug in his repertoire to counteract those symptoms and so it goes…..

All types of media from print to electronic now bombard you with “cures for your ills”

Ask your Dr. about XYZ drug – you can live a normal life – just ask him/her about OUR drug.

The snake oil salesmen of the 21st century meet our with our need to hope and be well and we rush to their call with our little insurance cards in hand –

I have watched the commercial, as probably you have ( the commerce drug of the moment- this drug in the billions of dollars – bigger than some country’s budgets ) HUMIRA for many months and any of number of times a night. I have noted the voice over of the side effects- can cause . Lymphoma/ Cancer Tuberculosis ( this is a CURE!!!!!”) and HOW MANY SERIOUS SIDE EFFECTS HAPPENED? I walked the path of the Curable Lymphoma – Hodgkin’s
Why would anyone take this drug ?
from their own website
http://www.humira.com/

Important Safety Information About HUMIRA® (adalimumab)1

HUMIRA is a TNF blocker medicine that can lower the ability of your immune system to fight infections. You should not start taking HUMIRA if you have any kind of infection unless your doctor says it is okay.

ED NOTE: OH OK so according to Humira we put our trust in our Doctor- how many Dr’s ( I bet yours is ) are part of the pharmaceutical sales onslaught- you have seen them with their suits and cases as you wait in the world’s waiting rooms for your turn with the Good?? Dr.

From the Princeton Review – emphasis mine

Pharmaceutical sales is a fast-paced, high-turnover business that rewards assertiveness, persistence, and knowledge. Pharmaceutical sales representatives spend most of their business time on the road, talking with pharmacists, hospital personnel, physicians, patient advocacy groups, and even retirement homes, increasing the visibility of their company’s products and the volume of their sales. “Sell sell sell learn learn learn sell sell sell,” wrote one sales rep, who included his business card with his survey, in case we wanted to purchase any pharmaceutical supplies………………
………..For many, a significant portion of their income is riding on their ability to get the product into the hands of the consumer. So, why is this job so addictive? Perhaps because the “EXCESSIVE PROFIT MARGINS” of many brand-name pharmaceutical products can mean enormous commissions

and for your further reading -
Confessions of a Pharmaceutical Sales Rep

•Serious infections have happened in people taking HUMIRA. These serious infections include tuberculosis (TB) and infections caused by viruses, fungi, or bacteria that have spread throughout the body. Some people have died from these infections. Your doctor should test you for TB before starting HUMIRA, and check you closely for signs and symptoms of TB during treatment with HUMIRA. If your doctor feels you are at risk, you may be treated with medicine for TB.

•Cancer. For children and adults taking TNF blockers, including HUMIRA, the chance of getting lymphoma or other cancers may increase. There have been cases of unusual cancers in children, teenagers, and young adults using TNF blockers. Some people have developed a rare type of cancer called hepatosplenic T-cell lymphoma. This type of cancer often results in death. If using TNF blockers including HUMIRA, your chance of getting two types of skin cancer (basal cell and squamous cell) may increase. These types are generally not life-threatening if treated; tell your doctor if you have a bump or open sore that doesn’t heal.

During my journey, I have met on-line the mother of one of the “SOME PEOPLE”- a mother who trusted – who put the most important person in her life – her child- her son into the hands of the snake oil salesmen – they trusted their medical practitioner to help her son.


This is the face of “SOME people” – he is the reason there is a disclaimer- his life given – His name is Maxx Wendell- a young man with an oh so bright future- a young man full of life, humour and love. WE should all pay attention – because we are the “people” who may also end up as disclaimer as the money rolls in .

His mother, Lisa, wrote a comment on this blog which I have reprised below. Lisa fights through her grief and terror so that no other mother has to walk the path of “induced death” – the some people side effect of this drug . As you look at the side effects of any drug and see some cases , some instances, some deaths remember there is a face behind those side effects who have paid the ultimate price for pharmaceutical profits- Lisa Wendell and her family are “some people”:

Lisa wrote:

For those who read your blog, I am the mom of the son who was prescribed a combination of immunosuppressive medications (what are called biologic TNF blockers) to keep his ulcerative colitis, a non-life threatening chronic autoimmune disease in remission. As a result, Maxx developed Hepatosplenic T-Cell Lymphoma, an aggressive, deadly cancer that killed him in 17 weeks. He was 21.

We were NOT informed of the dangers of this drug precisely because the makers of the drugs (Johnson and Johnson/Centocor and Abbott) had not yet labeled the medication with Black Box warnings advising of the 6 fold increase in risk for this disease in a pediatric population of young men between the ages of 17 and 24. In fact, we were specifically told that the risks for any serious side-effects, including Lymphoma were so low as to be virtually the same occurring in the general population. The combination of the doctor’s ignorance/arrogance and the out and out cover up by the drug industries of deadly side effects (levels of corruption that are unimaginable and occurring across the board all the time with regard to all drugs) killed our boy. Thousands of people a year lose their lives so drug companies can reap profits we can scarcely imagine.

One of the drugs, Remicade, was labeled shortly before he became ill. By that time he was no longer taking Remicade but had been prescribed another medication, Humira, with a different “delivery system” (self-injectible vs. infusion) that was supposed to have a better “safety profile.” Essentially, all this turned out to mean was that the Black Box warning had not yet been required on Humira. As of April, 2011 Humira now carries this warning as well.


Maxx a young man who was proud of his athleticsm- and the results of his training regime

In the meantime, my son is dead. Doctors are still prescribing these medications to people with a variety of autoimmune disorders including Rheumatoid Arthritis, Chron’s, Ulcerative Colitis, and refactory cases of Psoriasis. In the four years since Maxx died, another 41 people have been reported to have died from HSTCL.

We cannot know if they were ever told by their physicians of the dangers, however, we were not informed. We did not consent to taking any risks. Never. We would never have taken such a risk with Maxx’s life. We asked repeatedly about the safety of both Remicade and Humira and were always told the same thing. The drugs are safe. The real information was supressed. Deliberately and for as long as possible to allow the drug makers literally years to make billions. Humira is one the top three selling money making drugs on the market for its manufacturer. What are 40 deaths when compared to billions? The true story’s behind drug company cover ups, lies,marketing scams, and greed are now common knowledge.

I will talk to anyone who is interested in knowing more about Maxx’s story and I welcome contact with other parents who have lost children to medical “fraud” and terminal disease.
lisawendell2003@yahoo.com

http://momslogonly.blogspot.com/

I also urge anyone taking drugs for any chronic condition to thoroughly research the medications you or a loved one have been prescribed. Keep reading, keep asking, keep pestering, never stop. Keep fighting to get the information you need to make an informed decision. Our family is not stupid. Maxx was brilliant. We were duped. He lost his life, and I lost my heart

ED NOTE:
Only those of us who have walked the path of such utter confusion in the medical maze and have lost our reasons for being know how gut wrenching and brave it is for Lisa to write of her journey- she is still giving in the name of her son – and trying to save others from the depair and terrible agony of such a loss- my heart and “knowing” are with her….. LISTEN to Lisa …….. we could all end up as the legal disclaimer one day as one of the ………. “SOME people”

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Entry filed under: a Cow -elle opinion, Chris Ritchey, death, Doctors/Physicians, grief, health, hell is other people, medical, personal opinion. Tags: , , , , , , , , , , , , .

Begging to Live- the healthcare system fails the patient-once again Lorain’s Sons of Sacrifice- Iraq and Afghanistan – The Proud

11 Comments Add your own

  • 1. gramster1  |  April 25, 2012 at 2:02 am

    I agree. When I hear the side-effects of so many of these drugs (at least the ones they tell you about), my gut reactions is always, WHY in the world would anyone take these drugs, roll those dice to only possibly get sicker or worse. I avoid as much medication as I can, you just don’t know.

  • 2. Loraine Ritchey  |  April 25, 2012 at 2:13 am

    You know those “statin ” drugs for high cholesterol and they blow off the side effects of let you Dr. know if you have joint or muscle pain becuse they can damage your muscles – no biggy right unless you remember the HEART is an organ with muscles….. DUH!!! I have been agaisnt statins since my husband literally was crawling on the floor beause he couldn’t walk……

  • 3. gramster1  |  April 25, 2012 at 11:46 pm

    My husband was made to feel very bad when he made the decision to stop the medication. He was taking one med so that he could take the chemo, but the med made him feel worse than everything else. It was debilitating and making him sicker than the cancer. He made the decision to be as much himself as possible for as long as he had left. He chose to deal with the pain and be with us, rather than being “zonked” out and just vegetating. I really wanted to physically harm the doctor that was negating him. Our family doctor finally stepped up and told the “specialists” we were done. I’m convinced when I saw the bills they just didn’t want to lose another cash cow too early.

  • 4. Lisa Wendell  |  April 26, 2012 at 3:15 am

    The real horror here is that we DID ask about the side effects. We asked over the months again and again. We were never given any information or the least indication that these meds were potentially deadly. We were deliberately misinformed, lied to, given incorrect stats. It is one thing to take a medication knowing full well what you’re risking, but to ask and be misinformed either intentionally or on the basis of ignorance/negligence renders the concept of informed consent moot. You can’t know what you have not been told. You can’t find out the truth if it has been covered up or ommitted from the printed material, if it doesn not appear in medical journals or online. We tried to file malpractice against his dr. but because the cap for settlement in California is only $250,000 no med/mal lawyer would take the case, particularly against a powerful HMO (Kaiser, Northern Calif), where winning against one doctor is practically unheard of and the costs involved in filing and pressing suit are exhorbitant for the plaintiff. We are in court now (two years) with a product liability suit against the manufacturerers of Remicade and 6-Mercaptopurine. It doesn’t look especially favorable for us, but it is all that we can do to fight for justice in our son’s name.

    Lisa Wendell

    http://momslogonly.blogspot.com/

  • 5. Loraine Ritchey  |  April 26, 2012 at 1:19 pm

    Too long to go into here probably another post with the drug experiences of my life… but one drug my husband took which is taken by millions and millions for BP (inluding my mother) caused him problems – I knew it was the drug but couldn’t prove it to his Dr. but the disclosure info given when you pick up your prescription showed none of the symptons of “paranoia” he was experiencing – I went to a pharmacy and was talking to the pharmacist he looked strangely at me printed out a comphensive report – said you didn’t get this from me and in 10% of the population this problem occured- I was able to take that print out to the Dr. in my hot little hand and get him to believe me

    Ok so 90 percent benefitted from taking that drug ….that was the reasoning for negating the 10 percent but when you take a look at the world wide population on this drug wellllllllllll that is a different story isn’t it

    say you are in a town of 30 thousand people who take this drug and 300 of them are suffering from delusions and paranoia -oops now to me that is a different story… we finally found another BP medication where he isn’t paranoid……. but me , I have become paranoid about drugs………and I am not taking any so can’t blame the medication for my paranoia …..as I said maybe a post is in order

  • 7. Brian  |  June 20, 2012 at 12:23 am

    My mom has had MS since her middle forties. It hasn’t progressed to badly over the years, but now that she is seventy, she has been in the hospital more frequently lately.

    She was taken by ambulance a couple of weeks ago because she fell at her home and the nuroligist perscribed her a medicine that he informed her she would have to take for the rest of her life. After leaving the hospital and stopping at Drug Mart to get the perscription filled, we were informed that it wasn’t covered by insurance and the cost is FORTY TWO THOUSAND DOLLARS A YEAR for the rest of her life.

    Why the hell would a doctor perscribe a medicine that most people could never obtain to improve their lives?

  • 8. Loraine Ritchey  |  June 20, 2012 at 10:58 am

    because they don’t “know” the patients any more or their circumstances …you are sent to the “specialists you are a number ….. and I am going to get into that when I have the strength to write about what happened with the “Good Dr’s.???” and don’t forget nothing the Dr’s would have to take themselves isn’t covered by their insurance…… I hope the pharmacist gave you some help as to how to get that drug sometimes the drug companies will assist…… but unless you have an advocate ( like you) can you imagine your mum trying to sort this out.disgraceful

  • 9. Wendy Scilley  |  July 17, 2013 at 7:24 am

    I have been on Humira for 18 months now and have now decided to stop injecting it. Four months ago I was diagnosed with multiple Pulminary Embolism in both lungs. I was cycling 150km a week and very fit. I am still in extreme pain though my clots have dissolved from Warfarin therapy. No one can tell why I am in so much pain and also will not suggest that it may be the Humira. It seems that this wonder drug has caused a life threatening condition for me with no answers from anyone. So, I will disscontinue treatment and see if I improve. I only hope that I have not developed long term damage to my body that can not be reversed.

  • […] The “Good???” Dr. – Drugs- Trust – Selling of hope- Part 3 […]

  • […] As the mother of Maxx Wendell, the boy whose story about Humira appears on Loraine’s blog, http://thatwoman.wordpress.com/2012/04/24/the-good-dr-drugs-trust-selling-of-hope-part-3/ […]

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